How Being Chronically Ill Affects My Relationship...When I first met my fiancé, I had already been in remission for seven years. I explained to him early on about my illness, how it affected my life, and...Reactions0reactionsComments1 comments
How Does Your Experience Compare to That of Others Living with AS In America?...In 2020, 787 people living with ankylosing spondylitis took our online Spondyloarthritis In America Survey. We also got information from people living with: Each year, we learn so much about...Reactions0reactionsComments1 comments
Support Your Body Through The Winter...Winter: a challenging season for so many of us with chronic conditions like AxSpA. The short days and cold temperatures are felt deep down in the bones and joints. This...Reactions0reactionsComments4 comments
The Old Me Vs. The New Me...I feel like something a lot of us do is compare. We compare the things we used to do to the things we do now. We also compare what we...Reactions0reactionsComments0 comments
What My AxSpA Diet Looks Like...We hear a lot of conversations around well-being and diet, especially so in the chronic illness community. We often are told that diet will be the cure for AxSpA (or...Reactions0reactionsComments1 comments
When Asking "How Are You?" Does More Harm Than Good...Despite having lived with Keegan, my husband with AS, for over 8 years, I'm still learning a lot about how to communicate. I'm always one for checking in frequently throughout...Reactions0reactionsComments2 comments
How Do I Connect with Real People Living with AxSpA?...Navigating life with axial spondyloarthritis (AxSpA) can be scary or confusing, especially when going through it alone. After hearing those words “You have AxSpA/AS,” it is hard to know where...Reactions0reactionsComments0 comments
Getting Out of Bed with Spondyloarthritis, Part I...For years, my "good morning" attitude has been squashed by chronic illness. Enduring a restless night of pain associated with spondyloarthritis (SpA) makes it much more difficult for me to...Reactions0reactionsComments2 comments
A Confession: Things Are Hard...When I get dark, I get really dark — but I don’t think there’s anything wrong with confessing it. In fact, why keep it in — why let the engine...Reactions0reactionsComments5 comments
Beginner's Tips for Your Rheumatologist Visits...Over the past few years, my mom has dealt with a few chronic health conditions (she's actually in the process of determining if she has a form of AxSpA herself)...Reactions0reactionsComments2 comments
Self-Care with a Chronic Illness...I never truly partook in self-care until I became sick. Now, it’s probably one of the most important things I do for myself. Since I’ve had AS, I’ve had to...Reactions0reactionsComments2 comments
Sulfasalazine shortage?...I’m 36 years old and living with AS since 2012. I have been on NSAID most of the time and Sulfasalazine is added during critical flares with good results overtime...Reactions0reactionsComments1 replies
AxSpA Pain Management...First of all, managing pain is different for everyone. During my journey, I quickly learned there is a lot of trial and error when it comes to pain management. What...Reactions0reactionsComments3 comments
Chronic Fatigue and Canceling Plans...How do you manage feeling guilty for canceling plans because of chronic fatigue?...Reactions0reactionsComments3 replies
AxSpa and gut health...I am wondering about doing a diet to reset my gut health. It's been a trendy topic lately, I have met people with AxSpa who did a drastic diet to...Reactions0reactionsComments3 repliesDiet & Nutrition
Coping with Mental Health and Axial Spondyloarthritis: My Story...Everybody has experienced the toll a chronic illness can have on your mental health in one way or another. Being in constant pain, not being able to do the things...Reactions0reactionsComments4 comments
Living With Ankylosing Spondylitis: My Journey & Learnings...In 2015, after 3 years of back pain and medical procedures, I was diagnosed with ankylosing spondylitis. What a shock this was, and at the same time a relief, to...Reactions0reactionsComments15 comments
What Makes Me Happy Makes Me Stronger...One sentence resonates into my head when I wonder what I can do to be happy and cope better with AxSpa. It comes from a physiotherapist I worked with during...Reactions0reactionsComments0 comments
My Top Do’s and Don’ts For Flare Days...This morning, I woke up with a familiar, burning ache in my bones. In those first few hazy moments of consciousness, before I could even think a thought, my attention...Reactions0reactionsComments13 comments
Amplifying Black Advocate Voices: How Bias Has Affected My Patient Journey...Being diagnosed with an autoimmune condition like axial spondyloarthritis (AxSpA) can take years. Many people report their early symptoms were dismissed by doctors or they were misdiagnosed. This delays treatment...Reactions0reactionsComments0 comments