Stories

This is mentally killing me. Going on disability was hard enough, that alone makes me feel so useless. I thank god everyday for my amazing wife who understands me and...

This is about my ankylosing spondylitis and uveitis and how some days I move my hands, (when I CAN, lol) to wax off the yucky stuff in my eyes, while...

Hi all, I have a functional disorder that causes me to have a lot of different illnesses. I’ve got fibromyalgia, and because of this, I can’t wee anymore. I have...

I was recently diagnosed with AS. My rheumatologist first started me on Plaquenil even though I told her my last RA doctor gave me Plaquenil, and it made me so...

Hi, my name is Emily and I am going through the process of getting a care plan for my AS. I’m new to having AS and some of the stuff...

I was diagnosed with AS, PsA and RA definitely and finally in 2013. I had repeated bouts of orbital myositis in 2009 and was on a high dose of prednisone...

I'm new but have read others' stories. First of all, I'm sorry you are dealing with AS and more. I was diagnosed 12 years ago, but I've been dealing with...

This morning I woke up alone, after going to bed alone, after taking my medication alone, after eating alone, after seeing my rheumatologist alone, after hobbling to the clinic to...

I have had AS since I was 30 years old. It has been 40 years already! My pain mainly manifested in my lower back (sacroiliac). I was living in a...

Hello to all. This group has been so helpful in pulling me out of any pity parties I have for myself. I get frustrated with what I can no longer...

I know better... Really... I do. But I got so much done. Animals fed, garage/workshop rearranged, bicycles fixed, lumber cart built and loaded... The lumber cart was almost finished when...

I guess I am the first one from India to write my story on this forum. Hope all the AS warriors are doing well and if not, I hope that...

After reading what others have shared, the stories of their struggles, and where they are today, I decided that it is my duty, no, my honor to share our story...

Since getting diagnosed with ankylosing spondylitis (AS), I've learned that it is better to undershoot than overshoot. Living in a capitalistic society, we're encouraged to push ourselves beyond our limits...

There have been, are, and will be days when the pain feels absolutely bone-shattering and soul-crushing. Trying to control the pain is like being in quicksand - the more one...

I've heard a few people say that their auto immune disease got triggered by an injury. That is exactly how mine reared its ugly head. I played soccer for sixteen...

I sit here thinking as I’m about to put pen to paper so to speak. It’s hard to believe I was diagnosed over 35 years ago. I stop shaking my...

I have had back pain for many years. What started as a friend poking me and saying, "stand up straight", has ended with me being one of the people that...

Until yesterday, I’d gotten a bit cocky about my AS being so much better while taking Enbrel. I’d had a semi-productive morning (coffee, animals fed, kitchen straightened up, new wooden...

Hi, as I am fairly new to the group I thought I would share my story as to when I got diagnosed with AS. So here goes! I was 15...