Brain Fog is an issue!...Now almost ten years into AS, people around me still do not understand Brain Fog as something many of us grapple with. Recently our daughter and her husband visited us...reactions25repliesAnkylosing SpondylitisAxial Spondyloarthritis Coping
How well do you feel your physician understands your AS/AxSpa?...On a scale of 1-10 (1 = not well, 10 = really well), how well do you feel your physician understands your AS/AxSpa?...reactions12repliesHealthcare TeamVentingAxial Spondyloarthritis
Husband’s family live 350 miles away...Today my husband tells me he has plans to meet his kids all four in one place on Saturday, I don’t go as I can’t travel and they don’t get...reactions1replyCommunity Support
Sleepless Nights Continue Continuously...Sleepless nights are something I been writing a lot about. It's part of the biggest struggle I've been having. I know I am not alone on this one. As going...reactions3comments
The Four Minute Mile: Setting AxSpa Goals...The four minute mile--many people know how the story goes. No one was able to run a sub 4-minute mile and it was deemed impossible, until one day somebody named...reactions2comments
3 Ways Ankylosing Spondylitis Has My Life MUCH Better...When we think about our lives with ankylosing spondylitis (AS), it can sometimes feel like we're battling eternity. An eternity of chronic pain, stiffness, fatigue, all of the comorbidities, doctors...reactions2comments
6 Arthritis Self-Care Touchstones...Many years ago people tested the authenticity and purity of silver and gold by dragging samples over special stones. The resulting color of the touchstone’s mark verified the metal’s content...reactions1comment
Is it Uveitis?...Hi all, first time poster. I’m currently being worked up for autoimmune and narrowing down to seronegative spondylarthropathies. Last week, I started have weird symptoms in my right eye. Lid...reactions6repliesSymptoms
Navigating Autoimmune Healing Without Succumbing to Dietary Fads...In today's society, the prevalence of autoimmune conditions, such as ankylosing spondylitis (AS) and axial spondyloarthritis (axSpA), is rising. These conditions, affecting millions worldwide, require careful management to alleviate symptoms...reactions2comments
Health Anxiety and My Axial Spondyloarthritis...Over the past few months, I have struggled to cope with my health anxiety. On some days it's just as prevalent as my chronic pain conditions. When I was younger...reactions1comment
Night time inflammatory back pain and tradional DMARDS...I would like to know if anyone has had success with traditional DMARDS (Sulphasalazine, methotrexate etc and managaing back/spine pain which generally starts in the 2nd part of the night...reactions3repliesAnkylosing SpondylitisSleepTreatment
ankylosing spondylitis ...Hi how are you? i was diagnosed almost 2 years ago after suffering for years... i was put on hulio 40mg weekly for 6 months worked like a dream, until...reactions1replyAnkylosing SpondylitisAxial Spondyloarthritis
Bad Air Quality, Wildfires, and Flare-Ups...Living with a chronic condition like AxSpa can be challenging on its own, but when external factors exacerbate the symptoms, the struggle intensifies. Keegan, my husband, has been battling AxSpa...reactions2comments
RA,AS, neurological symptoms? ...Hello! I am new to the forum and just started going through with some general search information. I have had RA for 17 years and was recently diagnosed with AS...reactions5replies
Have you used JAK inhibitors? ...Have you used JAK inhibitors like Xeljanz® or Rinvoq®? Tell the community about your experience below! Have a question about JAK inhibitors? Ask below!...reactions11repliesTreatmentCommunity SupportFlare Management
Making Camping Trips Doable With AS...One of our family’s favorite pastimes has always been going away camping. I’ve missed quite a few of those trips over the years thanks to AS. It always tugs at...reactions2comments
Finally Meeting Some Super Spoonies...When I was first diagnosed with an arthritic condition, I felt very confused and alone. I always thought arthritis was a bit of knee pain that my grandmother used as an excuse to get out of taking me to the park...reactionscomments
Do you think stress could have triggered Axial SPA...Hi all, I have posted on here before desperately searching for advice regarding diagnosis (I realise none of us are medical professionals) but just wanted advice. I was just wondering...reactions8repliesMental HealthAxial Spondyloarthritis Caregiving
Base of skull pain and inflammation causing migraines...Does anyone else experience the base of their skull getting so inflamed causing a ton of pain? It’s like you have two golf balls at the base of your skull...reactions4repliesAnkylosing SpondylitisTreatmentTips & Advice
Do biologics really work??...Hi I am 62 live in the uk I got diagnosed with AS last year,i probably had it years ago but didn’t know as was working, going to the gym...reactions16repliesAnkylosing Spondylitis
