Flairup since Covid ...I had a bad case of covid starting January 5th. It has caused a flairup that still hasn't salted down. Anyone else experience this....reactions3repliesCoping
Muscle Spasms and Axial Spondyloarthritis...When you google AS there is a specific number of symptoms and a definition of what you should feel like. This is incorrect; it is different for everyone. For example, one girl I met...reactions38comments
Is Unattended Grief Hurting You?...The Swiss-American psychiatrist Elisabeth Kübler-Ross popularized the common understanding that humans process grief and loss in stages in her 1969 book On Death and Dying. Kübler-Ross revised her vision throughout her...reactionscomments
Wheelchairs at Amusement Parks...Hey y'all, So I am heading to an amusement park this weekend and I have a question. I've had Ankylosing Spondylitis for over 5 years now and have occasionally used...reactions11repliesTravelFatigue Tips & Advice
NeoCane and any cane really...I’m excited about the AS awareness month give-a-way. It did get me to thinking about how I had to learn to embrace assistive devices as a teenager. I’ve had arthritis...reactions1replyAwarenessMisunderstood Coping
Diana Castaldini...Diana Castaldini is a writer and passionate patient advocate living with ankylosing spondylitis and several other medical conditions. No stranger to chronic health issues, she was diagnosed with AS at...
A Lesson In Stability and Chronic Illness...I had the most transformative and bizarre and horrible month of March. When Shakespeare's soothsayer warns Julius Caesar, "Beware the Ides of March," the phrase was born and tumbled through...reactions1comment
Dreading When the World Goes Back to “Normal”...As the pandemic shows signs of finally drawing to a close, people are talking about what life will be like when things go back to “normal” — how strange it...reactionscomments
Fearful of Biologics...Hello all! I’ve just recently created a profile, and so happy I finally did. It’s been about a year since dx, currently on sulfasalazine and prn meloxicam. I’m 36 yrs...reactions6repliesTips & AdviceTreatmentCoping
It’s Hard to be This Awesome All the Time...Let me just tell you something...It’s hard to be this awesome all the time! I wake up awesome, I go to work awesome, I eat my meals, and go to...reactions1comment
Interview: How Coaching Could Change The Way You Live With AxSpa (Part 1)...As a duo of a Life Coach (Julie) and a Health Coach (Lana), we have decided to write a series of articles together. We want to share our stories with...reactionscomments
What Being Dynamically Disabled Means to Me...After 16 years of living with a dynamic disability, I am only just scraping the surface of learning what it means to me. Coping with pain is difficult for anyone...reactions3comments
Believe Chronically Ill People, Period...After the singer Jessie J was recently diagnosed with Ménière’s disease, which is marked by vertigo, dizziness, hearing loss, involuntary eye movement, and motion sickness, I saw plenty of people...reactions3comments
What Are Digital Therapeutics?...Digital therapeutics (DTx) first entered clinical discussions in the 1990s. The idea was that technology could improve healthcare access. It could help overcome barriers of location, time, and resources. This...reactionscomments
What Are Digital Therapeutics?...Digital therapeutics (DTx) first entered clinical discussions in the 1990s. The idea was that technology could improve healthcare access. It could help overcome barriers of location, time, and resources. This...reactionscomments
Strengthening Your Core Without Causing a Flare: Part Two...Learn the basics in Strengthening Your Core: Part 1 here! In part one, I focused on what makes up the core, and gentle ways to begin to engage these muscles...reactions1comment
My New Coping Strategy: Earn My Pain...I have developed a new coping strategy over the past few months. I am going to earn my pain. At first glance, it may not sound like the most sensible...reactions2comments
Humira...I was on Humira for about 3 mths and then developed PCP Pneumonia and had to stop. I then went onto Corsentyx which made no difference. About 2 and half...reactions2replies
Knee pain while sleeping ...Anyone have knee pain while sleeping? I have been suffering with red hot pain in my left knee every night for a few months now. When I finally fall asleep...reactions5repliesPainsomnia
Moving With Axial Spondyloarthritis...My family and I purchased a home this winter, and while a part of me was extremely excited and anxious to make this happen smoothly, I knew with where I...reactions1comment
