Meeting Our Members: An Interview with Bianca...Anthony from AnkylosingSpondylitis.net recently had the pleasure of interviewing one of our talented community members, Bianca. Bianca submitted a poem in our community story section, titled 5AM: A Poem About...reactions10comments
Have you tried the low starch diet?...If so, what was its effect? And how flexible were/are you with the foods you eat?...reactions12repliesAlternative Treatment
Ask the nr-AxSpA Advocates: Diagnosis and Progression Worries...Editor's note: You can read Part 1 of this series here. The spondyloarthritis community has changed a lot these past few years as clinical diagnoses change, too. The common diagnosis...reactions1comment
Chronic Illness, Sharing Stories, and Vulnerability...A chronic illness community can be an essential wellness tool. It allows you to surround yourself with people who just get it. But it's not always easy to share your...reactionscomments
FeaturedHow do you cope with flares?...Axial spondyloarthritis can bring great pain and flares in moments without sudden warning. From the community we have heard from many people who bring different approaches to their health and...reactions8repliesFlare Management
Redefining the Balance of Rest and Productivity...We live in an age where people glorify productivity at an unhealthy volume. The “hustle” can’t stop and if you do, well, according to those who lead this kind of...reactions2comments
Tips for Parents with a Newborn...I'm sitting on my bed as I begin this article. Next to me is Keegan (my husband with AS) and my 8-week-old son, Elijah. We welcomed him in November 2020...reactions5comments
In Defense of Fun: Chronic Illness Management...I've been in a dark hole lately. The pain has gotten pretty intense and incredibly constant. Just when I think I'm doing ok, I go take a walk and my...reactions4comments
How I Knew Humira Wasn’t For Me...I was on Humira for 6 and a half months. I knew I should give it around 6 months to be completely sure if it was working for me or...reactions9comments
Trying to Find Answers After Being Told Different Things...I was diagnosed with rheumatoid arthritis in 2017. I've tried about 8 medications. I am now on Simponi Aria infusions. I started having severe back pain about 6 months ago...reactions2comments
Just Diagnosed with Ankylosing Spondylitis...I'm 64 and went to a chiropractor for the first time for pain in my mid-back that just would not go away. Since I was a new patient he did...reactions3comments
James Allen...James was previously an advocate on AxialSpondyloarthritis.net. James Allen is a health tech entrepreneur who has had ankylosing spondylitis since he was 17. After a severe flare-up in 2013, he...
Interstitial Cystitis and Ankylosing Spondylitis: Is There A Connection?...Two weeks ago, I was diagnosed with interstitial cystitis. You know what they say about autoimmune conditions...you can't just have one, and I can attest to that. I already suffer...reactions12comments
Sleep...How to get more sleep? Hi everyone I need tips on getting more/better sleep. I can only last about /20 minutes of sitting,standing or lying down before the lower back...reactions2replies
Understanding My Pain Helps Me Manage It...Even with a treatment that is effective and regular exercise, AxSpA reminds me that it is still here, and manifests itself through new pain. The condition is active, it changes...reactions4comments
Interviewing my Family Members About my AS...Being diagnosed with ankylosing spondylitis (AS) was major event in my life that not only affected me, but also the people in my life. My family has been by my...reactions3comments
Looking for new cure...I have had AxSpA for about 24 years. I am 73 and yes I have tried everything from stem cell therapy, opioids, exercise and physical therapy, stretches, spinal stimulator, massages...reactions4comments
Ways to Support Someone Living with a Chronic Illness...If you care for or live with someone diagnosed with a chronic illness, then you know some days are harder than others for us. We, unfortunately, don't get to pick...reactions4comments
Day in the Life: Flare Day...I’m going to walk you through what my day looks like when I’m flaring. As a note, I do have other conditions that affect my health, but I will mainly...reactionscomments
FeaturedAre you HLA-B27 positive or negative?...I think its important to highlight that not everyone with AS is HLA-B27 positive. Let me know if you are positive or negative!...reactions410replies
