When Our Loved Ones Don’t Get It...I feel like more often than not, our loved ones don’t tend to understand our illnesses. It might take conversation and time for some, but for others, it may never...Reactions0reactionsComments2 comments
City Living With A Chronic Illness, Part 1...I’ve been thinking a lot about accessibility and disability as I work on my third non-fiction book, City Witches. The book is an exploration of how we can embrace the...Reactions0reactionsComments2 comments
Removing the Scary Stigma of Biologics...I went into my first rheumatology appointment of the year last week with one thought on my mind: I think I might need to go on biologics again. I'll be...Reactions0reactionsComments10 comments
What Advocating for Yourself Can Look Like...At the beginning of December, I had adjusted my biologic in the hope to have some relief for the increasing AxSpA symptoms I was experiencing after a brief period of...Reactions0reactionsComments1 comments
Reflecting on my First Year with a nr-AxSpA Diagnosis...January 2021 marks one year since my diagnosis of non-radiographic axial spondyloarthritis, or my first AxSpAversary if you will. I can confidently say between a pandemic and a newly diagnosed...Reactions0reactionsComments4 comments
I Bought a Pair of Walking Poles...Ha, I did it. I purchased a pair of walking poles. Specifically, these walking poles. I am delighted to have them. So this is what happened. A buddy of mine and a fellow...Reactions0reactionsComments7 comments
I Thank AxSpa for My New Career Path...When I got diagnosed with AxSpa, I was transitioning in my career. I did not know at the time how much this move was needed and timely. I remember at...Reactions0reactionsComments0 comments
Things My Chronic Illness Has Given Me...I try not to sugarcoat the reality of having a chronic illness like ankylosing spondylitis (AS), because it truly sucks. But whether it’s the optimist in me or a coping...Reactions0reactionsComments2 comments
How to Handle Moving Day With AS...Daily life with ankylosing spondylitis is complicated. There's the pain, fatigue, brain fog, and flares. But when it's time to move houses, life with AS gets even more complicated. In...Reactions0reactionsComments5 comments
Why I Started #InjectWithMe Videos on Instagram...The phone rang. It was my rheumatologist. She had denied anything was even wrong with me to begin with, so I was taken aback when she diagnosed me with ankylosing...Reactions0reactionsComments2 comments
Laziness Does Not Exist...Editor's note: Recently, I had the privilege of interviewing Dr. Devon Price, a social psychologist who authored the book, Laziness Does Not Exist, which examines a concept that Price calls...Reactions0reactionsComments2 comments
My Decision to Stick With a Biologic, and How It’s Helped...The decision to start any medication is one that I do not take lightly. I do my due diligence, ask lots of questions at the doctor’s office, thoroughly read the...Reactions0reactionsComments4 comments
My 6 Month Update on Humira...I’ve now been on Humira for a whole 6 months. Pandemic time really flies by, doesn’t it? It’s hard to believe I’ve already hit this milestone with Humira, but I’m...Reactions0reactionsComments2 comments
Devon Price...Dr. Devon Price was previously an advocate on AxialSpondyloarthritis.net. Dr. Devon Price is a social psychologist, writer, activist, and professor at Loyola University of Chicago’s School of Continuing and Professional...
New Chapter, Same Disease...I am almost 22 years old and entering a new stage in my life. It’s a period of big changes and big decisions. My peers are starting their careers; some...Reactions0reactionsComments4 comments
Everyday Tasks Made Difficult By Ankylosing Spondylitis...A few days ago, I was asked how I knew my backache was something more than just that. Other than my rapid decline in mobility, I told them I began...Reactions0reactionsComments8 comments
A Letter To Everyone With AS...It's okay if you can't clean the house. It's okay if you can't go to dinner with your friends. It's okay if you're not who you used to be. If...Reactions0reactionsComments2 comments
The Kindest Thing A Fellow AS Patient Told Me...In the midst of a horrible flare-up, I turned to the Facebook communities for AS patients that I'm a part of. Most of the time, I'm just looking to share...Reactions0reactionsComments2 comments
Relying on Dr. Google for Too Long...Hindsight is 20/20. And that's definitely the case for me and my husband, Keegan. He was diagnosed 7 years ago with ankylosing spondylitis after 7 years of undiagnosed pain and...Reactions0reactionsComments4 comments
Stay Strong, AS Warriors...What is Ankylosing spondylitis? If you Google it, the definition states, "An inflammatory arthritis affecting the spine and large joints. The condition is more common among men and usually begins...Reactions0reactionsComments6 comments