Self-Care with a Chronic Illness...I never truly partook in self-care until I became sick. Now, it’s probably one of the most important things I do for myself. Since I’ve had AS, I’ve had to...reactions2comments
Sulfasalazine shortage?...I’m 36 years old and living with AS since 2012. I have been on NSAID most of the time and Sulfasalazine is added during critical flares with good results overtime...reactions1reply
AxSpA Pain Management...First of all, managing pain is different for everyone. During my journey, I quickly learned there is a lot of trial and error when it comes to pain management. What...reactions3comments
Chronic Fatigue and Canceling Plans...How do you manage feeling guilty for canceling plans because of chronic fatigue?...reactions3replies
AxSpa and gut health...I am wondering about doing a diet to reset my gut health. It's been a trendy topic lately, I have met people with AxSpa who did a drastic diet to...reactions3repliesDiet & Nutrition
Coping with Mental Health and Axial Spondyloarthritis: My Story...Everybody has experienced the toll a chronic illness can have on your mental health in one way or another. Being in constant pain, not being able to do the things...reactions4comments
Living With Ankylosing Spondylitis: My Journey & Learnings...In 2015, after 3 years of back pain and medical procedures, I was diagnosed with ankylosing spondylitis. What a shock this was, and at the same time a relief, to...reactions15comments
What Makes Me Happy Makes Me Stronger...One sentence resonates into my head when I wonder what I can do to be happy and cope better with AxSpa. It comes from a physiotherapist I worked with during...reactionscomments
My Top Do’s and Don’ts For Flare Days...This morning, I woke up with a familiar, burning ache in my bones. In those first few hazy moments of consciousness, before I could even think a thought, my attention...reactions13comments
Amplifying Black Advocate Voices: How Bias Has Affected My Patient Journey...Being diagnosed with an autoimmune condition like axial spondyloarthritis (AxSpA) can take years. Many people report their early symptoms were dismissed by doctors or they were misdiagnosed. This delays treatment...reactionscomments
Canceled Dreams...I had just given birth to a healthy 8 pound baby boy, unknowing that I was waking up a health demon! It was 29 years ago on June 12th that...reactions4comments
5AM: A Poem About Ankylosing Spondylitis...5AM She rolled over Wrapped in her skeleton Devoured by it’s pain No No No Don’t roll again Ashamed, a shame, a pain She lifted her body Off the bed...reactions5comments
My Recent Experience Navigating the U.S. Healthcare System...There are so many issues with our healthcare system in the U.S. that I could write a book. In fact, I’m sure there are countless books written on the subject...reactionscomments
Lana Buettner...Lana is a Functional Health Coach living in Germany. Lana was diagnosed with Ankylosing Spondylitis in 2015 at the age of 23, shortly after her 4 years as a college...
The Blame Game...I was diagnosed with AS in 2016, but I was managing a vast spectrum of pain since 2011. My symptoms included intermittent bouts of iritis, sciatica, stiffness, stabbing pains, crippling...reactions2comments
My Journey with Ankylosing Spondylitis...My Name is Gillian and I live in Bromley Kent. l have two sons Mark and Lee l started to get pain and stiffness in my lower back and neck...reactions6comments
How AS Has Changed Me...Although I’ve only been diagnosed for a year, I feel like I am a shadow of my former self. I have changed both physically and emotionally. Before I was sick, I would...reactions1comment
Spondylitis, Spondylosis, Spondylolisthesis: What Is the Difference?...The names of 3 health conditions that affect your spine sound very similar. However, spondylitis, spondylosis, and spondylolisthesis have some key differences. Here is a guide to each one. As...reactions1comment
How We've Created At-Home Relaxation...Who doesn't love an evening of relaxation with candles, massage, and total relaxation? Creating an at-home spa experience is a key part of my husband, Keegan's, pain management, and stress...reactions1comment
How Disability Theories Exclude People with Chronic Pain...Disability is a complex topic, so naturally, there are many ways to think about it. The disabled community has different ideologies — some people view their disabilities as blessings, while...reactions3comments
