Faking it With Ankylosing Spondylitis...I am a faker. I admit it. But I bet it is not what you are thinking. I fake people out about how well I am doing. In fact, I am...Reactions0reactionsComments2 comments
Do you experience gut issues with your AS or AxSpa? ...People with axSpA are more likely to get inflammatory bowel disease (IBD) than those without it. IBD includes ulcerative colitis and Crohn's disease. These conditions can cause digestive tract damage...Reactions0reactionsComments95 repliesComorbidities SymptomsSide Effects
Are you feeling fatigued? How do you manage it? ...Unfortunately, fatigue is a part of living with AS. Learning ways to manage your fatigue can be a game-changer and help you live a happier, more rested life....Reactions0reactionsComments30 repliesSymptomsTips & AdviceSide Effects
What's something you wish you were told when you were diagnosed? ...We learn a lot from our diagnosis through experience, trial and error, and sharing information. What's one thing you wish you would have been told when you were first diagnosed?...Reactions0reactionsComments37 repliesTips & AdviceDiagnosisCoping
Active 5 days agoAre you diagnosed with AS or AxSpa? ...There are 2 types of axSpA: radiographic and non-radiographic. Radiographic axSpA (r-axSpA or AS) In radiographic axSpA, inflammation, and bone damage are visible on X-rays. This is most commonly called...Reactions0reactionsComments43 repliesAnkylosing SpondylitisAxial Spondyloarthritis Diagnosis
What symptoms of AS do you experience? ...Chronic, long-term back pain is one of the most commonly reported health problems in the United States. Not surprisingly, back pain is also the most reported symptom by people living...Reactions0reactionsComments158 repliesAnkylosing SpondylitisAxial Spondyloarthritis Symptoms
Cane or Crutch?...I recently came across some blog articles discussing the preference for a cane versus a crutch, with most people preferring a forearm crutch to their cane. Perhaps this simply comes...Reactions0reactionsComments7 repliesAssistive DevicesFlare Management
Back to Work Advice...Hello AS family, I got a new job! It will be my first full-time, in-office gig since my diagnosis. It's not perfect, for instance entrance to the office is up...Reactions0reactionsComments11 repliesCopingWork Accommodations Tips & Advice
Making Planning Work For You...Life is a tug of war between disruptive chaos and the things we want and need to do. Lots of cool things happen along the way, but this struggle is...Reactions0reactionsComments2 comments
Pain Circles...Hi Everyone! I'm new to this world. I've yet to be officially diagnosed with AS but I've done quite a bit of reading and had many disucssions with my GP...Reactions0reactionsComments10 repliesAxial Spondyloarthritis ExerciseFlare Management
A Year of Physiotherapy...I went to physiotherapy from February 2022 to February 2023. Prior to starting physio, I was unable to be active. I could barely walk or stand for more than five...Reactions0reactionsComments2 comments
Si joint injection ...I am back with good and bad news. The good I made it through my si joint injection. Wasn’t as bad as I thought it was going to be. let’s...Reactions0reactionsComments3 replies
Keegan Matthews-McGee...Keegan was previously a health leader. Keegan Matthews-McGee is a stay at home dad, living in Philadelphia with his wonderful wife Auldyn and daughter Kaya. Keegan was diagnosed with AS...
Auldyn Matthews...Auldyn is the caregiver of her husband, Keegan, who was diagnosed with Ankylosing Spondylitis in 2014. Auldyn's always known Keegan with pain, even when they started dating over 10 years...
Amy Dolan...Amy was previously a health leader. Amy has developed her love for yoga and her expertise in physical therapy for over 20 years. She graduated from Ithaca College and has...
Ben Falchi...Ben was previously a health leader. Ben Falchi is a seasoned real estate professional who lives with his partner, Lisa Marie Basile (an ankylosing spondylitis patient), in NYC. In his...
Jayson Sacco...Jayson was previously a health leader. Jayson Sacco was diagnosed at age 14 with Ankylosing Spondylitis. This was before internet or any of the extensive knowledge or medications available now...
Katie Phares...Katie was previously a health leader. I am 27 years old and was diagnosed with AS in February of 2019. However, I have had autoimmune and inflammatory type symptoms since...
TK Sellman...TK Sellman, RPSGT CCSH is a career journalist (Columbia Chicago, ’90). She was diagnosed with idiopathic hypersomnia in 2010, which inspired her to go back to school to become a...
Nira Hyman...Nira was previously a health leader. Nira A. Hyman is a published essayist. She’s a lifelong writer with a BA in English from Yale University. She’s committed to spreading AS...