What's something you wish you were told when you were diagnosed? We learn a lot from our diagnosis through experience, trial and error, and sharing information. What's one thing you wish you would have been told when you were first diagnosed?...Reactions0reactionsComments37 repliesTips & AdviceDiagnosisCoping
Mental healthI am 32 years old and was diagnosed in 2021, I am still trying to process the diagnosis and trial and error medication which has left me in a debilitating...Reactions0reactionsComments10 repliesAxial Spondyloarthritis DepressionCoping
Living With AxSpa and Peripheral Spondyloarthritis When symptoms occur mostly in places other than the spine, the condition is called peripheral spondyloarthritis. There are several types of pSpA, including: -Psoriatic arthritis (PsA) -Reactive arthritis -Arthritis with...Reactions0reactionsComments30 repliesPeripheral SpondyloarthritisTips & AdviceCoping
Brain Fog is an issue!Now almost ten years into AS, people around me still do not understand Brain Fog as something many of us grapple with. Recently our daughter and her husband visited us...Reactions0reactionsComments25 repliesAnkylosing SpondylitisAxial Spondyloarthritis Coping
Diagnosed with Ankylosing Spondylitis (AS)Hi everyone! I just wanted to come on and ask everyone for some advice as to how get on with life after being diagnosed with AS. I’ve been diagnosed with...Reactions0reactionsComments22 repliesAnkylosing SpondylitisCommunity SupportCoping
Relentless spasms I am not new to muscles spasms. The muscles in my low back are always guarding where my lumbar hardware is placed. They started spasming years before the fusion and...Reactions0reactionsComments6 repliesCopingAxial Spondyloarthritis
What's in your AxSpA flare toolkit? Share a photo with the community!Everyone copes with AxSpA and symptom flare-ups different. Do you have a cozy cave, or place in your home where you go to feel better? What items or activities can...Reactions0reactionsComments12 repliesFlare ManagementCoping
Small Goals for Living with AS and AxSpaAs we navigate the challenges and triumphs of living with AS and AxSpa, it's important to focus on setting achievable goals that contribute to our overall well-being and quality of...Reactions0reactionsComments0 repliesAxial Spondyloarthritis CopingCommunity Support
Share your favorite AxSpa-related meme! 😆 Let's have some fun! Living with AxSpa is a daily challenge, so it's important to find reasons to smile and laugh along the way. Share your favorite meme that resonates...Reactions0reactionsComments0 repliesCopingVentingCommunity Support
HelpI’ve had this flare for the past 6 months.. despite weekly biological injections and starting methotrexate 2 months ago, my condition progresses. My spine, SI joints, peripheral joints, my eyes...Reactions0reactionsComments3 repliesCoping