Rethinking Arthritis Fatigue...My sister Danica* has a next-level guest room. If she ever decided to quit working in [redacted] Danica would conquer the hospitality business. An alchemist, she makes every room in...Reactions0reactionsComments0 comments
What's in your AxSpA flare toolkit? Share a photo with the community!...Everyone copes with AxSpA and symptom flare-ups different. Do you have a cozy cave, or place in your home where you go to feel better? What items or activities can...Reactions0reactionsComments12 repliesCopingFlare Management
Rest and Back Pain...Getting a good night's rest is something many of us in this community struggle with. I too have had and still have my problems with that. Due to the lower...Reactions0reactionsComments2 comments
The Question that Keeps Me Up at Night...There's a question that keeps me up at night. Could my husband, Keegan, be suffering from more than just AS? What if his fatigue is chronic fatigue syndrome? What if...Reactions0reactionsComments5 comments
Coming Back Home to Myself...I am making more space for things that are good for me. I am temporarily separating myself from the ideology of productivity so that I can redefine what it means...Reactions0reactionsComments1 comments
I Miss Having a Choice...Every morning I wake up immediately feeling the fire behind my eyes and think to myself, “Time to do the same thing as yesterday…” The only motivation for getting out...Reactions0reactionsComments3 comments
7 Items That Help with my AxSpA...With a chronic illness that is largely out of my control, I rely on certain items to give me a sense of control and to be as comfortable as possible...Reactions0reactionsComments1 comments
My One Year Painiversary...As my one-year painiversary is coming up, I thought writing an article about this topic was important. My last pain-free day was the 13th of April 2020. I did not...Reactions0reactionsComments1 comments
The Therapeutic Effects of Sharing Your AxSpA Story...When I was first diagnosed with ankylosing spondylitis, a form of axial spondyloarthritis, I wasn’t sure how to talk about my experience. Honestly, I didn’t want to think about what...Reactions0reactionsComments1 comments
My Symptoms May Be Invisible, But I am Not...A lot of my symptoms are very much invisible. When I was first diagnosed, I felt like I was invisible. Within the past year and a half, I’ve made it...Reactions0reactionsComments0 comments
Just another bad day...Friday morning, 6 am, the voice of my husband trying to wake up the kids for school. I tried to open my eyes wide, but I was so extremely tired...Reactions0reactionsComments5 comments
You are just a monster ... I am not scared!...On the good days (still in pain but manageable), I feel like I am on top of the world. I am so thankful for those days when they come along...Reactions0reactionsComments5 comments
Q and A About My Disease, Ankylosing Spondylitis...A: Haha, it's pronounced: AN-KUH-LOH-SING SPON-DILL-EYE-TIS. It's a degenerative inflammatory disease that is mediated by the immune system and primarily affects my spine, which means the disease is inflammatory in...Reactions0reactionsComments2 comments
What Fatigue Really Feels Like...The concept of a "rest day" never really crossed my mind until I found myself experiencing serious ankylosing spondylitis fatigue. About a year before my diagnosis is when I started...Reactions0reactionsComments1 comments
Enthesitis and Ankylosing Spondylitis: Part 2..."Centipede to the physician: Doc, when my feet hurt, I hurt all over." In Part 1 of this discussion, I talked about how foot pain can be linked to ankylosing...Reactions0reactionsComments7 comments
What yoga poses or stretches have helped you move comfortably? Share a photo with the community! ...Stretching helps to loosen stiff muscles and joins and may even help ease some pain from AxSpA. What stretches or poses have helped you feel better? Share a photo with...Reactions0reactionsComments11 repliesExerciseCoping
Pets of AxialSpondyloarthritis.net...Let's see your pets! Kicking things off, here's my buddy Rockko. ...Reactions0reactionsComments5 repliesCoping
How To Keep Your Head Up Through The Diagnosis Process...We all have different experiences with our diagnoses. Some of us have to wait several years, see countless doctors, and do numerous different tests before getting some answers. Others are...Reactions0reactionsComments0 comments
I Developed Peripheral Spondyloarthritis; Here's What That Means...There are two main categories of spondyloarthritis: axial spondyloarthritis and peripheral spondyloarthritis. Chances are, if you are reading this, you or someone you know falls under the axial spondyloarthritis category...Reactions0reactionsComments21 comments
Anyone Doing Remicade Infusions ...Hey All ! Hope everyone is feeling well and staying safe ? Rheumatologist has once again changed meds. I will be starting Remicade IV infusions within a week or so. ...Reactions0reactionsComments4 repliesAlternative TreatmentTreatment