The Kindest Thing A Fellow AS Patient Told Me...In the midst of a horrible flare-up, I turned to the Facebook communities for AS patients that I'm a part of. Most...reactions2comments
In Defense of Fun: Chronic Illness Management...I've been in a dark hole lately. The pain has gotten pretty intense and incredibly constant. Just when I think I'm doing...reactions4comments
Guess the Spondyloarthritis In America Statistics!...In 2020, 787 people living with radiographic axial spondyloarthritis or ankylosing spondylitis (AS), 285 people living with undifferentiated spondyloarthritis (uSpA), and 105...reactionscomments
How I Knew Humira Wasn’t For Me...I was on Humira for 6 and a half months. I knew I should give it around 6 months to be completely...reactions9comments
My Challenge to Adapt to the Unpredictable AxSpa...I used to live a full-on life, enjoying planning many things such as dinner with friends, holidays, weekends away, various activities, and...reactions4comments
City Living With Chronic Illness, Part 2...Read part 1 here (where I go over how city life affects me, and how it's affected others). In this part, I'll...reactionscomments
Psoriasis and Axial Spondyloarthritis...There are various conditions or diseases that occur at the same time as conditions on the AxSpA spectrum. These are called comorbid...
Chronic Back Pain...Symptoms of spondyloarthritis (SpA) can vary, depending on the kind of SpA you have and where your condition falls along the SpA...
Understanding My Pain Helps Me Manage It...Even with a treatment that is effective and regular exercise, AxSpA reminds me that it is still here, and manifests itself through...reactions4comments
Interviewing my Family Members About my AS...Being diagnosed with ankylosing spondylitis (AS) was major event in my life that not only affected me, but also the people in...reactions3comments
Amplifying Black Voices: The Importance of Finding Community...When you live with a chronic autoimmune condition like ankylosing spondylitis, finding a community that understands is powerful. And, science backs this...reactions1comment
Ways to Support Someone Living with a Chronic Illness...If you care for or live with someone diagnosed with a chronic illness, then you know some days are harder than others...reactions4comments
Living at Age 67 with AS...I was diagnosed in 1978. I have had 2 hip replacements and surgery on both hands. I use a hot tub daily...reactions13comments
5AM: A Poem About Ankylosing Spondylitis...5AM She rolled over Wrapped in her skeleton Devoured by it’s pain No No No Don’t roll again Ashamed, a shame, a...reactions5comments
My Morning Routine...I wake up, rollover, ouch! Everything feels stuck. I slowly turn over, moaning. Usually, when I get a good night's sleep, I...reactions8comments
AS Gave Me Empathy...When I think about myself a few years ago, I think of long nights and parties. Struggling to find the energy, but...reactions1comment
Guide To Getting Through Lockdown With AS...If you've been online recently you may have noticed that there’s currently some kind of pandemic going on. As most of us...reactions8comments
How Does Your Experience Compare to That of Others Living with AS In America?...In 2020, 787 people living with ankylosing spondylitis took our online Spondyloarthritis In America Survey. We also got information from people living...reactions1comment
Why Community Matters...When it comes to finding community, the ankylosing spondylitis warriors online have it on lock. From Instagram hashtags to Facebook support groups...reactionscomments
Using Instagram & Social Media to Find Community...Social media plays so many roles in people's lives. It can be a way to connect with others, it can be a...reactions2comments
