I Finally Found the Right Doctor—and Here's What I've Learned...One of the strangest lessons I have learned as a patient is that finding the right doctor is a lot like finding the right partner. Besides the obvious medical expertise...Reactions0reactionsComments1 comments
AS Gave Me Empathy...When I think about myself a few years ago, I think of long nights and parties. Struggling to find the energy, but with relative painlessness. When I think of my...Reactions0reactionsComments1 comments
Guess the Spondyloarthritis In America Statistics!...In 2020, 787 people living with radiographic axial spondyloarthritis or ankylosing spondylitis (AS), 285 people living with undifferentiated spondyloarthritis (uSpA), and 105 people living with non-radiographic axial spondyloarthritis (AxSpA) took...Reactions0reactionsComments0 comments
Guide To Getting Through Lockdown With AS...If you've been online recently you may have noticed that there’s currently some kind of pandemic going on. As most of us with ankylosing spondylitis are taking immunosuppressant medication to...Reactions0reactionsComments8 comments
Can anyone recommend comfortable mattresses and pillows for AS sufferers?...Perhaps it’s the nature of the beast(AS) but my mattress is extremely uncomfortable, though only about six years old, and I can’t seem to find a pillow that “works.” Any...Reactions0reactionsComments7 repliesSleep
Have you applied for or been denied social security or disability income?...If you are living with axial spondyloarthritis, you may be eligible for disability or social security. What has your experience been like applying for disability? Have you received denials? Who...Reactions0reactionsComments25 repliesWork & EmploymentInsurance & Disability
Ask the Non-Radiographic AxSpA Advocates: Self-Advocacy and Finding Community...As we learn more and more about axial spondyloarthritis (AxSpA) and ankylosing spondylitis (AS), we also learn that many people live with AxSpA symptoms, yet have no evidence on their...Reactions0reactionsComments1 comments
Using Instagram & Social Media to Find Community...Social media plays so many roles in people's lives. It can be a way to connect with others, it can be a way to find information, and sometimes we may...Reactions0reactionsComments2 comments
FeaturedHow do seasonal changes affect your AxSpA/AS?...Do changes in the weather or seasonal changes affect your AxSpA or AS? Are there particular seasons, types of weather situation, or climates that ease or exacerbate your symptoms?...Reactions0reactionsComments21 repliesWeatherFlare Management
How AS Helped Me Rebuild My Relationship with Myself...My 25th birthday just passed this month. Due to the pandemic and the state of my health, there wasn’t much to celebrate, but it also dawned on me that I...Reactions0reactionsComments3 comments
Highs and Lows of Prednisone...If there has been one thing I’ve learned along the way of my AxSpA journey, it's is that there generally are no easy ways out. Hardly any quick fixes, and...Reactions0reactionsComments1 comments
The Problem Is Not In My Head...Hi there, fellow AxSpa warriors! My name is Lenka, I’m 29 and I’m a girl from Slovakia. I have a story to tell. Brace yourself, grab a popcorn and a...Reactions0reactionsComments11 comments
Enthesitis, Heel Pain, and Ankylosing Spondylitis...Did you know that foot pain may be associated with having ankylosing spondylitis (AS)? Yeah, no kidding. Most of us know that AS is far more than a back condition. It often...Reactions0reactionsComments25 comments
I Feel Like I'm Waiting Not to be Sick...I often feel like I am going to wake up some morning and this was all a bad dream, a nightmare. Although I find it hard to remember my life...Reactions0reactionsComments1 comments
Has anyone tried the AIP diet?...I have a low-starch paleo approach, but am wondering if and how a stricter autoimmune protocol diet has helped others. Does alcohol and even sugar alcohols like erythritol bother you? ...Reactions0reactionsComments5 replies
Exercises that have helped keeping you flexible...Just looking for great exercises that have worked for folks to keep you flexible and easing pain...Reactions0reactionsComments2 repliesExercise
My Post-Diagnosis Mixed Bag of Emotions...I’ve recently hit the five year anniversary of my axial spondyloarthritis diagnosis. For some reason, this otherwise random milestone has me reflecting on that winter five years ago, all the...Reactions0reactionsComments1 comments
When "Just Be Positive" Goes Too Far...If you haven’t heard of the concept of toxic positivity or chronic positivity, maybe you’ve picked up on what it is without knowing it even has a name. When people...Reactions0reactionsComments1 comments
May is awareness month! What do you hope to learn more about during Spondyloarthritis Awareness Month?...With May being Spondyloarthritis Awareness Month, we're seeking to both build greater awareness about spondyloarthritis conditions and meet the needs and interests of our community users. What are you interested...Reactions0reactionsComments1 replies
Busting AxSpA Myths: Part 2...This is part 2 to my Axial Spondyloarthritis Myths, Part 1 post. If you can think of other myths and misunderstandings, I'd love to hear in the comments! There are...Reactions0reactionsComments0 comments
