Our Winding Journey to Finding Rheumatologists...Since I've started writing and moderating for AnkylosingSpondylitis.net, I read countless stories about how difficult it is for AS patients to find...reactions4comments
I Don’t Like Long Walks on the Beach: Dating and Chronic Pain...For anyone, dating can be scary — putting yourself out there, being vulnerable, and hoping that the other person accepts you. Having...reactions3comments
Balancing School While Managing AS...Starting school while living with the often-times debilitating symptoms of AS can be nerve-wracking. About six months ago I began my first...reactions1comment
Sharing the Good Days When You Have AxSpA...At the beginning of the holiday season, I was struggling through the start of a flare up. I knew that the holidays...reactions2comments
Support Group Doomscrolling...When I was first diagnosis with nr-AxSpA, I was relieved. I finally knew what was “wrong” with me. There was an actual...reactions5comments
A Weekend Hike and the Painful Aftermath...I thoroughly enjoy hiking--it’s one of my favorite weekend and after-work activities. Hiking means my joints get some much-needed movement, my body...reactions3comments
Why We Don't Need 2021 Resolutions...With the start of the new year, plenty of us are thinking about or attempting to tackle resolutions. Perhaps after the long...reactions1comment
Every Day is a Marathon...We all know the look to well. Often accompanied with an eye-roll, sigh and something along the lines of “I’m tired too”...reactions4comments
I Bought a Pair of Walking Poles...Ha, I did it. I purchased a pair of walking poles. Specifically, these walking poles. I am delighted to have them. So this is what...reactions7comments
Things My Chronic Illness Has Given Me...I try not to sugarcoat the reality of having a chronic illness like ankylosing spondylitis (AS), because it truly sucks. But whether...reactions2comments
Heart Problems and Axial Spondyloarthritis...There are various conditions or diseases that occur at the same time as conditions on the AxSpA spectrum. These are called comorbid...
How to Handle Moving Day With AS...Daily life with ankylosing spondylitis is complicated. There's the pain, fatigue, brain fog, and flares. But when it's time to move houses...reactions5comments
New Chapter, Same Disease...I am almost 22 years old and entering a new stage in my life. It’s a period of big changes and big...reactions4comments
A Letter To Everyone With AS...It's okay if you can't clean the house. It's okay if you can't go to dinner with your friends. It's okay if...reactions2comments
Relying on Dr. Google for Too Long...Hindsight is 20/20. And that's definitely the case for me and my husband, Keegan. He was diagnosed 7 years ago with ankylosing...reactions4comments
Painful...I have SI issues, hip back, knees, stiffness, GI issues, pelvic, and groin issues, fatigue, anxiety, depression, DDD, diabetes, only diagnosis osteoarthritis...reactions1comment
7 Mindset Shifts To Get Through A Flare-Up...I've been in the worst flare-up for the past week or so. My pain levels are steadily sitting between seven and 10...reactions1comment
Combating A Negative Mindset With Wellness Planning...I’ve been struggling lately. Things haven’t been going my way for quite some time now, and it’s really begun to take a...reactions9comments
Spinal Cord Injury And Axial Spondyloarthritis...There are various conditions or diseases that occur at the same time as conditions on the AxSpA spectrum. These are called comorbid...
Feeling Frustrated...I am so frustrated and angry. I moved 3 years ago and can't find a rheumatologist in my area that doesn't want...reactions4comments
