FeaturedIf you could send a message to your younger self, what would it say?Imagine if you could turn back the clock and offer guidance to your younger self, the person who first embarked on this journey with AxSpa. We invite you to share...Reactions0reactionsComments15 repliesTips & AdviceNewly DiagnosedCommunity Support
Featured How do you respond when someone unfamiliar with AxSpa questions your change of plans?Sometimes we might respond calmly; other times may be more defensive. Do you have a go-to response? Do you use it as a time to educate? Let's vent!...Reactions0reactionsComments10 repliesFriends & FamilyMisunderstood Tips & Advice
Active todayPain LevelWhen asked, “On a scale of one to ten…” We have all heard that many times. However, that’s hard to answer. I was diagnosed in 1978 and have lived with...Reactions0reactionsComments2 repliesTips & AdviceCopingMisunderstood
Active 4 days agoexplaining why you miss partiesThis is a very good question, I have tried different things and I struggle with an answer, If I just don´t show up everyone used to ask why is she...Reactions0reactionsComments1 repliesFriends & Family
Active 6 days agoFamily history Hi everyone I know we all have our different views on biology medicine and would never tell anyone or expect anyone to tell me what to do. I live in...Reactions0reactionsComments127 repliesAxial Spondyloarthritis
Active 7 days agoTips for a Better Sleep Sleep is a crucial aspect of managing AS/AxSpa, yet many of us face sleep troubles due to pain and discomfort. Let's discuss how AS/AxSpa affects your sleep patterns and share...Reactions0reactionsComments35 repliesInsomniaPainsomnia Sleep
What are your tips for preparing for a visit with your doctor? Share your best tips for preparing for a doctor's visit when dealing with AS/AxSpa. Whether it's gathering medical history, noting down symptoms, or bringing up concerns, your insights can help...Reactions0reactionsComments31 repliesTips & AdviceHealthcare TeamCommunity Support
Lifestyle Changes: What's Helped You?What lifestyle changes have helped you cope with your AS? What changes haven't helped at all? Share the good and the bad below....Reactions0reactionsComments7 repliesTips & Advice
Christmas Gifts For People With ASWe are deep into the season of giving and it's got me thinking about what kind of things would make good gifts for those of us with chronic illnesses instead...Reactions0reactionsComments0 repliesAssistive DevicesCopingTips & Advice
Returning to normal following lower spine surgery - starting PTLiving with AS can present unique challenges, but incorporating physical therapy techniques, especially following major surgery, can help improve flexibility, reduce pain, and enhance overall quality of life. Let's share...Reactions0reactionsComments11 repliesAxial Spondyloarthritis ExerciseSurgery
Do you have additional health issues?What are other health issues you face besides your AxSpA/AS diagnosis?...Reactions0reactionsComments28 repliesComorbiditiesDiagnosis
What are you thankful for?Even amidst the challenges posed by axSpa, there remain compelling reasons to be thankful. What are you thankful for?...Reactions0reactionsComments5 repliesCopingCommunity SupportMental Health
