AxSpA Resources and Support...Seeking a diagnosis for axial spondyloarthritis (axSpA) or ankylosing spondylitis (AS) can be a long journey. And receiving a formal diagnosis can be scary and confusing. If you or a...
Yoga is a Safe and Cheerful Companion to my AxSpA...I came across yoga a few years back now. I think I was looking for something a little spiritual and slow pace, which would help me to reconnect with my...Reactions0reactionsComments5 comments
Started In My Childhood...Hello everyone, I really don’t know where to start or what to say, but here it goes. When I was a child I used to have the worst leg pains...Reactions0reactionsComments1 comments
Genetics of Axial Spondyloarthritis...Genes are passed down from parents to their children. They are composed of DNA that dictates things like your eye color and your height. Genes also play a role in...Reactions0reactionsComments1 comments
Physical Therapy FAQ: Part Two...Editor's note: This is Part 2 of Katie's article. Please read Part 1 of Physical Therapy FAQs first!Physical therapists (PTs) are highly trained movement specialists who have a breadth of...Reactions0reactionsComments0 comments
My Life is Not Sad...I’ve noticed through talking with a few friends, and meeting new people, that I get a lot of pity when I mention that I’m sick. If there’s one thing I...Reactions0reactionsComments0 comments
No, You Didn't Give Yourself AxSpa or AS...I hear a lot of people saying that they feel they're in some way responsible for their chronic illness (like this MultipleSclerosis.net writer), as if they did something wrong —...Reactions0reactionsComments2 comments
Julie Vallortigara...I am a Life Coach, an Artist and a Scientist. I am French, originally from Bordeaux. I moved to the UK in 2008. I have always been interested in many...
My Experience With Humira And LDN...Before being diagnosed with AS (and fibromyalgia), I was the type of person who would only take medication if I felt it was absolutely, undoubtedly necessary. The idea of popping...Reactions0reactionsComments1 comments
What's it like living with AxSpA and Fibromyalgia?...Fibromyalgia and AxSpA have a lot in common. They are both rheumatic diseases. Rheumatic diseases cause inflammation in your body, especially in your joints, tendons, muscles, and bones. They can...Reactions0reactionsComments3 replies
Cultivating Resilience In Hard Times 101: Supplies...I'm writing to you in September, the 50th month of 2020, in the year of our Despotic Overlord COVID-19. By now, we've all faced the juggernaut that is running errands...Reactions0reactionsComments1 comments
Getting Through the Day: A Vlog With Auldyn & Keegan...Our AS advocates, Auldyn and Keegan, are married with a toddler...and Keegan lives every day as a stay-at-home dad with ankylosing spondylitis. In this video, they talk about getting through...Reactions0reactionsComments0 comments
Living With Axial Spondyloarthritis & Fibromyalgia...When you live with axial spondyloarthritis, the pain is constant. Not to mention the brain fog, extreme fatigue, stiffness, trouble sleeping, and more. Many people who live with AxSpA also...Reactions0reactionsComments0 comments
Describing The Worst Days With Chronic Pain...In September of 2019, Health Union (the parent company of AxialSpondyloarthritis.net) partnered with the US Pain Foundation for our first ever Chronic Pain in America survey to ask members of...Reactions0reactionsComments0 comments
Infographic: Pain Management Treatment and Care...In September of 2019, Health Union (the parent company of axialspondyloarthritis.net) partnered with the US Pain Foundation for our first ever Chronic Pain in America survey to ask members of...Reactions0reactionsComments0 comments
HLA-B27 Positive, But My Doc Is Still Unsure?...Need some advice... For a long time now, I have had all the symptoms of AS. When I asked my dr to test me for hla-b27, she said I already...Reactions0reactionsComments3 replies
Alternating Hip Pain: Is There Any Immediate Relief?...I am currently on sulfasalazine only. My pain started on the left side and miraculously vanished a day. The next day pain started on the right side which lasted for...Reactions0reactionsComments1 replies
Three Months Of CBD For Chronic Pain...I decided to start using CBD (cannabidiol, not to be confused with marijuana!) to manage my anxiety and mental health issues, which can be exacerbated by axial spondyloarthritis, and my...Reactions0reactionsComments5 comments
Sal Marx...Sal was previously on an advocate on AxialSpondyloarthritis.net. Marx is an artist who works to illuminate invisible disease experiences and disrupt the medical industrial complex. Sal was born in Seattle...
