Expectations of Treatment: Rheumatology...Having managed axial spondyloarthritis (AxSpA) for the past few years, I have not always had great results when dealing with treating physicians. Nevertheless, 99% of the time I have been...reactions4comments
MRI - positive or negative...Hello, I am 47 year old female and was diagnosed with nr-axspa two years ago. I am hla-b27 pozitive and my MRI then showed inflammation. All this time my blood...reactions1reply
Treatment for AS...I was diagnosed with AS in 2012. I've been prescribed nsaids like arcoxia, vimovo and they dont work anymore for me. Then i was prescribed dmard called methotrexate, self injection...reactions5repliesTreatment
Differentiating Inflammatory Back Pain from Osteoarthritis...Inflammatory back pain refers to pain and stiffness that comes along with an autoimmune condition such as ankylosing spondylitis. Wear-and-tear osteoarthritis and degenerative disc disease usually occurs over time with...reactions13comments
Navigating the Online World of Axial Spondyloarthritis...Like so many other places online, the axial spondyloarthritis community has become an increasingly polarized place to inhabit in recent years. I was so thankful to discover an assortment of...reactions3comments
How to Navigate a Diagnosis Without a Good Support System...A diagnosis can change everything. Suddenly, we’re thrust into a new world of doctors' appointments, treatments, and lifestyle changes. And while having a sound support system, in general, is essential...reactions9comments
Flares...How long was your longest flare? Is it normal for it to be years long?...reactions22repliesFlare Management
Design Project to create a pillow for back/neck stiffness associated with AS...Hi, I am a part of a team a Swinburne University of Technology doing a design project with TOM Melbourne. Our project is to design a pillow for someone with...reactions4repliesAlternative TreatmentExerciseSleep
Feeling down ...I feel so down and have been feeling this way for days depression is bad for me when I feel like this it’s like there’s no end I just wish...reactions3repliesCoping
Discouraged ...I'm discouraged and don't know what to do. Im 38 year's old. Three years ago about a month after having a baby, I felt like I had been hit by...reactions4repliesDiagnosis
Does anyone with AS have knots or bumps on the back of your arm, from hand to elbow?...These knots or bumps hurt and itch, also they can break open! Have had this for years, NO ANSWERS from doctors?...reactions1replyDiagnosis
I Survived Hurricane Ian With AS...I moved to Orlando, Florida from NY about a year ago. I wanted a better environment for my children as well as for myself, the bitter cold weather of NY...reactions6comments
Still awaiting official diagnosis ...Hi all! Currently struggling as my rheum seems reluctant to diagnose me.It all started about 3 years ago when I started to experience a dull ache in my left shoulder...reactions2repliesDiagnosis
Healing Is A Process...A few articles from my peers has made me reflect on the stage I am at with AxSpa. I have learned to live with it, manage some symptoms, cope with...reactions16comments
Biologics: To Take or Not to Take? That is the Question!...When I was first diagnosed, I asked: "Is there a cure?" I was told there was no cure, but advanced treatments that can manage and slow the progression of AS...reactions3comments
Going on My First Trip Post Diagnosis and Pandemic...Of course I was very excited to explore Mexico and the USA, but I had no idea how things were going to pan out. I had planned as much as...reactions2comments
Awaiting diagnosis, if caught early enough can I stop the spine fusing...Hi everyone. Just awaiting some scans to confirm/ rule out AS. rheumatologist has said she reckons spondyloarthritis but can't rule out AS AS I tested positive for hla-b27. I don't...reactions3replies
Do my symptoms seems similar to anyone else's?...Hi everyone, I'm brand new to this forum. I have been seeing a rheumatologist and I had a positive HLA-B27 result and have had a few intense episodes where my...reactions3repliesExerciseSymptoms
My Tug of Spondyloarthritis War...Do you ever get the idea that your joints and you have a distinct difference of opinion about which way to go? This morning when I woke up and was...reactions2comments
