Am I Too Much for My Friends?...Over the past 4 years of having AS, I’ve run into this problem over and over. I wonder if I’m too much...reactions5comments
Social Distancing Spurs Telehealth Surge...The technology needed for virtual healthcare has been around for decades. But virtual care has not been widely used in the United...reactionscomments
Eyes on the Prize: Setting Goals...I was diagnosed with non-radiographic axial spondyloarthritis in May 2019 after many years of chronic pain. I’m the type of person who...reactions2comments
A Journey to Acceptance...In the early nineties, doctors diagnosed me with ankylosing spondylitis. With me being in my teens I couldn't really comprehend what kind...reactions12comments
How Technology Brings Both Convenience and Confusion: Results of the Connected Health Survey...Sometimes, it feels like we are surrounded by technology. Apps, devices, trackers, and gadgets are everywhere! In this digital age, though, everyone...reactionscomments
AxSpa and Medical Gaslighting...I had been struggling for a few years when I finally had enough of not having some sort of solution or treatment...reactions1comment
What My Days Look Like Living with AS: Part 1...It’s 6:50 AM. The alarm is going off, but I don’t want to move. I didn’t sleep but probably 4-5 hours. I...reactions5comments
A Little Bit About Me and My AS...Throughout my life I have always been tired, I thought this was "normal." I have suffered from mild back pain on and...reactions4comments
Hi, I’m “Just The Immunocompromised”...As the COVID-19 pandemic drudges on, so does my frustration, as I watch people I once thought to be intelligent make brainless...reactions3comments
Our Winding Journey to Finding Rheumatologists...Since I've started writing and moderating for AnkylosingSpondylitis.net, I read countless stories about how difficult it is for AS patients to find...reactions4comments
I Don’t Like Long Walks on the Beach: Dating and Chronic Pain...For anyone, dating can be scary — putting yourself out there, being vulnerable, and hoping that the other person accepts you. Having...reactions3comments
Balancing School While Managing AS...Starting school while living with the often-times debilitating symptoms of AS can be nerve-wracking. About six months ago I began my first...reactions1comment
Sharing the Good Days When You Have AxSpA...At the beginning of the holiday season, I was struggling through the start of a flare up. I knew that the holidays...reactions2comments
Support Group Doomscrolling...When I was first diagnosis with nr-AxSpA, I was relieved. I finally knew what was “wrong” with me. There was an actual...reactions5comments
A Weekend Hike and the Painful Aftermath...I thoroughly enjoy hiking--it’s one of my favorite weekend and after-work activities. Hiking means my joints get some much-needed movement, my body...reactions3comments
Why We Don't Need 2021 Resolutions...With the start of the new year, plenty of us are thinking about or attempting to tackle resolutions. Perhaps after the long...reactions1comment
Every Day is a Marathon...We all know the look to well. Often accompanied with an eye-roll, sigh and something along the lines of “I’m tired too”...reactions4comments
I Bought a Pair of Walking Poles...Ha, I did it. I purchased a pair of walking poles. Specifically, these walking poles. I am delighted to have them. So this is what...reactions7comments
Things My Chronic Illness Has Given Me...I try not to sugarcoat the reality of having a chronic illness like ankylosing spondylitis (AS), because it truly sucks. But whether...reactions2comments
Heart Problems and Axial Spondyloarthritis...There are various conditions or diseases that occur at the same time as conditions on the AxSpA spectrum. These are called comorbid...
