Every Day is a Marathon...We all know the look to well. Often accompanied with an eye-roll, sigh and something along the lines of “I’m tired too”...reactions4comments
I Bought a Pair of Walking Poles...Ha, I did it. I purchased a pair of walking poles. Specifically, these walking poles. I am delighted to have them. So this is what...reactions7comments
Things My Chronic Illness Has Given Me...I try not to sugarcoat the reality of having a chronic illness like ankylosing spondylitis (AS), because it truly sucks. But whether...reactions2comments
Heart Problems and Axial Spondyloarthritis...There are various conditions or diseases that occur at the same time as conditions on the AxSpA spectrum. These are called comorbid...
How to Handle Moving Day With AS...Daily life with ankylosing spondylitis is complicated. There's the pain, fatigue, brain fog, and flares. But when it's time to move houses...reactions5comments
New Chapter, Same Disease...I am almost 22 years old and entering a new stage in my life. It’s a period of big changes and big...reactions4comments
A Letter To Everyone With AS...It's okay if you can't clean the house. It's okay if you can't go to dinner with your friends. It's okay if...reactions2comments
Relying on Dr. Google for Too Long...Hindsight is 20/20. And that's definitely the case for me and my husband, Keegan. He was diagnosed 7 years ago with ankylosing...reactions4comments
Painful...I have SI issues, hip back, knees, stiffness, GI issues, pelvic, and groin issues, fatigue, anxiety, depression, DDD, diabetes, only diagnosis osteoarthritis...reactions1comment
7 Mindset Shifts To Get Through A Flare-Up...I've been in the worst flare-up for the past week or so. My pain levels are steadily sitting between seven and 10...reactions1comment
Combating A Negative Mindset With Wellness Planning...I’ve been struggling lately. Things haven’t been going my way for quite some time now, and it’s really begun to take a...reactions9comments
Spinal Cord Injury And Axial Spondyloarthritis...There are various conditions or diseases that occur at the same time as conditions on the AxSpA spectrum. These are called comorbid...
Feeling Frustrated...I am so frustrated and angry. I moved 3 years ago and can't find a rheumatologist in my area that doesn't want...reactions4comments
Ways I Didn't Expect AS to Affect Our Lives...Looking back on my life, it's always strange to think about what it was like in college. Keegan, my husband with AS...reactions6comments
The Frustrations Of Arthritis Advocacy...Outsiders could be forgiven for mistaking the constant parade of advertisements for treatments for arthritis, psoriasis, Crohn's disease, and ulcerative colitis for...reactions1comment
My 15 Year Journey To Diagnosis In NYC...At the age of 15, not only did I develop asthma, but also started getting what I called "chronic back pain" for...reactions2comments
Stepping Back From the Community When It Becomes Too Much...I've said it a million times, and I'll probably say it a million more; the chronic illness community is one like no...reactions1comment
Smart Crutches Were My Best Choice...I’m 22 years old (soon to be 23) and I’m already having movement problems stemming from the pain and stiffness of AS...reactions1comment
My 50th Bday Present was a Walker...This is my story, or should I say journey? It took 35 years to get a simple diagnosis! Day after day. Week...reactions10comments
Cultivating Resilience In Hard Times 103: Celebration & Beauty...I’m writing this in October, the 70th month of 2020, in the year of our Despotic Overlord COVID-19. The pandemic has shoved...reactions2comments