History of My Life...I was a swimmer and dance coach but with my untreated autoimmune disorder back in childhood (vitiligo) I experience a sharp flare-up suddenly at age 21! Losing several kilograms in...Reactions0reactionsComments7 comments
I’m having a Lumbar radio frequency Nerve Ablation ...I had this procedure done a little over a year ago, and it burns the nerves so they stop sending pain signals to my brain. It lasts from 9-12 months...Reactions0reactionsComments4 replies
Does anyone get spinal injections?...Do you get spinal injections? If so, do they help and which injections do you get?...Reactions0reactionsComments6 repliesTreatmentHealthcare TeamFlare Management
Tips For Running With AS?...Hi Guys, after spending months trapped inside thanks to the pandemic I think it is time I started doing a bit more cardio and thought running would be a good...Reactions0reactionsComments17 repliesTips & AdviceExercise
Does the weather affect your AS?...I'm at odds with this because I'd always thought the weather doesn't affect my AS. However, the older I've got, the more I've started to question if perhaps the rain...Reactions0reactionsComments10 repliesFlares Tips & AdviceWeather
Grief, Arthritis, and Applying for Disability...I grieve for myself. I should say my former self. I no longer grieve the event that caused the grief (that ship has sailed). Instead, I grieve my suffering. What...Reactions0reactionsComments23 comments
Switching Biologics for Ankylosing Spondylitis...Along your treatment journey, you may switch the biologics you take for ankylosing spondylitis. There is much to consider before swapping your meds. Weighing the benefits and costs listed below...Reactions0reactionsComments3 comments
Preparing For a New School Year With AxSpa...Living with a chronic illness and being a mother doesn’t come easy. I am learning new ways every day to make it a little easier. I think you can never...Reactions0reactionsComments5 comments
Take the Managing Treatment and Medication Survey...The Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like axial spondyloarthritis (AxSpA)...Reactions0reactionsComments0 comments
Take the Managing Treatment and Medication Survey...The Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like ankylosing spondylitis (AS)...Reactions0reactionsComments0 comments
Biologics and weight gain...I got diagnosed very recently in 2020 and was put on Cimzia. I have it hard to comprehend having to inject and got bad nasal side effects.. bleeding nose, terrible...Reactions0reactionsComments9 replies
Chronic Illness: A Life Sentence or A Lifeline?...A chronic illness diagnosis can be a very confusing and terrifying experience. Being told that I had a medical condition that will never go away was a huge shock for...Reactions0reactionsComments5 comments
The Many Doctors Who Manage My Axial Spondyloarthritis...One question I get often is "who treats axial spondyloarthritis?" Typically, this question arises from individuals with some of the symptoms of AxSpA but no diagnosis, so I figured why...Reactions0reactionsComments11 comments
Alcohol and AS: What I've Realized...Last year I wrote a few articles about how I cut alcohol out entirely for a few months. At that point, I was recalibrating my relationship with alcohol after spending...Reactions0reactionsComments11 comments
Do I have AS?...I am 44 years ears old. Around 8 years ago I was hit with extreme lower back pain where they concluded I had disc impingement from a cyst or bulge...Reactions0reactionsComments1 repliesAxial Spondyloarthritis
A Look At The Mythology of the Spine...I read an interesting bit of mythology around the spine the other day, as I delved into one of my many "Wikipedia holes" — I have a tendency toward late-night...Reactions0reactionsComments2 comments
How's Your Pandemic FOMO?...The epic film Love Actually tells us that Christmas is an enchanted time for magical moments and taking stock of our lives. In between making dreams come true, we’re meant...Reactions0reactionsComments2 comments
How Fundraising Helped Me...Luckily, I have never suffered with my mental health (touch wood). After my diagnosis, it was the worst I had ever felt in my life. For months I got into...Reactions0reactionsComments5 comments
Weekly injections - do you inject yourself or does someone do it for you?...I've been injecting myself for 16 years now but I never get used to it. I wondered if others find injecting just as problematic as I do. It's a weekly...Reactions0reactionsComments3 repliesAxial Spondyloarthritis CopingTreatment
Advice please...Good Evening everyone, I would just like some advise. I went and saw an osteopath today due to having some minor mid back pain. It lasted around a week after...Reactions0reactionsComments12 replies
