Eyes on the Prize: Setting Goals...I was diagnosed with non-radiographic axial spondyloarthritis in May 2019 after many years of chronic pain. I’m the type of person who loves to make “to do” lists, so a...Reactions0reactionsComments2 comments
A Journey to Acceptance...In the early nineties, doctors diagnosed me with ankylosing spondylitis. With me being in my teens I couldn't really comprehend what kind of journey would lay ahead of me. The...Reactions0reactionsComments12 comments
AxSpa and Medical Gaslighting...I had been struggling for a few years when I finally had enough of not having some sort of solution or treatment for, what I now know is AxSpA. I...Reactions0reactionsComments1 comments
The Rollercoaster of Living with Chronic Pain...Being in pain 24 hours of the day, 7 days of the week is exhausting. Losing sleep because of it, waking up early because of it, not being able to...Reactions0reactionsComments0 comments
What My Days Look Like Living with AS: Part 1...It’s 6:50 AM. The alarm is going off, but I don’t want to move. I didn’t sleep but probably 4-5 hours. I tossed and turned the entire night, trying (and...Reactions0reactionsComments5 comments
How Technology Brings Both Convenience and Confusion: Results of the Connected Health Survey...Sometimes, it feels like we are surrounded by technology. Apps, devices, trackers, and gadgets are everywhere! In this digital age, though, everyone has a different level of comfort using technology...Reactions0reactionsComments0 comments
Service Animals and Emotional Support Animals...If you have axial spondyloarthritis (AxSpA), you might have considered a service animal to support you. Service animals are often associated with those needing a seeing-eye dog or mobility assistance...Reactions0reactionsComments4 comments
James Hollens...James Hollens is a 26 year old from Croydon, South London. Shortly after graduating from university in 2016, James was diagnosed with Rheumatoid Arthritis and three years later was lucky...
A Little Bit About Me and My AS...Throughout my life I have always been tired, I thought this was "normal." I have suffered from mild back pain on and off for years, mostly in my tailbone. I...Reactions0reactionsComments4 comments
Hi, I’m “Just The Immunocompromised”...As the COVID-19 pandemic drudges on, so does my frustration, as I watch people I once thought to be intelligent make brainless decisions that contribute to the spread. These poor...Reactions0reactionsComments3 comments
If you used Humira, how long did it take to work for you — any side effects?...I started humira a few years ago and came off it a few months later after bouts of shingles and infections. I fear it didn't work because I came off...Reactions0reactionsComments2 repliesSide EffectsTreatment
FeaturedI need total flexibility in order to have a social life...I am definitely battling fatigue much more often these days; even when I'm not in pain, fatigue can take me out as I've run into a wall. So friends have...Reactions0reactionsComments4 repliesSymptomsFriends & Family
Beyond Medication: Managing Axial Spondyloarthritis Holistically...When I first was diagnosed with ankylosing spondylitis, I didn’t see or read a lot about stress management. In fact, all of that seemed strangely disregarded, as though our minds...Reactions0reactionsComments3 comments
My Challenge to Adapt to the Unpredictable AxSpa...I used to live a full-on life, enjoying planning many things such as dinner with friends, holidays, weekends away, various activities, and gatherings in my house. I would get very...Reactions0reactionsComments4 comments
Our Winding Journey to Finding Rheumatologists...Since I've started writing and moderating for AnkylosingSpondylitis.net, I read countless stories about how difficult it is for AS patients to find rheumatologists. This was definitely the case for my...Reactions0reactionsComments4 comments
FeaturedWhat does everyone's treatment plan look like?...While two people may have the same diagnosis for axial spondyloarthritis, they may have stark treatment recommendations from their healthcare team. Medication that may work for one person may cause...Reactions0reactionsComments5 replies
I Don’t Like Long Walks on the Beach: Dating and Chronic Pain...For anyone, dating can be scary — putting yourself out there, being vulnerable, and hoping that the other person accepts you. Having a chronic illness adds another dimension to that...Reactions0reactionsComments3 comments
Balancing School While Managing AS...Starting school while living with the often-times debilitating symptoms of AS can be nerve-wracking. About six months ago I began my first semester of journalism, and despite how ready I...Reactions0reactionsComments1 comments
Sharing the Good Days When You Have AxSpA...At the beginning of the holiday season, I was struggling through the start of a flare up. I knew that the holidays had been very difficult in the past and...Reactions0reactionsComments2 comments
I Decided to Reclaim my Body...Something that I’m sure is common with many of us ASers is that we aren’t happy with our bodies. It’s reasonable…I mean, our bodies do actively work against us every...Reactions0reactionsComments1 comments