Do Biologics Help Your Flares? I'm Seeing A Rheumatologist Soon...Hello everyone! I am still undiagnosed but finally got an appointment with a rheumatologist, though they couldn't get me in until October 1. I'm in the midst of a flare-up...reactions2replies
What words do you use to describe AxSpA?...Recently our community advocate, Jessica, wrote this article describing the struggle that is finding the words to describe pain from AxSpA. Pain is difficult to describe: what words do you...reactions7replies
How It Feels to Be Young and High-Risk During the COVID-19 Pandemic, Part II...Editors note: You can read Diana's "How It Feels to Be Young and High-Risk During the COVID-19 Pandemic, Part I" here. As I've delved deeper into the anger I’ve been...reactions2comments
Is Anyone Having Success With Biologics?...I have had back pain since I was 16 years old. When in my early twenties I went to Orthopedic MD who took an xray on my upper back and...reactions7comments
How long did it take you to get a diagnosis for AxSpA/AS?...It can take years to get a diagnosis for axial spondyloarthritis/ankylosing spondylitis. On average, it can take somewhere between 8-11 years from initial symptom onset to get diagnosed. However, many...reactions2replies
5 Questions to Ask the Chronically Ill Person in Your Life (And 5 Questions To Avoid)...If you know someone with a chronic illness like axial spondyloarthritis, you may have questions. This is a good thing — it likely means you want to better understand and...reactions2comments
COVID-19 Updates, July 16: Updates on People at Risk, Testing, Reopening, and a Vaccine...Even after months of navigating life in the COVID-19 era, keeping up with new information and news can be overwhelming. Below are some of the latest developments surrounding COVID-19 for...reactionscomments
Jessica Gama...Jessica was previously a health leader on AxialSpondyloarthritis.net. Jessica is a writer, artist, wife, academic, dog-mom, and outdoor enthusiast who is learning more each and every day about life with...
2019 My Diagnosis...I have always had back problems and had some injuries to my back in my life that my body was telling me was more serious than what the doctors were...reactions2comments
The Pain is Unbearable...Hi everyone, I apologize for the long post in advance it's the first time I've ever posted anything like this on any kind of website. I have just signed up...reactions2comments
AS Ruined My Life. Now trying to get it back together....I'm not a native English speaker. Please forgive my mistakes! I've been mistreated so many times with "professional" help, so I would like some advice from people that are going...reactions3comments
Ankylosing Spondylitis: Chronic Pain and Chronic Fatigue...I had a few symptoms before I even knew I had AS. All these things that led up to where I currently am, doctors not knowing for the longest time...reactions3comments
All I Want from Santa....(And Doctors)...I loved my friends, I loved my job, I loved life. I worked for our state, Alaska, for almost 17 years. I found my husband at this job, and also...reactions1comment
This Pain Sucks...My pain started when I hurt my back working at a nursing home. The doctors told me that I have had it for a while. My back would get sore...reactions1comment
My Journey and How I've Managed to Cope...The day after Superstorm Sandy, I twisted my knee. A few days later it had gotten worse, so went to the doctor. Sent to a ortho, and April 19, 2013...reactions2comments
I Advocated for Myself and I’m Proud...I’ve kind of been in a medical limbo since September. My biologic drug, Inflectra (a Remicade biosimilar) has stopped working at the capacity that it used to. We upped me...reactions1comment
I Was A Mystery Patient...I was my doctor's mystery patient for a total of seventeen months or longer. Here is my story before I got diagnosed. In April 2015, the lower right side of...reactionscomments
Diagnosed and can’t go back to doctor...I have been diagnosed, but due to loss of insurance I can’t go back to the doctor, I can’t afford the meds nor can I get a prescription. I have...reactions1comment
It Explained Everything!...I graduated from hygiene school in 2012, and within four years I needed bilateral carpal tunnel release surgery. I was also having back/hip/buttock pain and was waking up so stiff...reactionscomments
What Is AS Like? Well......I was diagnosed about 3 years ago, after my pain management doctor couldn't help me with my pain anymore. So he referred me to a rheumatologist. I went to see...reactions1comment
