How long did you experience symptoms before being diagnosed?Many people experience symptoms of AxSpA for quite some time before being diagnosed. Some people are misdiagnosed, while others are dismissed as having simply back pain. What was your experience...Reactions 0 reactions Comments14 replies
Undiagnosed but in painFor context I live in the U.K. and while the NHS are brilliant and free, the waiting lists and pressure on them leaves them limited in some ways. I am...Reactions 0 reactions Comments5 repliesAxial Spondyloarthritis Mental HealthTips & Advice
FeaturedWhat have you learned since your AxSpA diagnosis?Our community advocates have reflected on diagnosis anniversaries and shared how they celebrate "painiversaries." What have you learned about yourself and condition management since your AxSpA diagnosis?...Reactions 0 reactions Comments13 replies
When did you know it was time to start a biologic?Hello everyone. I just met with my new rheumatologist for the first time today after my family physician diagnosed me with Ankylosing Spondylitis about 2 months ago. I only met...Reactions 0 reactions Comments25 repliesTreatmentTips & Advice
Hope is dwindling away…I have had LBP (now realising very much in keeping with AS symptoms) for the last 5 or 6 years, I’ve been to see countless physios that have given me...Reactions 0 reactions Comments3 repliesNon-Radiographic Axial SpondyloarthritisDiagnosisMisunderstood
Bed topper for AxSpaHi I was wondering if anyone had any recommendations for a bed topper to assist with pain and discomfort whilst sleeping. I find my sleep is quite disturbed and wake...Reactions 0 reactions Comments3 repliesSleepPainsomnia Tips & Advice
HelpI’ve had this flare for the past 6 months.. despite weekly biological injections and starting methotrexate 2 months ago, my condition progresses. My spine, SI joints, peripheral joints, my eyes...Reactions 0 reactions Comments3 repliesCoping
Dismissive doctorsHas anyone else tried to explain the severity of symptoms like severe fatigue and pain to their doctor, and were having trouble being able to work, and were met with...Reactions 0 reactions Comments16 repliesFatigue SymptomsWork & Employment
AS/AxSpa Treatment ExperiencesWe invite you to discuss and share your personal journey with Ankylosing Spondylitis (AS) or Axial Spondyloarthritis (AxSpa) treatments. Whether you've tried medications, physical therapy, lifestyle changes, or other therapies...Reactions 0 reactions Comments8 repliesTreatmentAwarenessCommunity Support
Will you take our In America survey and help others understand the impact of AxSpA?To learn more about the challenges of living with AxSpA, we are conducting our In America survey. By taking our survey, you can bring awareness to the realities of life...Reactions 0 reactions Comments2 repliesResearch & Clinical Trials