Stories

Hello, fellow pain partners! I was diagnosed with AS just about four years ago. I’ve been dealing with severe pain since 2008. I went to so many different Drs trying...

I am 47 years old and widowed at 40. I have three amazing boys and have been having symptoms since I was young. My uncle was a surgeon and took...

Lately I've felt so fatigued (my fault, I push myself to be "normal"), and then the sadness comes. Does anyone else cry for no apparent reason? I do. Almost every...

My health has never come first, I have always been a workaholic that would do anything to advance their studies and career. I worked multiple jobs through high school, full-time...

Hi all - and hope you're all managing okay. I write this as I have just had a great meeting with my niece's new husband and wanted to let you...

I am 41 years old and I was just diagnosed a year ago. My rheumatologist says I am at stage 3 right now. I always knew that there was something...

I don't know, I must be the only one writing about AS from Bangladesh. My AS symptoms began in October 2021. It hasn't even been a year, but God, I...

I posted awhile back and want to give an update. So I've been busy with work and dr appointments. My AS has attacked my left eye since 2015. I lost...

This is mentally killing me. Going on disability was hard enough, that alone makes me feel so useless. I thank god everyday for my amazing wife who understands me and...

This is about my ankylosing spondylitis and uveitis and how some days I move my hands, (when I CAN, lol) to wax off the yucky stuff in my eyes, while...

Hi all, I have a functional disorder that causes me to have a lot of different illnesses. I’ve got fibromyalgia, and because of this, I can’t wee anymore. I have...

I was recently diagnosed with AS. My rheumatologist first started me on Plaquenil even though I told her my last RA doctor gave me Plaquenil, and it made me so...

Hi, my name is Emily and I am going through the process of getting a care plan for my AS. I’m new to having AS and some of the stuff...

I was diagnosed with AS, PsA and RA definitely and finally in 2013. I had repeated bouts of orbital myositis in 2009 and was on a high dose of prednisone...

I'm new but have read others' stories. First of all, I'm sorry you are dealing with AS and more. I was diagnosed 12 years ago, but I've been dealing with...

This morning I woke up alone, after going to bed alone, after taking my medication alone, after eating alone, after seeing my rheumatologist alone, after hobbling to the clinic to...

I have had AS since I was 30 years old. It has been 40 years already! My pain mainly manifested in my lower back (sacroiliac). I was living in a...

Hello to all. This group has been so helpful in pulling me out of any pity parties I have for myself. I get frustrated with what I can no longer...

I know better... Really... I do. But I got so much done. Animals fed, garage/workshop rearranged, bicycles fixed, lumber cart built and loaded... The lumber cart was almost finished when...

I guess I am the first from India to write my story on this forum. I hope all the AS warriors are doing well, and if not, I hope everything...