Rating Pain and The Pain Scale...Lately, I’ve been reading a lot of creative nonfiction essays during the process of designing an upper-level Creative Nonfiction writing course at the University where I teach and work. The...Reactions0reactionsComments10 comments
New Year, Same Body...What do I want to make sure to get out of 2023? Some common New Year's resolutions have to do with body management, such as exercising and eating a certain...Reactions0reactionsComments4 comments
Do you experience sensory issues with AS?...I can't tell if this has to do with AS, fibromyalgia, autoimmunity/inflammation, or a byproduct of pain/sleeplessness/sensitivity to stress...but I get sensory overload. I wrote about it below, stating: "According...Reactions0reactionsComments9 repliesSide EffectsVentingComorbidities
Communicating With Brain Fog, Fatigue, & Pain From Ankylosing Spondylitis...I'm a born orritor. Worked in radio, was a storyteller, provided voice over for different projects. I can speak in a voice that both comforts and excites. (I also might...Reactions0reactionsComments16 comments
Medication...I am due to start Rinvoq this weekend, I have been on biologics for 12 years, but I’ve had a 2 year break and now I’m really anxious again about...Reactions0reactionsComments9 replies
Biologic Medications and My Finger Infection...Having an autoimmune disease like AS, my body can be vulnerable to getting infections much easier. I am on biologics (I take Cosentyx) which makes me even more vulnerable to...Reactions0reactionsComments5 comments
How Pets Help Build Confidence and Joy With AxSpa...I remember reading an article in the NASS magazine about a young woman sharing her story entitled "Farming is my Therapy." I found that inspiring, and amazing to read that...Reactions0reactionsComments4 comments
Severe gastritis...I was wondering if anyone else has had stomach issues. I started out on the strongest NSAIDs. Wound up on just regular ibuprofen after years of use due to several...Reactions0reactionsComments1 replies
Old Boots and Ankylosing Spondylitis ...I threw away my old boots today. These were not just any old boots. These were boots I bought in August 1973. Yes, you got that right, 1973. Wow, I...Reactions0reactionsComments8 comments
Reflecting and Welcoming a New Year...A Happy New Year! Wishing everyone a happy New Year ahead for all of us. Wishing you all happiness and nothing but the best for our health. Reflecting on the...Reactions0reactionsComments4 comments
Latent tb...Rheumy wants to put me on humira and did tb blood test and I have latent tb. I'm on rifampin for 4 months then not sure if I should still...Reactions0reactionsComments2 repliesSide Effects
Winter weather: How is everyone with AxSpA handling the cold? ...How is the cold affecting you this winter? My stiff neck has returned due to cold weather, even in Arizona. The days are cold and the nights pretty chilly. I...Reactions0reactionsComments3 repliesCopingWeatherComplimentary Treatment
3 Tips to Help Relieve AS Symptoms...I don’t have to tell you how frustrating and debilitating your symptoms can be. From joint pain to blurred vision, many ways in which ankylosing spondylitis (AS) symptoms can impact...Reactions0reactionsComments9 comments
Become Friends With Fear...When I was diagnosed with AS, along with the pain, stiffness, and fatigue, one of the most debilitating symptoms was...fear. If you obtain an injury, for example you sprain your...Reactions0reactionsComments3 comments
Naproxen 250mg...Hi all Just wondering if anyone has had these tablets? How good are they for our AS? Just been giving them by the consultant, does it lower the inflammation? I...Reactions0reactionsComments3 replies
Here We Go Again...Another Flare...It's been exactly three weeks since attending my brother's 30th birthday party. It was something I really wanted to attend, as my brother turns 30 only once. Before the event...Reactions0reactionsComments4 comments
A Negative Mind Will Never Give Us a Positive Life!...It's so easy to turn a positive mindset into a negative one, right? Your brain is on the go 24/7 and if you're anything like me, who has anxiety, then...Reactions0reactionsComments4 comments
Other Sickness and AS...For the third month in a row, I have gotten sick between biologic injections. This time I've ended up on antibiotics, and my rheumy has advised me to delay my...Reactions0reactionsComments4 repliesSide Effects
Whatever It Takes...Many of our grandparents and great grandparents dealt with world wars, economic calamities, pandemic influenza, polio, difficult working conditions, insecurity around basic needs, and the indignity of institutionalized hatred. These...Reactions0reactionsComments7 comments
New Year's AS-olutions...It’s that time of year again when something as minor as a number at the end of the date changing makes us believe we can make drastic changes to our...Reactions0reactionsComments6 comments
