I Traveled Without Pain (For Once), or How Climate Affects AS...This spring, I had the privilege of traveling (finally!) out of the country — to Sicily, where my grandmother was born in...reactions6comments
My First Time Traveling Since Becoming Homebound...A little over a year ago I wanted to surprise my fiancé with something big for our 3 year anniversary--a trip to...reactions3comments
How I Care For Myself: 6 Types of Self-Care...This article will be about my self-care plan. I always thought self-care was just taking baths, going for a walk and lighting candles to...reactions9comments
The Sleepless Nights Continue...The sleepless nights have been going on now for a couple weeks again. They just keep getting harder and harder to get...reactions15comments
Tips for a Restful Night Sleep...Finding a restful night sleep with axial spondyloarthritis can be so hard. Between painsomnia, finding a comfortable position, and worrying about your...reactions5comments
Another Year Older With AxSpa...Another year has passed and I made it through. Turning 36 years old, another year of AxSpa by my side. I thought...reactions4comments
Resistance Bands for Ankylosing Spondylitis...In my pre-diagnosis days, the only thing I enjoyed more than a trip to the pub was one to the gym. In the months before...reactions10comments
My Husband's AS Flare Symptoms...I've been part of the Ankylosing Spondylitis community now for a few months. Something that's stuck out to me from reading comments...reactions13comments
Procrastination = Stress = Flare...Unfortunately, in all aspects of life, I am a procrastinator. While being a procrastinator, I am terrified of failure. So, let’s call me an anxious procrastinator. I leave things to the last minute. But while I’m sitting there not doing the...reactions10comments
Full of Different Emotions Waiting to Start My Next Biologic...It’s been an anxious wait, since seeing my rheumatologist mid-July. I felt so confident leaving his office. Finally, felt listened to, that...reactions3comments
The Healing Power of Silliness...Any parent of a 4-year-old and 2-year old will admit that things tend to get pretty silly in their house. Add in...reactions1comment
Dealing With the Lack of Knowledge of AS in Healthcare...Before I was diagnosed with ankylosis spondylitis, I’d never heard of it. I spent a lot of time researching my condition, then...reactions4comments
Reducing Medication Intake Is My Agenda Whilst Living With AxSpa...After my diagnosis I visited doctors to seek advice, discuss treatment recommendations, and find ways to cope with AxSpa symptoms. From the...reactions13comments
Ask the Non-Radiographic AxSpA Advocates: Self-Advocacy and Finding Community...As we learn more and more about axial spondyloarthritis (AxSpA) and ankylosing spondylitis (AS), we also learn that many people live with...reactions5comments
My Journey as an Athlete Living With AS...I have been an athlete most of my life. I discovered the sport of tennis when I lived in France at the...reactions5comments
I Have A Chronic Illness And Chronic Depression...Having a chronic illness like ankylosing spondylitis takes its toll on us physically, but it also takes a huge toll on us...reactions4comments
My Attempt to Stop My Medication...In 2018, I spent one month in France without my medication. Of course, it wasn’t planned... I left the UK in the...reactions9comments
Joy Tilbrook...Joy works for a disability charity and lives in London. After having symptoms throughout her teens and early twenties, Joy’s symptoms intensified...
Discovering a Different Version of Myself With AS...Developing AS changed my life in in all kinds of ways. Things I had enjoyed were now off-limits. Plans I’d made were...reactions1comment
"But You Don't Look Sick"...If I had a dollar for every time I've been told "but you don't look sick" I would be rich by now!...reactions21comments
