A Story of Hope - You Are Not Alone."One day you will tell your story of how you overcame what you went through and will become part of someone else's survival guide." -Brene Brown I grew up extremely...Reactions0reactionsComments6 comments
One thing after another…I’m a 60-year-old female who has lived with non-radiographic axial spondyloarthritis since my late teens. It started with SI joint pain, hip bursitis and enthesopathy, IBS, and fatigue. Later, a...Reactions0reactionsComments6 comments
PIP HellI tried 3x times to get PIP. It's pure hell, embarrassing, and demeaning from having a solicitor with me who went back in the room and gave them all hell...Reactions0reactionsComments8 comments
Preparation for Spine SurgeryWe know in life, there is a prepping stage for all things. The same holds true for surgery. I am in that preparation phase now. This is what it looks...Reactions0reactionsComments6 comments
It Never Ends !!!!I have HLAB 27 POSITIVE and was diagnosed with ankylosing spondylitis. I have 4 rods and screws, this May I had a piece of bone removed from my spine, which...Reactions0reactionsComments2 comments
The Day My Life Changed in 3 HoursOn the 3rd of June 2016, I was having my 2 days off. I went to the beach and that same evening we set off for a wine tasting event...Reactions0reactionsComments3 comments
Recovered From This CurseI'm Neel Gala, and I got AS in October 2021. I had a worse experience with AS. I changed 13 different doctors and ways of treatment. I suffered up to...Reactions0reactionsComments2 comments
BewareI've taken a number of falls, but none ever seriously. But, I am unable to lift myself from the floor. Each time my wife helps me and I use my...Reactions0reactionsComments1 comments
Trouble Sleeping With Ankylosing SpondylitisI find diet, a lot of mild exercises and mindset are my 3 greatest allies in managing AS. The only problem is sleeping more than 4 hrs. Who has any...Reactions0reactionsComments14 comments
Falling, again!To my sisters and brothers who comprise the warriors here, I thought I would share my latest story. I have had ankylosing spondylitis and rheumatoid arthritis for 12 years. I...Reactions0reactionsComments12 comments
Forgive Yourself For Not Being HealthyFor AS Community, Five months ago, I quit my full-time job of three years managing a compliance team of technical writers at an adult educational institute. In all honesty, I...Reactions0reactionsComments9 comments
AS and RA Won't WinI was a child with birth defects. My mom and dad chose me over the doctor's recommendation to let the state take over. 1962 was a different time. I finally...Reactions0reactionsComments2 comments
Availability of TNF Medications After 65I was diagnosed almost 15 years ago with AS. After I finished with my denial and trips to the ER, I began treatment with Humira and methotrexate for repeated uveitis...Reactions0reactionsComments5 comments
MRI - Positive or NegativeI am a 47-year-old female who was diagnosed with non-radiographic axial spondyloarthritis two years ago. I am HLA-B27 positive, and my MRI shows inflammation. All this time my blood inflammation...Reactions0reactionsComments4 comments
Uveitis Helped Me Get a DiagnosisI don’t know where I'm going to start. I used to be a very active person, I love going out and visiting different places. I am an interior designer and...Reactions0reactionsComments1 comments
It Took 7 Years to Get a DiagnosisDiagnosis: hello there. I'm still flaring. Started on the 10th of July. 10 days after my third Pfizer vaccine. I am having horrible gut pains which I don't remember having...Reactions0reactionsComments6 comments
Finding a Way to MoveOver the years, as job and life became more sedentary, it got more difficult to move, and flare ups with my back and other joints became the norm. With my...Reactions0reactionsComments1 comments
UndefinedHello, fellow pain partners! I was diagnosed with AS just about four years ago. I’ve been dealing with severe pain since 2008. I went to so many different Drs trying...Reactions0reactionsComments2 comments
Not Liking This Journey…but Here We Go Again!I am 47 years old and widowed at 40. I have three amazing boys and have been having symptoms since I was young. My uncle was a surgeon and took...Reactions0reactionsComments2 comments
Fatigue and SadnessLately I've felt so fatigued (my fault, I push myself to be "normal"), and then the sadness comes. Does anyone else cry for no apparent reason? I do. Almost every...Reactions0reactionsComments6 comments