The Never Ending FlareI'm in another flare (again). How long will this one last? The days have passed so fast. I forget again what normal feels like. My days are high in pain...Reactions0reactionsComments3 comments
My Post-Surgery Flare Up Without BiologicsI got my breast reduction surgery in early July of this year. It was my first surgery and I got through it. Add it to my list of accomplishments--I'm so...Reactions0reactionsComments5 comments
Will a Breast Reduction Help My AxSpa Symptoms?I was sitting my rheumatologist's office, when he mentioned "I think you should look into a breast reduction." This never crossed my mind. I was so angry at my doctor...Reactions0reactionsComments5 comments
Reflections After Three Years of Being on CosentyxWe are going three years on Cosentyx. Cosentyx is the fourth biologic that I have been on, and also the one I've been on for the longest time. Before Cosentyx...Reactions0reactionsComments6 comments
Ask This to Your Loved One With AxSpa"How are you feeling today?" "How are you really feeling today?" The question I wish someone would reach out and ask me more often. So many of us with this...Reactions0reactionsComments1 comments
Living Well With AxSpa: My Best TipsI've been living with this chronic illness now for many years. I believe it started when I was young. Going through high pain days on a daily basis and not...Reactions0reactionsComments1 comments
My Flare Kit for Axial SpondyloarthritisWhen you are in a flare, it can be hard to think of anything positive. Flares bring me into a depression since I don't always know how long my flare...Reactions0reactionsComments1 comments
The Combo of Getting Sick and Having AxSpaWhen I try to tell my friends and family that I'm vulnerable to getting sick, they act like I'm whining and complaining again. Sometimes they say: "Everyone gets sick in...Reactions0reactionsComments2 comments
Another Year Older With AxSpaAnother year has passed and I made it through. Turning 36 years old, another year of AxSpa by my side. I thought by now things would have been a bit...Reactions0reactionsComments4 comments
The Sleepless Nights ContinueThe sleepless nights have been going on now for a couple weeks again. They just keep getting harder and harder to get through. The sleepless nights have been not only...Reactions0reactionsComments15 comments
Sleepless Nights Continue ContinuouslySleepless nights are something I been writing a lot about. It's part of the biggest struggle I've been having. I know I am not alone on this one. As going...Reactions0reactionsComments3 comments
Let's Find Some Positivity Out of This Chronic IllnessHaving a chronic illness of any sort is hard. It's a hard pill to swallow. Receiving a diagnosis or having to live with a chronic illness means this will be...Reactions0reactionsComments2 comments
Birthday Planning the AxSpa WayMy daughter and husband's birthdays are a day apart. My daughter was born on February the 10th, and my husband was born on February the 11th. This year, both of their...Reactions0reactionsComments5 comments
Battling the Thoughts in My HeadHave you ever had thoughts you just don’t want to have, and wish they would leave you alone? Have you ever had thoughts that race one after the other, making...Reactions0reactionsComments4 comments
Signs Throughout My Life That It Was More Than Just TirednessGrowing up, I went through stages of depression, anxiety, and always not feeling well for long periods of time. I thought it was maybe just my body going through another...Reactions0reactionsComments1 comments
Right Now, I Need to Put Me FirstI know today you are having a hard time. Last night, you went to bed thinking tomorrow would be a better day. You went to bed thinking tomorrow would be...Reactions0reactionsComments1 comments
Reflecting and Welcoming a New YearA Happy New Year! Wishing everyone a happy New Year ahead for all of us. Wishing you all happiness and nothing but the best for our health. Reflecting on the...Reactions0reactionsComments4 comments
An Invitation to an Event Full of EmotionsOne thing I miss about the beginning of the pandemic is not having to worry about events. Not having to worry of how I will get myself there. I been...Reactions0reactionsComments4 comments
It's Been One Year on CosentyxIt's been one year on Cosentyx. How does time just fly by? It feels like yesterday that I got my diagnosis with AxSpa--but it almost been 3 years. Cosentyx has...Reactions0reactionsComments6 comments
Finally Got 2 Weeks of HeavenThese past 2 weeks felt like heaven. For anyone suffering from a chronic illness, it's a wish come true to be able to get good days. I was one of...Reactions0reactionsComments3 comments
