Sal Marx...Sal was previously on an advocate on AxialSpondyloarthritis.net. Marx is an artist who works to illuminate invisible disease experiences and disrupt the medical industrial complex. Sal was born in Seattle...
Is it safe taking Voltaren daily?...Hi Everyone! I am very new to AS. Had few flares two years ago and stopped until last week. Been having the unbearable flares every night for the last four...reactions1reply
Specialist Access in Medically Underserved Communities...Looking back, I now know how fortunate I’ve been when it comes to healthcare access. When I was younger, I didn’t spend one minute worrying about access to healthcare -...reactions1comment
FeaturedActive todayWhat have you learned since your AxSpA diagnosis?...Our community advocates have reflected on diagnosis anniversaries and shared how they celebrate "painiversaries." What have you learned about yourself and condition management since your AxSpA diagnosis?...reactions18replies
It All Started When I Was Pregnant...Good afternoon! So...hmmmm, my story. Wherever do I begin? My current pain management Dr states that, most likely, this all started when I was pregnant back in 1996 with my...reactions2comments
Medication Frustration...It’s a hurry up and wait process. From the first doctor’s visit through to now, it has been a journey of constant waiting. It starts with a doctor’s visit, then...reactions2comments
What Happened to my Heat Tolerance?...I used to absolutely love summer. I would tan, go out for day trips a lot, and spend days on the beach. Summer is still my favorite season, but I’ve...reactions24comments
Anti-Inflammatory Banana Bread for Spondyloarthritis...I have a habit of buying bananas at the grocery store thinking I'll eat them up by midweek. As the days whisk by, they turn from slightly green to bright...reactions5comments
Does Ankylosing Spondylitis Cause Nausea?...There are many unwelcomed symptoms of ankylosing spondylitis (AS). The fatigue, brain fog, and pain are enough to cope with. But many people living with AS also live with digestive...reactions5comments
What Do You Know About Rheumatic Diseases?...What is a rheumatic disease? A rheumatic disease is an autoimmune and inflammatory condition that causes the body’s immune system to attack a person’s joints, muscles, bones, and organs. There...reactionscomments
How I Eased Myself Back Into Fitness After My AS Diagnosis...For the past few weeks, I have been working my way back into my fitness routine. Before the onset of my AS, I loved pushing my body to its limits...reactions8comments
Using Assistive Devices...Axial spondyloarthritis can cause pain, swelling, and stiffness in the back and hips along with other joints such as the knees, shoulder, and feet. The disease does not develop the...reactionscomments
Finding a Good Rheumatologist...People who have chronic health conditions like ankylosing spondylitis (AS) or axial spondyloarthritis might be advised by their regular doctor or primary care physician to see a specialist known as...reactions8comments
Reflecting on My 2 Year AS Diagnosis-versary...February 27th, 2020 marked the two year anniversary of the day I was diagnosed with ankylosing spondylitis. I call it my diagnosis-versary. For me, it’s a day that’s just as...reactions5comments
How AS Patients Can Be Better To One Another...As an AS patient, I've lived in forums and Facebook groups, attended AS support meetings and met or corresponded with all sorts of "AS influencers," if you will. We all...reactions1comment
Be True To Yourself: Even If It Hurts...You’re walking down the street and you run into someone you know. They stop to talk and the first question they ask is: “How are you?” When you have a...reactions3comments
Hoping For Light to Get Me Through the Dark...I feel fragile. It doesn’t take much to set me off both physically and mentally right now, and I know it’s because of my progressing AxSpA. My condition seems to...reactions1comment
What Type of Shoes Do You Wear? Do They Help With Pain?...In a recent conversation on our Facebook page, the group talked about shoes that help with their pain and discomfort. Many people mentioned Sketchers and Crocks. Others said being barefoot...reactions8replies
Do Biologics Help Your Flares? I'm Seeing A Rheumatologist Soon...Hello everyone! I am still undiagnosed but finally got an appointment with a rheumatologist, though they couldn't get me in until October 1. I'm in the midst of a flare-up...reactions2replies
