Reasons To Date A Spoonie...Let’s be honest - dating with a chronic illness is tough. A quick glance at my tragic love life would more than confirm this fact. We are already in a toxic relationship with...reactionscomments
AxSpA Has Made Me a Calmer Person...I used to be an extremely busy, anxious, workaholic. I was a high school Drama teacher & head of my school’s Music and Drama departments. I would beam when people...reactions2comments
Food is Medicine: What I Eat In A Day...I’ve now followed an integrative lifestyle approach to manage my AS for several years. Nutrition, movement, exercise, stress management, mindset, mindfulness and connection (with myself, nature, others) are all essential...reactions1comment
Traveling to third world countries tips?...Have you traveled to places like Mexico or the Dominican Republic? I know the water is not good. So what do you do? Even before being on a biologic I...reactions2repliesTravelAnkylosing Spondylitis
Misdiagnosed With Ankylosing Spondylitis...I will be saying farewell to this amazing group. I have been battling what my doctors and I thought was advanced AS. I am 65 years old and was diagnosed...reactions18comments
How I’ve Changed...I think I’ve had AS forever. When I was 16 or so, my hips clicked all the time. I was told I have the gene HLA-B27 in my early 30s...reactions1comment
Embracing the Shadows: A Journey Through Ankylosing Spondylitis...In a land shrouded by melancholy’s embrace, there dwelt a man whose spirit had succumbed to shadows. His once agile frame now burdened by an affliction, an unyielding pain that...reactions2comments
Chiropratlctor Disaster...Before I had a clue of this awful illness my back was killing me. Out of options, Ithought I would try a chiropractor as my wife swears by them. So...reactions2comments
Lost on Problem, Added Another...This is my condensed story on how I got AS, diagnosed and live with it on an hourly basis. I am now 63, retired and submitted for disability, refused, resubmitted...reactions1comment
I Would Love To Have a Proper Diagnosis...I find myself envying those with a diagnosis. I am pretty sure that I tick all the boxes for non-radiographic axialspondyloarthritis. It stated 50 years ago with back pain and...reactions1comment
Finally...Progress...So, today I saw a sub GP (mine is off taking her boards). The practice I go to is one in which you see a resident who is monitored by...reactions3replies
Living With AxSpa and Peripheral Spondyloarthritis ...When symptoms occur mostly in places other than the spine, the condition is called peripheral spondyloarthritis. There are several types of pSpA, including: -Psoriatic arthritis (PsA) -Reactive arthritis -Arthritis with...reactions30repliesPeripheral SpondyloarthritisTips & AdviceCoping
How to Organize Your Medical Records...One aspect of self-management we don’t often hear about is how to store and organize the information we receive in relation to our health. Lab tests, x-rays, prescription paperwork, referral...reactions1comment
Becoming My Own Healthcare Advocate...One of my earliest memories is of the doctor's visits my mother used to attend with my grandmother. I remember my mother taking notes and asking the doctors many questions...reactions2comments
Tips for Requesting Support ...Share your experiences, ask questions, and discover effective strategies for communicating your needs with loved ones and healthcare professionals. Together, we can make navigating this journey a bit smoother and...reactions18repliesFriends & FamilyTips & AdviceCommunity Support
Mixed results ...Hi all, I’m looking for your experience and feedback please. Around 2 years ago I was diagnosed with AS although my worst symptoms are in the tendons. I’ve been on...reactions10replies
The Sleepless Nights Continue...The sleepless nights have been going on now for a couple weeks again. They just keep getting harder and harder to get through. The sleepless nights have been not only...reactions15comments
Mouth Sores...Hello! I'm wondering if anyone else has mouth sores in addition to their other symptoms? For 6 months now, since my last major flare, the sores in my mouth have...reactions9repliesSymptoms
Problems Along Entire Spine...Diagnosed with nrAxSpA in 2022. Had prior thoracic spine surgery in 2019 on T10-T11. Lower back, SI joint and hip pain have been constant for many years. Now, i just...reactions4replies
Applying for Disability Benefits...I've had axial spondyloarthritis and fibromyalgia for about four years now. Well, that's when I was diagnosed. In truth, I've probably had it for closer to a decade. I first...reactions1comment
