"But You Don't Look Sick?!"
Axial spondyloarthritis, though often invisible to the naked eye, can significantly impact daily life. This forum provides a space to share your encounters with this well-intentioned yet sometimes perplexing inquiry. "But you don't look sick?!" How do you handle it? What emotions does it stir? Have you discovered effective ways to educate others about the hidden facets of axial spondyloarthritis?
Join us in this conversation, connecting with fellow warriors who understand the unique challenges and triumphs of living with this condition. Let's exchange stories, tips, and strategies for gracefully addressing this common but complex question. Together, we can support each other, share insights, and help raise awareness about axial spondyloarthritis—both the seen and unseen aspects. 💪🦴💬
Imagine how much a broken bone feels to a normal person. That's what pain is like on most days for a person with AS."
- an excellent way to describe the neverending severity of pain from spondyloarthritis. I do hope you find some relief with therapy, medication and other modalities. Sending you pain relief. Rebecca (team member)
So Accurate that is hurt
- Thanks for leaving a comment here in the community. When told "But you don't look sick," it's important to recognize that axial spondyloarthritis, though often hidden, can profoundly affect daily life. As you state, its accuracy in impacting well-being is painfully real. Has it been a good week for you? Sending you thoughts of healing and wellness. Rebecca (team member)
Now that you have given your judgment, are you also open to learning about my medical condition? If not, then this conversation is over.
,
It's unfortunate that people can react that way (most especially those not affected by AxspA). Always know this community understands and is here for you.
Be well, Doreen (Team Member)
I realized, the understanding I was looking for was not possible. So I stopped worrying about getting people's understanding. Can't worry about weather people in your life get it or not. To busy fighting the s.o.b.
It sounds like you've reached a point of acceptance and resilience in the face of a chronic illness. It's a powerful realization to recognize that you can't control how others perceive or understand your situation and that your energy is better spent focusing on your own well-being and the challenges you're facing. Thanks for sharing this thought with the community. Regards, Rebecca (community moderator) 
Yes !!!! I agree. It can be hard at times to not worry about not having other understanding. But like you said slowly slowly you just stop worrying as this disease take enough energy on it's own.
How are you feeling today?
Nicky (Team Member)
