The Old Me Vs. The New Me...I feel like something a lot of us do is compare. We compare the things we used to do to the things we do now. We also compare what we...reactionscomments
What My AxSpA Diet Looks Like...We hear a lot of conversations around well-being and diet, especially so in the chronic illness community. We often are told that diet will be the cure for AxSpA (or...reactions1comment
How Do I Connect with Real People Living with AxSpA?...Navigating life with axial spondyloarthritis (AxSpA) can be scary or confusing, especially when going through it alone. After hearing those words “You have AxSpA/AS,” it is hard to know where...reactionscomments
Getting Out of Bed with Spondyloarthritis, Part I...For years, my "good morning" attitude has been squashed by chronic illness. Enduring a restless night of pain associated with spondyloarthritis (SpA) makes it much more difficult for me to...reactions2comments
A Confession: Things Are Hard...When I get dark, I get really dark — but I don’t think there’s anything wrong with confessing it. In fact, why keep it in — why let the engine...reactions5comments
Beginner's Tips for Your Rheumatologist Visits...Over the past few years, my mom has dealt with a few chronic health conditions (she's actually in the process of determining if she has a form of AxSpA herself)...reactions2comments
Self-Care with a Chronic Illness...I never truly partook in self-care until I became sick. Now, it’s probably one of the most important things I do for myself. Since I’ve had AS, I’ve had to...reactions2comments
Sulfasalazine shortage?...I’m 36 years old and living with AS since 2012. I have been on NSAID most of the time and Sulfasalazine is added during critical flares with good results overtime...reactions1reply
AxSpA Pain Management...First of all, managing pain is different for everyone. During my journey, I quickly learned there is a lot of trial and error when it comes to pain management. What...reactions3comments
Chronic Fatigue and Canceling Plans...How do you manage feeling guilty for canceling plans because of chronic fatigue?...reactions3replies
AxSpa and gut health...I am wondering about doing a diet to reset my gut health. It's been a trendy topic lately, I have met people with AxSpa who did a drastic diet to...reactions3repliesDiet & Nutrition
Coping with Mental Health and Axial Spondyloarthritis: My Story...Everybody has experienced the toll a chronic illness can have on your mental health in one way or another. Being in constant pain, not being able to do the things...reactions4comments
Living With Ankylosing Spondylitis: My Journey & Learnings...In 2015, after 3 years of back pain and medical procedures, I was diagnosed with ankylosing spondylitis. What a shock this was, and at the same time a relief, to...reactions15comments
What Makes Me Happy Makes Me Stronger...One sentence resonates into my head when I wonder what I can do to be happy and cope better with AxSpa. It comes from a physiotherapist I worked with during...reactionscomments
My Top Do’s and Don’ts For Flare Days...This morning, I woke up with a familiar, burning ache in my bones. In those first few hazy moments of consciousness, before I could even think a thought, my attention...reactions13comments
Amplifying Black Advocate Voices: How Bias Has Affected My Patient Journey...Being diagnosed with an autoimmune condition like axial spondyloarthritis (AxSpA) can take years. Many people report their early symptoms were dismissed by doctors or they were misdiagnosed. This delays treatment...reactionscomments
Canceled Dreams...I had just given birth to a healthy 8 pound baby boy, unknowing that I was waking up a health demon! It was 29 years ago on June 12th that...reactions4comments
5AM: A Poem About Ankylosing Spondylitis...5AM She rolled over Wrapped in her skeleton Devoured by it’s pain No No No Don’t roll again Ashamed, a shame, a pain She lifted her body Off the bed...reactions5comments
My Recent Experience Navigating the U.S. Healthcare System...There are so many issues with our healthcare system in the U.S. that I could write a book. In fact, I’m sure there are countless books written on the subject...reactionscomments
Lana Buettner...Lana is a Functional Health Coach living in Germany. Lana was diagnosed with Ankylosing Spondylitis in 2015 at the age of 23, shortly after her 4 years as a college...
