Living With Axial Spondyloarthritis & Fibromyalgia...When you live with axial spondyloarthritis, the pain is constant. Not to mention the brain fog, extreme fatigue, stiffness, trouble sleeping, and more. Many people who live with AxSpA also...Reactions0reactionsComments0 comments
Describing The Worst Days With Chronic Pain...In September of 2019, Health Union (the parent company of AxialSpondyloarthritis.net) partnered with the US Pain Foundation for our first ever Chronic Pain in America survey to ask members of...Reactions0reactionsComments0 comments
Infographic: Pain Management Treatment and Care...In September of 2019, Health Union (the parent company of axialspondyloarthritis.net) partnered with the US Pain Foundation for our first ever Chronic Pain in America survey to ask members of...Reactions0reactionsComments0 comments
HLA-B27 Positive, But My Doc Is Still Unsure?...Need some advice... For a long time now, I have had all the symptoms of AS. When I asked my dr to test me for hla-b27, she said I already...Reactions0reactionsComments3 replies
Alternating Hip Pain: Is There Any Immediate Relief?...I am currently on sulfasalazine only. My pain started on the left side and miraculously vanished a day. The next day pain started on the right side which lasted for...Reactions0reactionsComments1 replies
Three Months Of CBD For Chronic Pain...I decided to start using CBD (cannabidiol, not to be confused with marijuana!) to manage my anxiety and mental health issues, which can be exacerbated by axial spondyloarthritis, and my...Reactions0reactionsComments5 comments
Sal Marx...Sal was previously on an advocate on AxialSpondyloarthritis.net. Marx is an artist who works to illuminate invisible disease experiences and disrupt the medical industrial complex. Sal was born in Seattle...
Is it safe taking Voltaren daily?...Hi Everyone! I am very new to AS. Had few flares two years ago and stopped until last week. Been having the unbearable flares every night for the last four...Reactions0reactionsComments1 replies
Specialist Access in Medically Underserved Communities...Looking back, I now know how fortunate I’ve been when it comes to healthcare access. When I was younger, I didn’t spend one minute worrying about access to healthcare -...Reactions0reactionsComments1 comments
FeaturedWhat have you learned since your AxSpA diagnosis?...Our community advocates have reflected on diagnosis anniversaries and shared how they celebrate "painiversaries." What have you learned about yourself and condition management since your AxSpA diagnosis?...Reactions0reactionsComments13 replies
It All Started When I Was Pregnant...Good afternoon! So...hmmmm, my story. Wherever do I begin? My current pain management Dr states that, most likely, this all started when I was pregnant back in 1996 with my...Reactions0reactionsComments2 comments
Medication Frustration...It’s a hurry up and wait process. From the first doctor’s visit through to now, it has been a journey of constant waiting. It starts with a doctor’s visit, then...Reactions0reactionsComments2 comments
What Happened to my Heat Tolerance?...I used to absolutely love summer. I would tan, go out for day trips a lot, and spend days on the beach. Summer is still my favorite season, but I’ve...Reactions0reactionsComments19 comments
Anti-Inflammatory Banana Bread for Spondyloarthritis...I have a habit of buying bananas at the grocery store thinking I'll eat them up by midweek. As the days whisk by, they turn from slightly green to bright...Reactions0reactionsComments5 comments
Does Ankylosing Spondylitis Cause Nausea?...There are many unwelcomed symptoms of ankylosing spondylitis (AS). The fatigue, brain fog, and pain are enough to cope with. But many people living with AS also live with digestive...Reactions0reactionsComments5 comments
What Do You Know About Rheumatic Diseases?...What is a rheumatic disease? A rheumatic disease is an autoimmune and inflammatory condition that causes the body’s immune system to attack a person’s joints, muscles, bones, and organs. There...Reactions0reactionsComments0 comments
How I Eased Myself Back Into Fitness After My AS Diagnosis...For the past few weeks, I have been working my way back into my fitness routine. Before the onset of my AS, I loved pushing my body to its limits...Reactions0reactionsComments8 comments
Using Assistive Devices...Axial spondyloarthritis can cause pain, swelling, and stiffness in the back and hips along with other joints such as the knees, shoulder, and feet. The disease does not develop the...Reactions0reactionsComments0 comments
