I Took a Reset Trip...Before I get into the details of my trip, I just want to say I went on this reset trip back in November, when the virus wasn’t spreading as bad...reactions2comments
10 Things You Shouldn’t Say to Someone With a Chronic Illness...I am sure that you, as someone suffering from one (or more) of the above, have encountered people who just don’t get it. First of all, I feel the urge...reactions6comments
Young and Disabled...I first began showing symptoms of Ankylosing Spondylitis when I was 16 years old. I was officially diagnosed with AS three years later. While the diagnosis offered relief, it started...reactions2comments
How I Felt After My First COVID Vaccine...I received my vaccine on a Wednesday, and by the evening, I was already feeling sick. I had a headache, fever, and hot and cold sweats. Overall, I felt weak...reactions5comments
When to test B27...Hi. I have inflammatory-type lower back pain going back many many years, which recently became much more severe. I am on Humira for psoriatic arthritis but it seems to have...reactions5repliesDiagnosis
Mental Exhaustion Is A Problem, Too...One of the things that we talk about the least when it comes to ankylosing spondylitis is the sheer mental exhaustion. Obviously, fatigue is all-encompassing, which means it takes over...reactions1comment
Ashley Nemeth...Ashley was previously a health leader on AxialSpondyloarthritis.net. Ashley Nemeth is a blind mother of 3 ages 14, 15, & 18. She was diagnosed with ankylosing spondylitis when she lost...
Auldyn and Keegan Vlog: Family Trips During a Flare-Up...Auldyn and Keegan are no strangers to the difficulties of traveling with ankylosing spondylitis. Traveling can get even more complicated when you're with extended family members who may not understand...reactionscomments
Digestive System and Axial Spondyloarthritis...Sometimes I feel like the number of ways AxSpA can affect my body are endless. It’s extremely discouraging. But as a systemic disease, the truth of the matter is that...reactions15comments
Highly Sensitive Person and chronic illness...Has anyone heard about the Highly Sensitive Person and how they deal with ankylosing spondylitis? I was classified as a Highly Sensitive Person while investigating why small degenerations caused by...reactions14repliesMental HealthAxial Spondyloarthritis
Why I No Longer Put On a Brave Face With My Doctors...A lifelong people-pleaser, I've always tended to be polite and agreeable in an effort to make others comfortable. When a problem arises, my instinct is to figure things out for...reactions5comments
Sharing Intimate Moments: Why We Began Posting Injection Videos...Sitting with injection needles, alcohol cleansing wipes, and cute band-aids… Taking deep breaths and hyping yourself up to prick your skin and let your medication infiltrate your body… Dumping the...reactions4comments
Life Before And After Fusion...My husband, Keegan, walked with a limp for a long time before he was diagnosed with AxSpa. I remember one night he dragged his leg from where our car was...reactions2comments
We're Sorry...Recently, we featured a giveaway promotion of a cane in our weekly newsletter. One of our members brought to our attention that the subject line of our newsletter using a...reactionscomments
Flairup since Covid ...I had a bad case of covid starting January 5th. It has caused a flairup that still hasn't salted down. Anyone else experience this....reactions3repliesCoping
Muscle Spasms and Axial Spondyloarthritis...When you google AS there is a specific number of symptoms and a definition of what you should feel like. This is incorrect; it is different for everyone. For example, one girl I met...reactions38comments
Is Unattended Grief Hurting You?...The Swiss-American psychiatrist Elisabeth Kübler-Ross popularized the common understanding that humans process grief and loss in stages in her 1969 book On Death and Dying. Kübler-Ross revised her vision throughout her...reactionscomments
Wheelchairs at Amusement Parks...Hey y'all, So I am heading to an amusement park this weekend and I have a question. I've had Ankylosing Spondylitis for over 5 years now and have occasionally used...reactions11repliesTravelFatigue Tips & Advice
NeoCane and any cane really...I’m excited about the AS awareness month give-a-way. It did get me to thinking about how I had to learn to embrace assistive devices as a teenager. I’ve had arthritis...reactions1replyAwarenessMisunderstood Coping
Diana Castaldini...Diana Castaldini is a writer and passionate patient advocate living with ankylosing spondylitis and several other medical conditions. No stranger to chronic health issues, she was diagnosed with AS at...
