How I Use Medical Cannabis to Manage AxSpa...I have been suffering from not only axial spondyloarthritis, but with other conditions that cause inflammation in the body. I have spent the past decade in and out of hospital...Reactions0reactionsComments2 comments
An Open Letter to Able-Bodied Individuals...Dear able-bodied individuals, If you lived in my shoes for just one day, you would understand—the trauma, the sacrifices I have to make, the constant pressure to perform more abled...Reactions0reactionsComments0 comments
Life Lessons from 17 Years of Illness...I’ve had many different chapters in my life—I was diagnosed with AS when I was nine—and I was incredibly ill until I was 16. I spent the next eight years...Reactions0reactionsComments0 comments
An Unrealistic Outlook on Exercise...In the past year, I have gained unwanted weight. This is due to a lack of mobility and medication. I was pretty much bed-bound for three months, while on steroids for 5 months...Reactions0reactionsComments15 comments
I Was Wrong About Arthritis...I was wrong about arthritis before. I was wrong about who arthritis affects. I thought it was an affliction of the elderly, a nuisance I might encounter as I age...Reactions0reactionsComments4 comments
How often do you get bloods taken? ...I get my bloods taken every 2-3 months. I hate blood test but I find as time goes on I am getting more used to them. How do you find...Reactions0reactionsComments2 repliesHealthcare TeamTreatment
What tips would you give a friend living with ankylosing spondylitis (AS)?...It's Rheumatic Awareness Disease Month! What are your tips?...Reactions0reactionsComments5 repliesNewly Diagnosed Tips & Advice
Tuning Into Self-Worth While Chronically Ill...A lot of the time when I'm speaking to people with AS (and other chronic pain conditions), they mention that their disease has made them feel worthless. This always breaks...Reactions0reactionsComments3 comments
I Tried TENS For Pain...TENS stands for transcutaneous electrical nerve stimulation. This is a fancy way of describing mild zaps of electricity being sent through the skin to disrupt pain sensations. It's important to discuss...Reactions0reactionsComments6 comments
A Third COVID Vaccine For Immunosuppressed People?...Just before I went to get my second shot of the Pfizer vaccine I had a phone consultation with my Rheumatologist who told me that I would most likely require...Reactions0reactionsComments21 repliesAwarenessTips & AdviceTreatment
Inflammation ...I can’t find the post from the Lady who got her insurance to pay for tooth implants due to inflammation. Does anyone remember who it was? Thanks! Ron...Reactions0reactionsComments7 repliesAxial Spondyloarthritis
Changing biologics...Due to shortage of Actemra because of COVID my doc wants me to change to Simponi. I’m scared. What can you tell me about it?...Reactions0reactionsComments1 repliesTreatment
Everyday Thoughts and My Chronic Illness...When it can affect every aspect of your day-to-day life, there’s no forgetting about a chronic illness. After I was first diagnosed with ankylosing spondylitis, I had trouble plugging the...Reactions0reactionsComments5 comments
What are Immunosuppressants?...Hi, I am recently diagnosed but dealing with the pain since 2018. The doctor order more labs and xray and told me in two months I will begin the treatment...Reactions0reactionsComments2 repliesTreatment
How I Sleep Better With Arthritis...My best days go full circle, with a natural flow from activity, rest, more activity, relaxation, and then sleep. I begin and end the day with a quiet spiritual practice...Reactions0reactionsComments5 comments
My nr-AxSpa Biologic Journey: Part One...Since being diagnosed with non-radiographic axial spondyloarthritis in 2018, I have tried four separate biologics at various times. I am telling you about my experience with these biologics not to...Reactions0reactionsComments5 comments
What tips would you give a friend living with axial spondyloarthritis?...Share tips and advice that has helped you get by or live more comfortably with AxSpA....Reactions0reactionsComments3 repliesCopingTips & Advice
A Brutally Honest Shingles FAQ...I've learned that a lot of people in the ankylosing spondylitis community have experienced the incredibly disgusting, horribly painful, grossly unattractive plague that is shingles. So have I. And so...Reactions0reactionsComments2 comments
My Achilles Heel Is Literally My Achilles Heel...An aspect of AS that is often overlooked is foot pain. AS can cause a lot of pain in the foot, especially the heel. One of the symptoms I did...Reactions0reactionsComments19 comments
History of My Life...I was a swimmer and dance coach but with my untreated autoimmune disorder back in childhood (vitiligo) I experience a sharp flare-up suddenly at age 21! Losing several kilograms in...Reactions0reactionsComments7 comments
