How Axial Spondyloarthritis Led Me to My Career...When I was 18, I was only one year into my university degree and nowhere near knowing what I wanted to “do with the rest of my life.” I was...Reactions0reactionsComments1 comments
Pain Level...When asked, “On a scale of one to ten…” We have all heard that many times. However, that’s hard to answer. I was diagnosed in 1978 and have lived with...Reactions0reactionsComments2 repliesTips & AdviceCopingMisunderstood
My Experience With Injectable and Infusion Biologics...I’ve been on biologic drugs for my ankylosing spondylitis for 6 years now. I’ve been on 4, actually. Inflectra (infusion), Humira (injection), Cosentyx (injection), and Remicade (infusion). Now that I’ve...Reactions0reactionsComments3 comments
What is the scariest symptom or complications of axSpa?...Getting an axSpa diagnosis and experiencing the symptoms can be truly frightening. In your opinion, what is the scariest symptom or complication of axSpa?...Reactions0reactionsComments25 repliesSymptomsAxial Spondyloarthritis Ankylosing Spondylitis
Coping With Others’ Judgments and Emerging as We Are...We recently moved into a new community. We've been in our new home for over a year now. Through healing, there's an urge to connect with family, friends, and with...Reactions0reactionsComments9 comments
The Differences Between Injectable and Infusion Biologics for AxSpA...Axial spondyloarthritis (axSpA) is a type of inflammatory arthritis that mainly affects the spine and pelvic joints. Biologics – medicines made from living organisms – can be a powerful treatment...Reactions0reactionsComments1 comments
Injection v Infusion...My doctor and I are discussing switching from my Cosentyx injection to a monthly infusion. We believe the “one dose fits all” of the injections may be too harsh on...Reactions0reactionsComments2 repliesAxial Spondyloarthritis Ankylosing SpondylitisTreatment
My Experience of Trying Acupuncture For My AS...I’ve been receiving care from a chronic pain clinic, and a few months ago they offered me acupuncture. I had a telephone consultation with the acupuncture service to check I...Reactions0reactionsComments8 comments
My Biologic Keeps My Flares Away...I got a reminder this summer about how effective my biologic is at keeping my flares at bay. To give a bit of context to this story, I have been...Reactions0reactionsComments2 comments
Technology as a Double-Edged Sword...Picture this: enjoying brunch with colleagues, where you’re excitingly exchanging anecdotes, insights, and perspectives over pancakes. Slowly, our conversation turned from discussing the latest bestseller to something more profound—how technology...Reactions0reactionsComments2 comments
It Finally Happened: I Fractured My Spine...I spent about half a year thinking I was experiencing a recurrent, terrible axial spondyloarthritis (AxSpA) flare-up only to learn that I had, in fact, a spinal fracture (spondylolysis). The...Reactions0reactionsComments8 comments
Ankylosing Spondylitis or lung cancer?...Hi all, I have just joined this forum because my dad is having some tests at the hospital. A couple of weeks ago, he went for a PET CT, arranged...Reactions0reactionsComments1 replies
Insurance is Crucial for Patients With AxSpA...I was informed I had a gene mutation a few months ago that could contribute to more severe health complications down the line. After speaking with my healthcare team, we...Reactions0reactionsComments2 comments
Handwriting is hetting horribble...As my back and shoulders curve, I have noticed that my handwriting is getting worse and worse. Has anyone else experienced this?...Reactions0reactionsComments2 repliesSymptoms
Bracing...My back is starting to curve more than I expected. In one of the articles I read, using a brace may help slow down progression of the shoulders. Has anyone...Reactions0reactionsComments14 repliesSymptomsAssistive Devices
The Never Ending Flare...I'm in another flare (again). How long will this one last? The days have passed so fast. I forget again what normal feels like. My days are high in pain...Reactions0reactionsComments17 comments
Difficulty in Finding Diagnosis...Hello everyone! I'm from Volgograd, Russia. I'm 39 years old. I was diagnosed three months ago, but it was a very difficult journey. It started in January 2024. I felt...Reactions0reactionsComments5 comments
Learning to Manage AxSpa is a Marathon...They say “Life is a marathon, not a sprint.” The meaning is that we shouldn’t get hung up on the little events we experience. Life goes on for a long...Reactions0reactionsComments1 comments
HEREDITARY HEMOCHROMATOSIS DNA MUT...I have one set of faulty H63D and C282Y has anyone had experience with this any suggestions I'm so confused because there's so many things that it could be...Reactions0reactionsComments3 repliesComorbidities
Health Professionals I’ve Added to My AS Team...Over the years I’ve visited a number of different health professionals to help me manage my axial spondyloarthritis. Some have not proven helpful for me personally (both chiropractic and osteopathic...Reactions0reactionsComments1 comments
