Active 3 days agoPain LevelWhen asked, “On a scale of one to ten…” We have all heard that many times. However, that’s hard to answer. I was diagnosed in 1978 and have lived with...Reactions0reactionsComments2 repliesTips & AdviceCopingMisunderstood
Christmas Gifts For People With ASWe are deep into the season of giving and it's got me thinking about what kind of things would make good gifts for those of us with chronic illnesses instead...Reactions0reactionsComments0 repliesAssistive DevicesCopingTips & Advice
What are you thankful for?Even amidst the challenges posed by axSpa, there remain compelling reasons to be thankful. What are you thankful for?...Reactions0reactionsComments5 repliesCopingCommunity SupportMental Health
How do you describe your pain (or: is this level of pain possible?) 😭Hi, folks! I'm new to this community, and I searched for an discussion like this one and I didn't find it, so I'm trying to start one 😊 First of...Reactions0reactionsComments22 repliesFlares CopingSymptoms
How does everyone manage AxSpA pain?I’m a newbie to the AxSpA family. As much as I wouldn’t wish this on others, I embrace being in this family. My discussion topic is pain. Really, the question...Reactions0reactionsComments7 repliesCoping
How do you stay comfortable when you're uncomfortable?If you suffer from AS, then you probably know the struggle of always trying to make yourself comfortable in almost every situation. What items or methods do you use to...Reactions0reactionsComments14 repliesCopingAssistive DevicesComplimentary Treatment
What's something you wish you were told when you were diagnosed? We learn a lot from our diagnosis through experience, trial and error, and sharing information. What's one thing you wish you would have been told when you were first diagnosed?...Reactions0reactionsComments37 repliesTips & AdviceDiagnosisCoping
Mental healthI am 32 years old and was diagnosed in 2021, I am still trying to process the diagnosis and trial and error medication which has left me in a debilitating...Reactions0reactionsComments10 repliesAxial Spondyloarthritis CopingDepression
Living With AxSpa and Peripheral Spondyloarthritis When symptoms occur mostly in places other than the spine, the condition is called peripheral spondyloarthritis. There are several types of pSpA, including: -Psoriatic arthritis (PsA) -Reactive arthritis -Arthritis with...Reactions0reactionsComments30 repliesPeripheral SpondyloarthritisTips & AdviceCoping
Brain Fog is an issue!Now almost ten years into AS, people around me still do not understand Brain Fog as something many of us grapple with. Recently our daughter and her husband visited us...Reactions0reactionsComments25 repliesAnkylosing SpondylitisAxial Spondyloarthritis Coping