Still awaiting official diagnosis ...Hi all! Currently struggling as my rheum seems reluctant to diagnose me.It all started about 3 years ago when I started to experience a dull ache in my left shoulder...reactions2repliesDiagnosis
Healing Is A Process...A few articles from my peers has made me reflect on the stage I am at with AxSpa. I have learned to live with it, manage some symptoms, cope with...reactions16comments
Biologics: To Take or Not to Take? That is the Question!...When I was first diagnosed, I asked: "Is there a cure?" I was told there was no cure, but advanced treatments that can manage and slow the progression of AS...reactions3comments
Going on My First Trip Post Diagnosis and Pandemic...Of course I was very excited to explore Mexico and the USA, but I had no idea how things were going to pan out. I had planned as much as...reactions2comments
Awaiting diagnosis, if caught early enough can I stop the spine fusing...Hi everyone. Just awaiting some scans to confirm/ rule out AS. rheumatologist has said she reckons spondyloarthritis but can't rule out AS AS I tested positive for hla-b27. I don't...reactions3replies
Do my symptoms seems similar to anyone else's?...Hi everyone, I'm brand new to this forum. I have been seeing a rheumatologist and I had a positive HLA-B27 result and have had a few intense episodes where my...reactions3repliesSymptomsExercise
My Tug of Spondyloarthritis War...Do you ever get the idea that your joints and you have a distinct difference of opinion about which way to go? This morning when I woke up and was...reactions2comments
An Invitation to an Event Full of Emotions...One thing I miss about the beginning of the pandemic is not having to worry about events. Not having to worry of how I will get myself there. I been...reactions4comments
Abdominal pain...Does your back hurt around to the front? Very low. It hurts in to the groin a lot but lately hurts also in to my abdomen. My PT says it...reactions11replies
Is It Time To Turn The Page?...Things have changed so much during my 21 years with arthritis. I was 24 when my symptoms began. My mother, her parents, and even my childhood dog were all alive...reactions1comment
Dr. Donica Baker...Donica Liu Baker, MD, FACR is a board-certified rheumatologist practicing the art of medicine in her beloved hometown of St. Louis, Missouri. With roots in the field of Kinesiology, she...
Using a Wheelchair in Public for the First Time...I’ve been using mobility aids for a while. My main two have been my rollator walker and my cane. If you’ve seen me on Instagram, I’m the girl with the...reactions7comments
Flying With AS: Tips and Tricks...I remember the good ol' days of flying to a new city or country and spending the entire flight in a mindset of enchantment and excitement. I’d order a glass...reactions10comments
Accessibility is Not For When You Can't...Accessibility has been a hot topic lately. People have been speaking out about inaccessible buildings, damaged wheelchairs, illegally parked cars in blue spaces, and other serious topics of interest. But...reactions16comments
My Failed Attempt at Reintroducing Massage...Getting a massage used to be one of my favorite things. Heading to the spa a few times a year felt like the ultimate way to indulge myself and escape...reactions4comments
Uveitis Helped Me Get a Diagnosis...I don’t know where I'm going to start. I used to be a very active person, I love going out and visiting different places. I am an interior designer and...reactions1comment
Spondy Pain, or just.. pain?...Just a tad about me -> I was diagnosed with Spondy in March (after a good long journey), and have been taking weekly anti-tnf injections (etanercept) since may. Through June...reactions1replySymptomsFlares Newly Diagnosed
Showering With Ankylosing Spondylitis...One of the things I struggle most with due to ankylosing spondylitis and fibromyalgia is taking a shower. What used to be a refreshing and calming part of my daily...reactions33comments
"But You Don't Look Sick"...If I had a dollar for every time I've been told "but you don't look sick" I would be rich by now! I mean, what does a sick person look...reactions21comments
Disease Progression ...Hey Everyone lately I have been feeling very unwell. I feel the illness more than ever. I feel extremely weak, very low energy all of the time, and the pain...reactions6replies
