Love Reading, Hate Neck Pain...I love reading and spend a lot of time in my chair with my neck bent down or in bed on my side reading. My physical therapist suggested I get...Reactions0reactionsComments2 comments
Smart Crutches Were My Best Choice...I’m 22 years old (soon to be 23) and I’m already having movement problems stemming from the pain and stiffness of AS (along with fibromyalgia and fatigue problems). I’ve used...Reactions0reactionsComments1 comments
Food Limitations...Which foods have you sacrificed, and has it really been worth it for improving your pain?...Reactions0reactionsComments6 repliesDiet & Nutrition
Cultivating Resilience In Hard Times 103: Celebration & Beauty...I’m writing this in October, the 70th month of 2020, in the year of our Despotic Overlord COVID-19. The pandemic has shoved 2020 into the record books as a year...Reactions0reactionsComments2 comments
What Next?: Feeling Lost Immediately After Diagnosis...I remember the moment when the doctor's office called Keegan, my husband, to tell him of his AxSpA diagnosis. I remember it was rainy that day, and I had just...Reactions0reactionsComments1 comments
Is heat or cold better for ankylosing spondylitis?...When you are in pain or flaring, does heat or cold work better?...Reactions0reactionsComments13 replies
Has anyone tried Sulfasalazine?...Wondering if it helps and if I should prepare for any side effects? Read more about Sulfasalazine here....Reactions0reactionsComments1 replies
AxSpA Recipe Exchange...This is a forum to share and exchange recipes! Maybe it's a baked good you started making while spending more time at home, or a comfort food recipe passed through...Reactions0reactionsComments4 repliesDiet & Nutrition
What nutrition or dietary changes have you made to manage AxSpA?...Share with the community nutritional or dietary changes you've made since your axial spondyloarthritis diagnosis. Have you found recipes that have helped you feel better while managing AxSpA? Consider sharing...Reactions0reactionsComments7 replies
When It Comes to Treatment, When Do You Leave Well Enough Alone?...Finding an effective medication for any chronic disease can be a challenge for both patient and doctor. Before I got sick myself, it seemed simple enough: Just match up the...Reactions0reactionsComments3 comments
How AS Affects the People Around Us: An Interview...I wanted to interview my two closest friends to see how my AS affects them. How do they feel when I’m in a flare-up? I know how I feel, but...Reactions0reactionsComments1 comments
My 50th Bday Present was a Walker...This is my story, or should I say journey? It took 35 years to get a simple diagnosis! Day after day. Week after week. Month after month. Year after year...Reactions0reactionsComments10 comments
Finding a New Normal with AS...2020 has been an interesting year, to say the least. The COVID-19 pandemic prompted a global response and altered the day-to-day lives of people across the world. One thing I’ve...Reactions0reactionsComments1 comments
Jes Hojsan...Jes is a mom of 2, married to her high school sweetheart, and calls CFB Petawawa Ontario home. She is grief and chronic illness advocate as well as the creator...
Is Chronic Illness My Entire Identity Now?...When I got seriously sick and diagnosed with axial spondyloarthritis in 2017 — I mean, I'd had symptoms (uveitis, fatigue, stomach issues, light back pain) for a decade but we...Reactions0reactionsComments0 comments
Exercise is Medicine!...This saying is not from me. I heard it during the presentation of a rheumatologist specialised in AxSpa. I thought this was a strong message delivered by a specialist. I...Reactions0reactionsComments5 comments
Cultivating Resilience In Hard Times 102: Structure, Commitments, And Opportunities...The iconic Hills Are Alive scene from The Sound of Music has been reborn a thousand times over in memes. Generally, a picture of Maria, arms outstretched, with the Alps...Reactions0reactionsComments1 comments
Arden Doerner Barbour...Arden was previously a health leader on AxialSpondyloarthritis.net. Arden Doerner Barbour was diagnosed with non-radiographic axial spondylarthritis in May 2020. She went from being an active Coloradan enjoying everything Colorado...
The Second Wave of COVID-19 is Here...It’s not a huge surprise. We all knew it was coming. School has started back up and here we are. I live in Canada, so the numbers aren’t as staggering...Reactions0reactionsComments1 comments
Tanya Harrison...Dr. Tanya Harrison calls herself a “professional martian.” She has spent the last decade working as a scientist and in mission operations on multiple NASA Mars missions, including the Curiosity...
