I Advocated for Myself and I’m Proud...I’ve kind of been in a medical limbo since September. My biologic drug, Inflectra (a Remicade biosimilar) has stopped working at the...reactions1comment
I Was A Mystery Patient...I was my doctor's mystery patient for a total of seventeen months or longer. Here is my story before I got diagnosed...reactionscomments
Diagnosed and can’t go back to doctor...I have been diagnosed, but due to loss of insurance I can’t go back to the doctor, I can’t afford the meds...reactions1comment
It Explained Everything!...I graduated from hygiene school in 2012, and within four years I needed bilateral carpal tunnel release surgery. I was also having...reactionscomments
What Is AS Like? Well......I was diagnosed about 3 years ago, after my pain management doctor couldn't help me with my pain anymore. So he referred...reactions1comment
It’s Taking Forever To Get A Diagnosis!...I’m 50 now. I’ve been having weird pains for about 26 years with random explanations from different doctors. "You’re overweight" (I was...reactionscomments
AS and Everything Else!...I was diagnosed with ankylosing spondylitis in 1980. I was 18, I had excruciating low back pain to the point I could...reactions1comment
Undiagnosed and pain getting worse....I have had serious back and hip pain for several years. My pain management doctor said I have arthritis. The pain is...reactions1comment
2nd Generation AS...I grew up with a dad who had an extreme case of AS. It was the 60’s and nobody knew what was...reactionscomments
My Life Changed Seemingly Overnight...I don't tell my AS story very often. It seems so long to me and I never know if anybody really wants...reactionscomments
Just The Beginning...My dad was struggling with pain for twenty years before he was diagnosed. Luckily, as a triathlete, he was somewhat managing his...reactionscomments
Finally, An Answer To My Pain...I've dealt with back pain all my life. Then it started spreading. A couple of years ago, I finally got a dx...reactions1comment
Misdiagnosed...Started having pain in SI joint early 30s but pain management said it was my lower lumbar even burned nerve in that...reactionscomments
Processing Opinions and Advice 101: Unknowns...It is a truth universally acknowledged that some people in possession of opinions and advice cannot keep these precious "pearls of wisdom" to themselves...reactions2comments
What Does Positivity Look Like With AS and Chronic Pain?...For the past year, I became a bit of a cynic when it came to the positivity movement I'd been seeing all...reactionscomments
COVID-19 Proves That Accessibility Was Possible All Along—And Should Be Here to Stay...Before COVID-19, my chances of being able to keep a doctor’s appointment on a day I was having an ankylosing spondylitis flare-up—-even...reactions2comments
What was your first AxSpA treatment like?...For many patients, getting diagnosed is an arduous journey and next steps in condition management are not always clear. What works for...reactions4replies
How does a doctor obtain positive results for this diagnosis?...Is it by blood screening?...reactions2replies
Has anyone been prescribed the DMARD sulfasalazine throughout your journey?...I recently saw a rheumatologist who put me on the DMARD sulfasalazine delayed release tablets. Has anyone taken this drug and what...reactions2replies
Being Whole With Ankylosing Spondylitis...I have to admit that I rarely feel whole. I know my body is physically whole; in fact, I am in better health...reactionscomments
