Mixed results ...Hi all, I’m looking for your experience and feedback please. Around 2 years ago I was diagnosed with AS although my worst symptoms are in the tendons. I’ve been on...reactions10replies
The Sleepless Nights Continue...The sleepless nights have been going on now for a couple weeks again. They just keep getting harder and harder to get through. The sleepless nights have been not only...reactions15comments
Mouth Sores...Hello! I'm wondering if anyone else has mouth sores in addition to their other symptoms? For 6 months now, since my last major flare, the sores in my mouth have...reactions9repliesSymptoms
Problems Along Entire Spine...Diagnosed with nrAxSpA in 2022. Had prior thoracic spine surgery in 2019 on T10-T11. Lower back, SI joint and hip pain have been constant for many years. Now, i just...reactions4replies
Applying for Disability Benefits...I've had axial spondyloarthritis and fibromyalgia for about four years now. Well, that's when I was diagnosed. In truth, I've probably had it for closer to a decade. I first...reactions1comment
What You Don’t See: Living With an Invisible Illness...Living with an invisible illness has taught me a couple of things: (1) people make assumptions about my condition based on what their eyes see; and (2) that I need...reactions9comments
Update and questions...Been gone awhile. Last i posted several months ago, i was on Humira and doing well. Not long after I took myself off due to multiple infections (Covid twice, kidney...reactions1replyNon-Radiographic Axial Spondyloarthritis
Walking Along With Ankylosing Spondylitis...Do you worry a lot? Are you distracted often by ankylosing spondylitis (AS)? Are you caught up in medical issues and miss other, more essential things? Well, I do. I...reactions1comment
I feel horrible after working out ...Hello, I’m newly diagnosed with NR-AXSPA. About a month ago, I started doing strength training. It’s been a while since I’ve done any kind of training so I’m being pretty...reactions5repliesExerciseFlares
I Am Giving Acupuncture a Shot for My Chronic Pain and Fatigue...I recall meeting people with chronic pain telling me that they benefited from acupuncture treatment. I am naturally curious and always keen to try something new, particularly if it can...reactions4comments
My First Time Attending an AS Support Group...This month I attended an online meet-up of my local AS support group. It was the first time I’ve ever done something like this, even though I’ve known these groups...reactions1comment
Finding Balance in Pushing Yourself and Resting with Work...Over the last 6 months, I have been diligent in getting myself back into a consistent work schedule. I work from home, so it can be a challenge to stick...reactions2comments
I’ve Been Doing Better...I realized I haven’t written an article in months. There are multiple reasons for that. I haven’t really had any new ideas for writing, nor have I felt motivated to...reactions1comment
Share your tips for self-care......Your experience matters! Please share the valuable self-care tips that have helped you manage your condition. Your insights could make a significant difference in the lives of others facing similar...reactions3repliesCommunity SupportTips & AdviceCoping
Medications...I’m not interested in taking biologics. Anyone here manage their axspa without it? If so, what do you take instead?...reactions5replies
Flares Still Happen, and I Accept Them as Messengers...I have now been living with AS for the past 11 years. At the beginning, flares came very frequently, and in an intense way. It felt like anything could trigger...reactions4comments
How I Manage Wildfire Season With "Pre-Existing Health Conditions"...It is the worst wildfire season in history. That’s the rhetoric I keep hearing from the media. In all fairness, it may be so on a national or continental scale...reactions1comment
What are your tips for preparing for a visit with your doctor? ...Share your best tips for preparing for a doctor's visit when dealing with AS/AxSpa. Whether it's gathering medical history, noting down symptoms, or bringing up concerns, your insights can help...reactions37repliesTips & AdviceHealthcare TeamCommunity Support
Tinnitus...I developed tinnitus (ringing in the ears) and when looking up information on the internet I found that it is fairly common for people with AS to develop this symptom...reactions1replySymptoms