The Big Ride With Ankylosing Spondylitis...I did “the big ride of the season,” at least for me. It is the big bicycle ride in downtown Indianapolis; it is called the Indy N.I.T.E. Ride. It started...reactions9comments
The Waiting Game...This chapter of my journey has been a waiting game. Something I’m sure many of you know all too well. It’s like a “coming of age” thing as a chronically...reactions3comments
Another Sleepless Night...Another night waking up in tears. In tears from not knowing what to do because of the continuous excruciating pain that I have been feeling again for a few nights...reactions23comments
I Had a Busy Summer - How I’m Doing Now!...The summer of 2022 was a wild ride for me. It started with being sick for 8 straight weeks, with 2 hospital visits in the mix. After that, I was...reactions1comment
Grief and Chronic Illness...We most commonly associate the term grief with death. It’s used to describe the emotional state we experience when someone close to us passes away. In its simplest form, though...reactions3comments
Deciding to Have Children With Ankylosing Spondylitis...I was diagnosed with ankylosing spondylitis the year before I became pregnant. At the time, I was living in the Chicago area and had access to excellent medical care. I...reactions4comments
Expectations of Treatment: Rheumatology...Having managed axial spondyloarthritis (AxSpA) for the past few years, I have not always had great results when dealing with treating physicians. Nevertheless, 99% of the time I have been...reactions4comments
MRI - positive or negative...Hello, I am 47 year old female and was diagnosed with nr-axspa two years ago. I am hla-b27 pozitive and my MRI then showed inflammation. All this time my blood...reactions1reply
Treatment for AS...I was diagnosed with AS in 2012. I've been prescribed nsaids like arcoxia, vimovo and they dont work anymore for me. Then i was prescribed dmard called methotrexate, self injection...reactions5repliesTreatment
Differentiating Inflammatory Back Pain from Osteoarthritis...Inflammatory back pain refers to pain and stiffness that comes along with an autoimmune condition such as ankylosing spondylitis. Wear-and-tear osteoarthritis and degenerative disc disease usually occurs over time with...reactions9comments
Prepare To Share: Learning How to Tell AS Stories...We all have a story to tell. Some open people's eyes, excite the mind, or take your listeners to another world. On the other hand, some people’s stories are boring...reactions8comments
Navigating the Online World of Axial Spondyloarthritis...Like so many other places online, the axial spondyloarthritis community has become an increasingly polarized place to inhabit in recent years. I was so thankful to discover an assortment of...reactions3comments
How to Navigate a Diagnosis Without a Good Support System...A diagnosis can change everything. Suddenly, we’re thrust into a new world of doctors' appointments, treatments, and lifestyle changes. And while having a sound support system, in general, is essential...reactions9comments
Flares...How long was your longest flare? Is it normal for it to be years long?...reactions22repliesFlare Management
Design Project to create a pillow for back/neck stiffness associated with AS...Hi, I am a part of a team a Swinburne University of Technology doing a design project with TOM Melbourne. Our project is to design a pillow for someone with...reactions4repliesAlternative TreatmentExerciseSleep
Feeling down ...I feel so down and have been feeling this way for days depression is bad for me when I feel like this it’s like there’s no end I just wish...reactions3repliesCoping
Discouraged ...I'm discouraged and don't know what to do. Im 38 year's old. Three years ago about a month after having a baby, I felt like I had been hit by...reactions4repliesDiagnosis
Does anyone with AS have knots or bumps on the back of your arm, from hand to elbow?...These knots or bumps hurt and itch, also they can break open! Have had this for years, NO ANSWERS from doctors?...reactions1replyDiagnosis
I Survived Hurricane Ian With AS...I moved to Orlando, Florida from NY about a year ago. I wanted a better environment for my children as well as for myself, the bitter cold weather of NY...reactions6comments
