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Read conversations, start a discussion, and connect with others about Axial Spondyloarthritis.

How do you describe your pain (or: is this level of pain possible?) 😭

Hi, folks! I'm new to this community, and I searched for an discussion like this one and I didn't find it, so I'm trying to start one 😊 First of...

Bracing

My back is starting to curve more than I expected. In one of the articles I read, using a brace may help slow down progression of the shoulders. Has anyone...

Symptoms

I've recently been diagnosed with axial spondylitis after a few years of hip pain that has now progressed to other areas of my body. Last year I started having eye...

Shoulder Pain

Has anyone had intense shoulder pain with AS? I’ve had a tender clavicle joint and shoulder pain that has lasted 3 months…shoulder and neck MRIs are normal. It seems to...

Chilling Effects: AS/AxSpa and Cold Weather Discussions

As the weather turns colder, many people living with AS/AxSpa experience unique challenges and considerations. Cold weather can have a significant impact on our daily lives and overall well-being. How...

When it’s cold?

I try my hardest to keep warm. I have good days and bad days. Sometimes I don’t know what to do to keep warm. I hate to disturb my partner...

Dismissive doctors

Has anyone else tried to explain the severity of symptoms like severe fatigue and pain to their doctor, and were having trouble being able to work, and were met with...

How do you deal with heel pain?

I was wondering how y’all deal with heel pain? Two months ago I had a pulmonary embolism and I am now on blood thinners and can no longer take NSAIDs...

AxSpa symptoms and menstrual cycle

I have started to have pain in my left hip sometimes since beginning of Summer. It will be on and off, and worse at night or after the night, I...

Are you feeling fatigued? How do you manage it?

Unfortunately, fatigue is a part of living with AS. Learning ways to manage your fatigue can be a game-changer and help you live a happier, more rested life....

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