AxSpA Has Made Me a Calmer Person...I used to be an extremely busy, anxious, workaholic. I was a high school Drama teacher & head of my school’s Music...reactions4comments
Food is Medicine: What I Eat In A Day...I’ve now followed an integrative lifestyle approach to manage my AS for several years. Nutrition, movement, exercise, stress management, mindset, mindfulness and...reactions1comment
Traveling to third world countries tips?...Have you traveled to places like Mexico or the Dominican Republic? I know the water is not good. So what do you...reactions2repliesTravelAnkylosing Spondylitis
Misdiagnosed With Ankylosing Spondylitis...I will be saying farewell to this amazing group. I have been battling what my doctors and I thought was advanced AS...reactions18comments
How I’ve Changed...I think I’ve had AS forever. When I was 16 or so, my hips clicked all the time. I was told I...reactions1comment
Embracing the Shadows: A Journey Through Ankylosing Spondylitis...In a land shrouded by melancholy’s embrace, there dwelt a man whose spirit had succumbed to shadows. His once agile frame now...reactions2comments
Chiropratlctor Disaster...Before I had a clue of this awful illness my back was killing me. Out of options, Ithought I would try a...reactions2comments
Lost on Problem, Added Another...This is my condensed story on how I got AS, diagnosed and live with it on an hourly basis. I am now...reactions1comment
I Would Love To Have a Proper Diagnosis...I find myself envying those with a diagnosis. I am pretty sure that I tick all the boxes for non-radiographic axialspondyloarthritis. It...reactions1comment
Finally...Progress...So, today I saw a sub GP (mine is off taking her boards). The practice I go to is one in which...reactions3replies
Active todayLiving With AxSpa and Peripheral Spondyloarthritis ...When symptoms occur mostly in places other than the spine, the condition is called peripheral spondyloarthritis. There are several types of pSpA...reactions64repliesPeripheral SpondyloarthritisTips & AdviceCoping
How to Organize Your Medical Records...One aspect of self-management we don’t often hear about is how to store and organize the information we receive in relation to...reactions1comment
Becoming My Own Healthcare Advocate...One of my earliest memories is of the doctor's visits my mother used to attend with my grandmother. I remember my mother...reactions2comments
Tips for Requesting Support ...Share your experiences, ask questions, and discover effective strategies for communicating your needs with loved ones and healthcare professionals. Together, we can...reactions18repliesFriends & FamilyTips & AdviceCommunity Support
Mixed results ...Hi all, I’m looking for your experience and feedback please. Around 2 years ago I was diagnosed with AS although my worst...reactions10replies
The Sleepless Nights Continue...The sleepless nights have been going on now for a couple weeks again. They just keep getting harder and harder to get...reactions15comments
Mouth Sores...Hello! I'm wondering if anyone else has mouth sores in addition to their other symptoms? For 6 months now, since my last...reactions9repliesSymptoms
Problems Along Entire Spine...Diagnosed with nrAxSpA in 2022. Had prior thoracic spine surgery in 2019 on T10-T11. Lower back, SI joint and hip pain have...reactions4replies
Applying for Disability Benefits...I've had axial spondyloarthritis and fibromyalgia for about four years now. Well, that's when I was diagnosed. In truth, I've probably had...reactions1comment
What You Don’t See: Living With an Invisible Illness...Living with an invisible illness has taught me a couple of things: (1) people make assumptions about my condition based on what...reactions9comments
