4 Questions To Jumpstart Your Self-Care...You couldn’t pay me to relive 2021. It was the year that just wouldn’t quit. The worst parts were losing a dear friend by suicide, while my family and I...Reactions0reactionsComments2 comments
Do you have periods of random remission that are unexplained?...I’ve been experiencing very low disease activity despite being somewhat stressed, traveling a lot, and not always eating the best. It’s so strange. And maybe I’m going to be jinxing...Reactions0reactionsComments2 repliesFlare ManagementSymptomsDiet & Nutrition
AS Diagnosis revoked...?!...Hello friends, Been I while since I've been on here but I need some outside perspectives! I was diagnosed with AS about a year ago. At the time I was...Reactions0reactionsComments9 repliesDiagnosis
Housework Hacks With Ankylosing Spondylitis...One of the things I really dislike when I’m in an AxSpa flare is how messy my house can get. I’m definitely one of those “tidy house, tidy mind” people...Reactions0reactionsComments12 comments
Bursts of Denial: When AS Hits Suddenly...The thing about ankylosing spondylitis, like many immune-mediated diseases, is that no matter how much we've figured out how to manage/control/collaborate with/understand it, it is still a disease with a...Reactions0reactionsComments10 comments
Managing Painsomnia...How do you manage the times when you wake up in the middle of the night and your bones, muscles, and brain are all screaming in pain? Let's discuss what...Reactions0reactionsComments1 repliesCopingAxial Spondyloarthritis Painsomnia
AS vs Depression vs Menopause...Is anyone else having trouble untangling which symptoms are which? I constantly struggle trying to figure out why I am feeling what I am feeling. The low back and hip...Reactions0reactionsComments3 repliesAlternative TreatmentMedical MarijuanaMental Health
3 Tips for Managing Anxiety If You Have AS...It's no secret that living with a chronic illness can be challenging—mentally and emotionally, as well as physically. I remember when I was first diagnosed, there was the mental stress...Reactions0reactionsComments12 comments
My AxSpA Assisters...I have read some wonderful posts on here about items our community members use to help them cope with their AxSpA symptoms. They inspired me to share a trio of...Reactions0reactionsComments2 comments
Switching Biologics (Again)...I have once again switched my biologic medication! I’ve been on Inflectra, Humira, Cosentyx, and now, drumroll, please...Remicade! Remicade is chemically very similar to Inflectra, which is actually a biosimilar...Reactions0reactionsComments9 comments
3 Types of Physical Activity to Consider With AxSpa...We all know that physical activity is essential for our health. Being physically active can support our brain health, strengthen our bones, and improve our ability to do everyday activities...Reactions0reactionsComments7 comments
Biologics and other treatments ...Hi. I am fairly recently diagnosed with AxSpa and was wondering if people on here know more about treatments than the tiny amount that I do. My Rheumatologist ( that...Reactions0reactionsComments2 repliesTreatmentSide EffectsNewly Diagnosed
Will you take our In America survey and help others understand the true impact of AS?...Receiving a diagnosis of AS can be scary. Telling friends and family can be really difficult. It's more than JUST back pain. By taking this anonymous survey, you can help...Reactions0reactionsComments1 repliesAxial Spondyloarthritis Awareness
Sinus and TMJ issues with AxSpA...As the wet cold has really rolled in this season, I find that my sinuses and TMJ are giving me more issues than most winters. The headaches and facial pain...Reactions0reactionsComments3 repliesComorbiditiesSymptomsVenting
Will you take our In America survey and help others understand the true impact of AxSpA?...We are conducting a survey to better understand the patient experience and realities of AxSpA. By taking this survey, you can help everyone better understand the real impact of AxSpA...Reactions0reactionsComments0 repliesAwarenessResearch & Clinical Trials
Four Low-Impact Exercises for Spondies...It’s that time of year again when most of us not only think about making changes to our daily lives, but we also resolve to do so. But adding more...Reactions0reactionsComments5 comments
Symptoms of Negativity...I titled this article “Symptoms of Negativity” but please do not think that this is going to be one of those, outward in, all you need is a smile on...Reactions0reactionsComments2 comments
How Regular Stretching Relieves My AS Pain...“Be sure to stretch” was one of the few pieces of advice I walked away with when I was told I had AS. The message got lost for a while...Reactions0reactionsComments6 comments
The Other Side of Butterflies...Butterflies and baseball are 2 of my favorite things. Both combine simplicity, flashes of beauty, and long stretches of quiet and apparent inactivity to balance bursts of frenetic activity. I...Reactions0reactionsComments4 comments
Rating Pain and The Pain Scale...Lately, I’ve been reading a lot of creative nonfiction essays during the process of designing an upper-level Creative Nonfiction writing course at the University where I teach and work. The...Reactions0reactionsComments10 comments
