What Next?: Feeling Lost Immediately After Diagnosis...I remember the moment when the doctor's office called Keegan, my husband, to tell him of his AxSpA diagnosis. I remember it...reactions1comment
When It Comes to Treatment, When Do You Leave Well Enough Alone?...Finding an effective medication for any chronic disease can be a challenge for both patient and doctor. Before I got sick myself...reactions3comments
How AS Affects the People Around Us: An Interview...I wanted to interview my two closest friends to see how my AS affects them. How do they feel when I’m in...reactions1comment
Finding a New Normal with AS...2020 has been an interesting year, to say the least. The COVID-19 pandemic prompted a global response and altered the day-to-day lives...reactions1comment
Thankful for Others Sharing Their Story Here...I read the same story over and over, I’m thankful all the information on this site! We all seem to have the...reactions1comment
Cultivating Resilience In Hard Times 102: Structure, Commitments, And Opportunities...The iconic Hills Are Alive scene from The Sound of Music has been reborn a thousand times over in memes. Generally, a...reactions1comment
The Second Wave of COVID-19 is Here...It’s not a huge surprise. We all knew it was coming. School has started back up and here we are. I live...reactions1comment
Coping: My New Life with AS...Hi y'all, I have been diagnosed since July with ankylosing spondylitis. It causes stiffness and affects my joints, tendons, and ligaments. I...reactions3comments
My Spine is Like a Roller Coaster...I like roller coasters. I have not been on one for several years as my arthritis issues generally do not allow me to...reactions2comments
Spondyloarthritis in Children...We might think of spondyloarthritis (SpA) as a condition that occurs in adults, but SpA can also be diagnosed in children. SpA...
Challenges of Having an “Invisible” Illness...Living with an AxSpA spectrum condition can be challenging at times, especially if you look “normal” or “healthy.” When an illness doesn’t...
Certolizumab Pegol (Cimzia)...Medications can be helpful in treating conditions on the AxSpA spectrum. There are various kinds of medications, including biologic DMARDs (disease-modifying antirheumatic...
Learning Adult Lessons Through Having AS...Perhaps a silly title, finding out how to go from a teenager to an adult was quite a journey for Keegan, my...reactions1comment
Others May Not “See” It. But I Feel It....During Invisible Illness Awareness Week, we want to recognize and shed light on all those affected by an illness that may go...reactions1comment
My Illness Through My Children's Eyes: An Interview...When I was first diagnosed with AS, my number one worry was how my illness was going to impact the lives of...reactions2comments
Getting Hygge On Flare-Up Days...I've taken a very intentional approach to how I use my space when I'm in a flare-up. If I'm going to be...reactions1comment
"It’s Not the Blender": Being Pro-Active vs. Reactive to my AS...It was December last year, as I slumped on our bedroom floor, having my suddenly burst into tears about having to carry...reactions3comments
AS Took Ahold of My Steering Wheel...I have had back pain for 10 years. However, one year ago, I had this uncomfortable pain on my sacrum that did...reactions4comments
Nightmares When I Go Back To Sleep in the Morning...Horrible nightmares usually happen after going back to sleep in early morning. They are particularly bad on the last night of a...reactions2comments
Debilitating Pain After Laying New Flooring...I read so many stories about how one "outing" can cause several days of so much pain and being couch ridden. The...reactions1comment
