Finding Support & Acceptance Sometimes Takes Time...Thoughts that go over my head: Will I feel like this forever? Will I ever feel better? I feel like I am waiting for my life to be over soon...reactions4comments
My Diagnosis Day...I remember my diagnosis day vaguely. I had met with my rheumatologist once already. I was not expecting to have another appointment for a few months. My day started with a call from my rheumatologist asking could...reactions3comments
Struggles With Sleep...Pain makes it difficult for me to fall asleep. While I've tried to improve my sleep hygiene and use pain management techniques before going to sleep, the struggle to sleep...reactions15repliesInsomniaSleep
What’s you Go To When A Flare Up Arrives...I’ve had very low back pain for many years due to a car wreck, two back surgeries, had the nerves burned in my back which lasts about a year but...reactions4replies
Treatment OPTIONS ...Which treatment options have worked or not worked for you?...reactions3repliesTips & AdviceFatigue Alternative Treatment
What supplements do you take on a daily basis?...I take several supplements in addition to my medication and am wondering what has worked for everyone and what brands. Fish oil for instance, varies so much, as well as...reactions4replies
Finding My Inner Superhero...If you haven’t read any of my articles before, I’ll introduce myself. Hi! I’m Auldyn, wife, and caregiver go my husband, Keegan, who’s suffered from AS for over 10 years...reactions1comment
Has you Rheumatologist Allowed You Try Their Sample Medicines?...All Physicians are flooded with Samples of Medications for Free. I went to a top rated Dr. who loved collecting money but didn’t really want to help me. After 5...reactions13replies
FeaturedDisability at work?...Are you out of your work because of AS? And has the process of filing a claim for disability through government or your insurance been smooth?...reactions7replies
My Experience with Surgery and the Autoimmune Response...A popular topic amongst the chronic illness community is surgery. If you're like me, you either know someone who has gone under the knife to try to regain some control...reactions11comments
7 Years in "No Diagnosis Land," Part 1...Many people experience symptoms of AxSpA for quite some time before being diagnosed. Some are misdiagnosed, while others are dismissed as having simply back pain. Here is my story… I...reactions5comments
Remission? Wow. Remission!...Honestly, I feel great. I don’t (nor does any doctor I’ve met) know why or what to credit; that’s why I’m detailing everything here in case it matters to someone...reactions9comments
Disability Pride Month: What Disability Pride Means to the AS Community...You may have seen on social media posts, or you may be unaware: July is Disability Pride Month! It is a time for those who are disabled to share their...reactionscomments
Alternative Therapies and Ankylosing Spondylitis Treatment...I have always been interested in spirituality, mental health, and alternative methods of healing — even before I realized I was passionate about these topics, and well before I had...reactions5comments
How I Decided to Use Cannabis as Medicine...My pain, like many other AxSpA warriors, dates back to before I can even remember. I didn't get an official diagnosis until I was nearing 30, and with other chronic...reactions2comments
The Switch to Summer and Ankylosing Spondylitis Symptoms...Now that the warmer period finally has arrived in the northern hemisphere many of us experience less flares. Though I myself have never experienced an extreme difference with winter, I...reactions2comments
Have you and your employer discussed workplace accommodations due to your AxSpA?...Working with a chronic condition like AxSpA can require changes in the workplace, reduced or changed hours, or even switching jobs. What have you found helpful from your employer or...reactions6repliesWork & Employment
Hot Topics on AnkylosingSpondylitis.net...Looking for a conversation to join? Check out these popular forums! Don't see what you're looking for? Start your own forum here!...reactions3comments
Being Aware Of Our Privileges In The Chronic Illness Community...I was reading a conversation between ankylosing spondylitis patients, and everything seemed to be progressing beautifully — an exchange of empathy, supportive ideas, resource sharing — until someone hopped into...reactions1comment
Gardening Tips For Self-Care...Most gardeners start spring filled with the dreams that kept us going through the winter in one bucket and the reality of finances and soil in the other. The long...reactions1comment
