Back to Work Advice...Hello AS family, I got a new job! It will be my first full-time, in-office gig since my diagnosis. It's not perfect, for instance entrance to the office is up...Reactions0reactionsComments11 repliesCopingWork Accommodations Tips & Advice
Making Planning Work For You...Life is a tug of war between disruptive chaos and the things we want and need to do. Lots of cool things happen along the way, but this struggle is...Reactions0reactionsComments2 comments
Pain Circles...Hi Everyone! I'm new to this world. I've yet to be officially diagnosed with AS but I've done quite a bit of reading and had many disucssions with my GP...Reactions0reactionsComments10 repliesAxial Spondyloarthritis ExerciseFlare Management
A Year of Physiotherapy...I went to physiotherapy from February 2022 to February 2023. Prior to starting physio, I was unable to be active. I could barely walk or stand for more than five...Reactions0reactionsComments2 comments
Si joint injection ...I am back with good and bad news. The good I made it through my si joint injection. Wasn’t as bad as I thought it was going to be. let’s...Reactions0reactionsComments3 replies
Keegan Matthews-McGee...Keegan was previously a health leader. Keegan Matthews-McGee is a stay at home dad, living in Philadelphia with his wonderful wife Auldyn and daughter Kaya. Keegan was diagnosed with AS...
Auldyn Matthews...Auldyn is the caregiver of her husband, Keegan, who was diagnosed with Ankylosing Spondylitis in 2014. Auldyn's always known Keegan with pain, even when they started dating over 10 years...
Amy Dolan...Amy was previously a health leader. Amy has developed her love for yoga and her expertise in physical therapy for over 20 years. She graduated from Ithaca College and has...
Ben Falchi...Ben was previously a health leader. Ben Falchi is a seasoned real estate professional who lives with his partner, Lisa Marie Basile (an ankylosing spondylitis patient), in NYC. In his...
Jayson Sacco...Jayson was previously a health leader. Jayson Sacco was diagnosed at age 14 with Ankylosing Spondylitis. This was before internet or any of the extensive knowledge or medications available now...
Katie Phares...Katie was previously a health leader. I am 27 years old and was diagnosed with AS in February of 2019. However, I have had autoimmune and inflammatory type symptoms since...
TK Sellman...TK Sellman, RPSGT CCSH is a career journalist (Columbia Chicago, ’90). She was diagnosed with idiopathic hypersomnia in 2010, which inspired her to go back to school to become a...
Nira Hyman...Nira was previously a health leader. Nira A. Hyman is a published essayist. She’s a lifelong writer with a BA in English from Yale University. She’s committed to spreading AS...
Brooke Abbott...Brooke was previously a health leader. In 2009, Brooke Abbott traded in her production notebook for a diaper bag with the birth of her son, Jaxon Lee Coltrane. While navigating...
Alastair Goodwin...Alastair was previously a health leader. Originally from New Zealand at the age of 34, he is currently living in Copenhagen with his partner. Alastair was diagosed with AS 2...
Small Goals for Living with AS and AxSpa...As we navigate the challenges and triumphs of living with AS and AxSpa, it's important to focus on setting achievable goals that contribute to our overall well-being and quality of...Reactions0reactionsComments0 repliesAxial Spondyloarthritis CopingCommunity Support
Cannabis strain for severe pain ...Heya, I'm so tired with finding the best cannabis CBD hybrid (preferable 1:1 ratio) strain for both - day and night use. I suffer from: - ankylosing spondylitis, - fibromyalgia...Reactions0reactionsComments15 repliesAlternative TreatmentAwarenessMedical Marijuana
Progression and biologics...Hi All, So I had a recent MRI don’t on my pelvic area. There is slight progression with more bone spurs. Im currently on Humira but my doctor wants me...Reactions0reactionsComments3 replies
GI issues, abdominal discomfort and flank/back rib pain...Does anyone suffer from this with AS? I am still in the "un-diagnosed realm" but starting to suspect these mystery abdominal flare-ups (this current one has been going on since...Reactions0reactionsComments10 repliesAxial Spondyloarthritis CopingTips & Advice
How Goal Setting Can Help Us Self-Manage Chronic Illness...As a health coach most of my time is spent working with people on making positive behavior change. Following a diagnosis like AS, a lot of people look to improve...Reactions0reactionsComments4 comments
