Pain LevelWhen asked, “On a scale of one to ten…” We have all heard that many times. However, that’s hard to answer. I was diagnosed in 1978 and have lived with...reactions2repliesMisunderstood Tips & AdviceCoping
What are you thankful for?Even amidst the challenges posed by axSpa, there remain compelling reasons to be thankful. What are you thankful for?...reactions5repliesCopingMental HealthCommunity Support
How do you describe your pain (or: is this level of pain possible?) 😭Hi, folks! I'm new to this community, and I searched for an discussion like this one and I didn't find it, so I'm trying to start one 😊 First of...reactions22repliesFlares CopingSymptoms
How does everyone manage AxSpA pain?I’m a newbie to the AxSpA family. As much as I wouldn’t wish this on others, I embrace being in this family. My discussion topic is pain. Really, the question...reactions7repliesCoping
What's something you wish you were told when you were diagnosed? We learn a lot from our diagnosis through experience, trial and error, and sharing information. What's one thing you wish you would have been told when you were first diagnosed?...reactions37repliesCopingTips & AdviceDiagnosis
Mental healthI am 32 years old and was diagnosed in 2021, I am still trying to process the diagnosis and trial and error medication which has left me in a debilitating...reactions10repliesAxial Spondyloarthritis CopingDepression
Brain Fog is an issue!Now almost ten years into AS, people around me still do not understand Brain Fog as something many of us grapple with. Recently our daughter and her husband visited us...reactions25repliesAnkylosing SpondylitisAxial Spondyloarthritis Coping
Diagnosed with Ankylosing Spondylitis (AS)Hi everyone! I just wanted to come on and ask everyone for some advice as to how get on with life after being diagnosed with AS. I’ve been diagnosed with...reactions22repliesAnkylosing SpondylitisCommunity SupportCoping
Relentless spasms I am not new to muscles spasms. The muscles in my low back are always guarding where my lumbar hardware is placed. They started spasming years before the fusion and...reactions6repliesAxial Spondyloarthritis Coping
What's in your AxSpA flare toolkit? Share a photo with the community!Everyone copes with AxSpA and symptom flare-ups different. Do you have a cozy cave, or place in your home where you go to feel better? What items or activities can...reactions12repliesCopingFlare Management
