Overdoing I'm somewhat out of the sling after my two weeks post-op checkup at the surgeon's office. So, of course, I wound up overdoing it this weekend (not that I did...Reactions 0 reactions Comments8 repliesCopingSurgery
FOMOAS can cause us to cancel plans, sit out on participating in activities, and miss out on things we might otherwise not have. This can strain friendships, relationships, and loving...Reactions 0 reactions Comments28 repliesFriends & FamilyTips & AdviceCoping
Friday FrustrationsIt's the end of the work week! Feel free to let out your frustrations from the week to help make the weekend a little lighter. *Please remain respectful and supportive...Reactions 0 reactions Comments13 repliesCopingAwareness
Has anyone else been told that AS is not a Disability?I was diagnosed in February 2021. The specialist that I see for treatment has started my on Humira after 12 months of unsuccessful treatment on 3000mg daily of Sulphasalazine. He...Reactions 0 reactions Comments1 repliesCoping
Periods and AxSpaHello everyone, Question for my fellow AFAB people with AxSpa -- does your period aggravate your AxSpa pain? I just got through my period and I have severely painful periods...Reactions 0 reactions Comments3 repliesSymptomsCopingTips & Advice
Managing PainsomniaHow do you manage the times when you wake up in the middle of the night and your bones, muscles, and brain are all screaming in pain? Let's discuss what...Reactions 0 reactions Comments1 repliesCopingPainsomnia Axial Spondyloarthritis
What do you do to treat yourself?I mean, as in a treat for yourself - a trip out, a special meal, that sort of thing....Reactions 0 reactions Comments30 repliesCopingTips & Advice
Winter weather: How is everyone with AxSpA handling the cold? How is the cold affecting you this winter? My stiff neck has returned due to cold weather, even in Arizona. The days are cold and the nights pretty chilly. I...Reactions 0 reactions Comments3 repliesCopingWeatherComplimentary Treatment
Changing biologics again So the Rinvoq is apparently helping great with my inflammation levels but after breaking down again in the hospital they're going to change me to infusions. I'm running out of...Reactions 0 reactions Comments4 repliesCoping
Using a Wheelchair?I may be buying a wheelchair tomorrow to use for longer family outings and I'm semi-conflicted about the idea. On one hand, I feel like I need to work as...Reactions 0 reactions Comments26 repliesCopingExerciseFatigue