What You Don’t See: Living With an Invisible Illness...Living with an invisible illness has taught me a couple of things: (1) people make assumptions about my condition based on what their eyes see; and (2) that I need...reactions9comments
Update and questions...Been gone awhile. Last i posted several months ago, i was on Humira and doing well. Not long after I took myself off due to multiple infections (Covid twice, kidney...reactions1replyNon-Radiographic Axial Spondyloarthritis
Walking Along With Ankylosing Spondylitis...Do you worry a lot? Are you distracted often by ankylosing spondylitis (AS)? Are you caught up in medical issues and miss other, more essential things? Well, I do. I...reactions1comment
I feel horrible after working out ...Hello, I’m newly diagnosed with NR-AXSPA. About a month ago, I started doing strength training. It’s been a while since I’ve done any kind of training so I’m being pretty...reactions5repliesExerciseFlares
I Am Giving Acupuncture a Shot for My Chronic Pain and Fatigue...I recall meeting people with chronic pain telling me that they benefited from acupuncture treatment. I am naturally curious and always keen to try something new, particularly if it can...reactions4comments
My First Time Attending an AS Support Group...This month I attended an online meet-up of my local AS support group. It was the first time I’ve ever done something like this, even though I’ve known these groups...reactions1comment
Finding Balance in Pushing Yourself and Resting with Work...Over the last 6 months, I have been diligent in getting myself back into a consistent work schedule. I work from home, so it can be a challenge to stick...reactions2comments
I’ve Been Doing Better...I realized I haven’t written an article in months. There are multiple reasons for that. I haven’t really had any new ideas for writing, nor have I felt motivated to...reactions1comment
Share your tips for self-care......Your experience matters! Please share the valuable self-care tips that have helped you manage your condition. Your insights could make a significant difference in the lives of others facing similar...reactions3repliesCommunity SupportTips & AdviceCoping
Medications...I’m not interested in taking biologics. Anyone here manage their axspa without it? If so, what do you take instead?...reactions5replies
Flares Still Happen, and I Accept Them as Messengers...I have now been living with AS for the past 11 years. At the beginning, flares came very frequently, and in an intense way. It felt like anything could trigger...reactions4comments
How I Manage Wildfire Season With "Pre-Existing Health Conditions"...It is the worst wildfire season in history. That’s the rhetoric I keep hearing from the media. In all fairness, it may be so on a national or continental scale...reactions1comment
Active 4 days agoWhat are your tips for preparing for a visit with your doctor? ...Share your best tips for preparing for a doctor's visit when dealing with AS/AxSpa. Whether it's gathering medical history, noting down symptoms, or bringing up concerns, your insights can help...reactions37repliesTips & AdviceHealthcare TeamCommunity Support
Tinnitus...I developed tinnitus (ringing in the ears) and when looking up information on the internet I found that it is fairly common for people with AS to develop this symptom...reactions1replySymptoms
How often have you had X-rays / MRI since diagnosis?...Hey everyone, So, I have my check up with my rheumatologist next week. My biologics are working well and although I still have symptoms, they are incomparible to pre biologics...reactions4replies
The Good, Bad, and Ugly of Specialty Pharmacies...For the last 6 months, I’ve been navigating the special pharmacy world extensively. For a variety of reasons, my health insurance benefits changed 3 times in that span of time...reactions1comment
A Stop on the Long Road...I finally found my stride. Everything is great (or as great as it could be). My body is holding up, my joints aren’t screaming, my energy is good, and I’m...reactions5comments
Advice on taking biological therapy and having chest infections and viral infections....Hi everyone,I have just seen the nurse and I have another infection, I am struggling with everything. In less than a month I have another infection, 5 infections and third...reactions22repliesAnkylosing SpondylitisComplimentary TreatmentSide Effects
Looking for house slippers; any suggestions? ...Hello! We recently moved from a carpeted home to a hardwood home. Pair that with AS and goodness my feet hurt! I use to just wear Snoozies but it seems...reactions5repliesAnkylosing SpondylitisTips & Advice