Researching Axial Spondyloarthritis For Myself...One of the most critical issues I think we've all been facing in the past few years is the regularity of disinformation. We have seen it during political elections and...reactions5comments
Allowing New Medications Adjust to Your Body...I’ve recently started a few different medications. My doctors and I are still trying to figure out what works best for all my conditions: depression, anxiety, AS, fibromyalgia, and colitis...reactions3comments
Another Winter With AxSpa...Here in Australia we’re leaving the cold weather behind and enjoying the spring. At this time I’m once again conscious of all my friends in the northern hemisphere living through...reactions1comment
Being Kind to Others When I'm Having a Bad Day...I used to remind myself that I'm not the only one going through things in life. Sometimes my expectations of others wasn't fair. I expected everyone to check on me...reactions3comments
PIP Hell...I tried 3x times to get PIP. It's pure hell, embarrassing, and demeaning from having a solicitor with me who went back in the room and gave them all hell...reactions8comments
Vertigo...I have had Ankylosing Spondylitis for 60 yrs and my spine is totally fused. I have no head or neck movement. I have been suffering from Benign positional vertigo for...reactions9repliesAlternative Treatment
Losing Friends and Finding Community: Living With AS...It’s no secret that getting diagnosed with ankylosing spondylitis (AS) can be a life-changing experience. It is an inflammatory disease that can cause pain, stiffness, and immobility in the spine...reactions4comments
Right Now, I Need to Put Me First...I know today you are having a hard time. Last night, you went to bed thinking tomorrow would be a better day. You went to bed thinking tomorrow would be...reactions1comment
Body image...I suffer with severe body image issues, and lately I'm gaining weight because I literally can't do anything. I know movement helps with flare ups, but even walking and lifting...reactions4replies
Shoulder Pain...Has anyone had intense shoulder pain with AS? I’ve had a tender clavicle joint and shoulder pain that has lasted 3 months…shoulder and neck MRIs are normal. It seems to...reactions8repliesSymptoms
3 Tips for Accessing Accommodations...Not long after I was diagnosed with axial spondyloarthritis, I spoke to my doctor about accommodations at college. My pain and brain fog add a difficult layer to learning, and...reactions3comments
Thinking About Snow...Oh, I so dislike Winter. I mean, I really do. I hate it. I like warmth. My joints and mood are much better in Spring and Summer. So much better...reactions4comments
Exercise ...Just had my most serious pain episode 2weeks making my back very stiff. The symptoms have settled with prednisone. I’m usually very fit cycling. Pier to this I had increase...reactions1replyAxial Spondyloarthritis
Not Just Coping But Living With a Chronic Illness...One of the things that I hear from others who are living with chronic illnesses like ankylosing spondylitis is that they are just trying to cope with daily life with...reactions2comments
Newly diagnosed and 10w pregnant ...Hi guys ! I was just diagnosed with AS and my sacroiliac joints are super active both sides + I just found out I’m also pregnant, I’m so scared I...reactions4replies
Mental health...I am 32 years old and was diagnosed in 2021, I am still trying to process the diagnosis and trial and error medication which has left me in a debilitating...reactions10repliesAxial Spondyloarthritis CopingDepression
She's Battling Things Her Smile Will Never Share...When I was a little girl, I couldn't wait to grow up. I wanted it to happen so fast. I looked up to the older ones and wished for it...reactions8comments
Adapting to Life with Ankylosing Spondylitis and Fibromyalgia...Living with ankylosing spondylitis and fibromyalgia is hard. It means being in pain and tired constantly. The never ending pain and fatigue became my new norm. So, I had to...reactions2comments
Going To A Disability Job Fair...Since being diagnosed with AS, I have had real difficulties when it comes to finding employment. Prior to my diagnosis, I was working in education, but sacked on account of...reactions8comments
Partner seeking tips...Hi everyone. My partner is a fellow sufferer of anky/axial and over the past few weeks or so she has been suffering quite a bit more with her flare ups...reactions7repliesCaregivingFlare ManagementAssistive Devices
