The Struggle for Sleep With AS...My AS has caused endless disruption to my sleep. At my worst, I couldn’t sleep for more than three hours at once. I’d wake up with so much pain and...reactions2comments
Why I Stepped Back From This Community for a Break...I've been a devoted part of this community for many years—as a writer, moderator, and Patient Leadership Council member. I've even been nominated (and was a finalist in two categories)...reactions1comment
Getting the correct diagnosis ...I'm interested on hearing your stories. How many of you were misdiagnosed prior to your A S diagnosis?...reactions7repliesAnkylosing Spondylitis
finally on the verge of a diagnosis...hello! i've been dealing with chronic pain and spinal issues for about 20yrs now. when i started experiencing a notable degeneration in my joints in 2020, i was referred to...reactions5repliesCommunity SupportNon-Radiographic Axial SpondyloarthritisNewly Diagnosed
Managing Holiday Gatherings With AxSpa...I left France 15 years ago and I have lived in the UK ever since, but I visit for the holidays. Those who left their hometown know what it means...reactions5comments
I have AS , Neuropathy, Chronic Pain & RLS...RLS = Restless Leg Syndrome. Yesterday afternoon My leg started kicking which is an odd time, usually at night. I took all my Meds and wouldn’t Stop ,so took everything...reactions32repliesAlternative Treatment
4 Ways to Overcome Painsomnia...Insomnia, or the inability to get to sleep or stay asleep, affects millions of people worldwide. For many, chronic pain is a significant contributor to their insomnia. When you're in...reactions13comments
What are you thankful for?...Even amidst the challenges posed by axSpa, there remain compelling reasons to be thankful. What are you thankful for?...reactions5repliesCopingMental HealthCommunity Support
Burning sensation ...Hi. Im new to this group. I have burning sensations all over my legs and arms. My rheumatologist just dismisses me. Does anyone else experience this?...reactions3repliesAxial Spondyloarthritis
Taking Steps To Make Life With AS Easier...My planning and organization skills have always left a lot to be desired. I often find myself going on holiday with zero plans on what I am going to do...reactions2comments
Pain on walking...Hi everyone. I am new here! Only formally diagnosed yesterday, after at least 7 years of being dismissed. I am laid wide awake uncomfortable in bed and questioning my diagnosis...reactions15repliesAxial Spondyloarthritis
How Axial Spondyloarthritis Led Me to My Career...When I was 18, I was only one year into my university degree and nowhere near knowing what I wanted to “do with the rest of my life.” I was...reactions1comment
Pain Level...When asked, “On a scale of one to ten…” We have all heard that many times. However, that’s hard to answer. I was diagnosed in 1978 and have lived with...reactions2repliesMisunderstood Tips & AdviceCoping
My Experience With Injectable and Infusion Biologics...I’ve been on biologic drugs for my ankylosing spondylitis for 6 years now. I’ve been on 4, actually. Inflectra (infusion), Humira (injection), Cosentyx (injection), and Remicade (infusion). Now that I’ve...reactions3comments
What is the scariest symptom or complications of axSpa?...Getting an axSpa diagnosis and experiencing the symptoms can be truly frightening. In your opinion, what is the scariest symptom or complication of axSpa?...reactions25repliesAnkylosing SpondylitisSymptomsAxial Spondyloarthritis
Coping With Others’ Judgments and Emerging as We Are...We recently moved into a new community. We've been in our new home for over a year now. Through healing, there's an urge to connect with family, friends, and with...reactions9comments
The Differences Between Injectable and Infusion Biologics for AxSpA...Axial spondyloarthritis (axSpA) is a type of inflammatory arthritis that mainly affects the spine and pelvic joints. Biologics – medicines made from living organisms – can be a powerful treatment...reactions1comment
Injection v Infusion...My doctor and I are discussing switching from my Cosentyx injection to a monthly infusion. We believe the “one dose fits all” of the injections may be too harsh on...reactions2repliesAnkylosing SpondylitisAxial Spondyloarthritis Treatment
My Experience of Trying Acupuncture For My AS...I’ve been receiving care from a chronic pain clinic, and a few months ago they offered me acupuncture. I had a telephone consultation with the acupuncture service to check I...reactions8comments
My Biologic Keeps My Flares Away...I got a reminder this summer about how effective my biologic is at keeping my flares at bay. To give a bit of context to this story, I have been...reactions2comments
