Being Homebound and Coping with Loneliness...I’ve spent much of the last two years feeling an overwhelming sense of loneliness and isolation. Though the online community has helped me greatly, I still felt as though I...Reactions0reactionsComments2 comments
The Shadow of Ankylosing Spondylitis...One of the hardest aspects of my diagnosis was breaking the news to my mother. Having lived most of her adult life with ulcerative colitis, Mum knew firsthand the misery...Reactions0reactionsComments11 comments
Being Chronically Ill During a Pandemic: Part 2...I've previously spoken about the mental challenges of having AS and being immunosuppressed during the pandemic. Unfortunately, that was just the tip of the ice berg. Here are some more (of the many) aspects...Reactions0reactionsComments3 comments
Dealing With Sleep Shame...Ankylosing spondylitis has taught me something incredibly valuable — that one day will never be the same as the next. I used to think if I was on a streak...Reactions0reactionsComments2 comments
Being a Mom and Trying to Build a Business With AS...I've always been an active, outgoing person, so when I lost my job of 8 years, I became very depressed for a whole year. Then I realized there's still life...Reactions0reactionsComments6 comments
A Day In The Life of a Spondy Teacher...The start of a new school year is coming up quickly. Far more quickly than expected (wasn’t it just June?). And, that means getting back into a schedule. For many...Reactions0reactionsComments8 comments
To Flare or Not to Flare...I have been wondering whether I am the ONLY one here who doesn't have "flares" at all.. Originally as a psoriatic patient from 1986, things shifted to my back from...Reactions0reactionsComments5 repliesFlares Comorbidities Axial Spondyloarthritis
Just Let It Out...Sometimes, you just gotta let it out. That comes from a caregiver myself as well as seeing my husband go through so much frustration during diagnosis, treatment, and multiple surgeries...Reactions0reactionsComments2 comments
My 3-Day Vacay in LA With Spondyloarthritis...I recently returned from Los Angeles, a valid business trip, but my daughter and I also chose to see the sights as well. We flew in Sunday for Monday-morning business...Reactions0reactionsComments6 comments
Summer Travels With AS...Summer time for me always comes with a lot of traveling. Day trips, extended weekends trip, or a quick flight somewhere. Over the years living with AS, I have learned...Reactions0reactionsComments3 comments
Does anyone else have muscle spasms?...I was diagnosed 2 years ago with nr Axspa I am currently on Humira and it’s working well! I have has terrible muscle spasms in my thighs,shins,tops and sides of...Reactions0reactionsComments10 repliesSymptomsCommunity Support
AS and Asthma...I all, I am new here and would love to hear your take if this applies to anyone. I have been diagnosed for over a year and taking biologics since...Reactions0reactionsComments1 repliesComorbidities
How can I get diagnosed?...I have many of the symptoms but have not been diagnosed. I was diagnosed with Fibromyalgia in 2006, but none of my doctors seem to want to follow-up with me...Reactions0reactionsComments2 repliesHealthcare TeamTips & AdviceDiagnosis
LASIK...Has anyone here with AS ever had LASIK eye surgery? I would like the details. I am researching and considering it for myself....Reactions0reactionsComments0 replies
Dating With a Disability...A few years back, I wrote about my dating experiences while having AS. Guess who’s back for another article on dating! Since identifying as a disabled person, my experiences with...Reactions0reactionsComments13 comments
Keegan’s Piece of Advice to Anyone With AxSpa...Tonight was the first night our young family had a moment to enjoy dinner on our back porch. We finally set up the table and chairs ordered months go. It...Reactions0reactionsComments4 comments
Alternative/Natural/Holistic Treatments for AS ...Hey Friends, Just wondering if anyone has tried and found success (or at least relief) from natural or alternative therapies? I feel like allopathic medicine can only take me so...Reactions0reactionsComments19 repliesAlternative Treatment
How Heat Waves Affect Me...I don’t know where you live, but recently, we’ve had a massive heat wave where I live in Canada. The humidity has been into the 40s Celcius (100s Fahrenheit), and...Reactions0reactionsComments2 comments
Putting Your Health First...My health has never come first, I have always been a workaholic that would do anything to advance their studies and career. I worked multiple jobs through high school, full-time...Reactions0reactionsComments2 comments
Swimming Pools...Hi all - and hope you're all managing okay. I write this as I have just had a great meeting with my niece's new husband and wanted to let you...Reactions0reactionsComments7 comments