Learn the WIM HOF METHOD to reduce inflammation...15 years ago, I was diagnosed with ankylosing spondylitis (AS), a type of arthritis that causes inflammation in certain parts of the spine and the sacroiliac joint. Since I started...reactions4repliesAlternative TreatmentAxial Spondyloarthritis Ankylosing Spondylitis
Temporary disability in South Africa...I have been put on 6 months temp disability leave by my Rheumie and I have found my employer to be so unsupportive. I am now on my 2nd month...reactions1replyWork & Employment
How I Manage My AxSpa Without Biologics: Nutrition and Movement...2025 marks 10 years since my AxSpa diagnosis! What a journey! Once I got the diagnosis, my rheumatologist suggested strong anti-inflammatory medication, which helped with symptoms at first, but after...reactions4comments
New Non-opioid Pain Pills Approved By FDA...I thought this is excited News and wanted to share it with you . It will Allow anyone who were afraid to take Opioids an option to help with their...reactions2replies
Reviews of bio meds ( RIVOQ) ...Hello, i am new here, i was diagnosed about 5 years ago which they said was called chronic Bilateral Sacroiliitis and on MRI it showed unactive, 4 years later i...reactions3repliesAnkylosing SpondylitisCommunity SupportAlternative Treatment
Headaches ...Since going off Humira 3 years ago I’ve been getting headaches at night that seem to be referred from chronic upper thoracic spine and neck pain. Headaches are worst after...reactions2replies
Being Unable To Exercise As I Want...Something that has been difficult for me ever since becoming chronically ill with AxSpA is the change of lifestyle – particularly working out/exercising. Before becoming sick, I was doing Insanity...reactions17comments
Hearing Loss...I've recently been dealing with a new comorbidity possibly related to spondyloarthritis. I have mixed hearing loss. One ear is much worse than the other with sensorineural hearing loss. I...reactions4repliesCopingAnkylosing SpondylitisComorbidities
A New Year, New Beginnings...Feeling quite stressed and unsure of my future living with AS. Managing anxiety and stress, I recently started a new meditation app to help ease symptoms. As the New Year...reactions1replyAxial Spondyloarthritis Ankylosing SpondylitisAlternative Treatment
My First Relationship (and Break Up) With AS...Up until recently, I had never been in an official romantic relationship. I was in my "having fun stage" before chronic illness turned my life upside down at the age...reactions6comments
Biologics not working....So after 7 years of my AS diagnosis, 6 years of changing my diet, and now at least 4 years of biologic medications. Methotrexate was like carpet bombing my entire...reactions5repliesTreatmentSymptomsSide Effects
What Health Coaches Sometimes Get Wrong About Chronic Conditions...I was scrolling through social media when I stumbled upon a quote from a health coach that read, "You can make time for health or illness. Those are your choices."...reactions2comments
explaining why you miss parties...This is a very good question, I have tried different things and I struggle with an answer, If I just don´t show up everyone used to ask why is she...reactions1replyFriends & Family
Christmas Gifts For People With AS...We are deep into the season of giving and it's got me thinking about what kind of things would make good gifts for those of us with chronic illnesses instead...reactions2repliesTips & AdviceAssistive DevicesCoping
The Struggle for Sleep With AS...My AS has caused endless disruption to my sleep. At my worst, I couldn’t sleep for more than three hours at once. I’d wake up with so much pain and...reactions2comments
Why I Stepped Back From This Community for a Break...I've been a devoted part of this community for many years—as a writer, moderator, and Patient Leadership Council member. I've even been nominated (and was a finalist in two categories)...reactions1comment
Getting the correct diagnosis ...I'm interested on hearing your stories. How many of you were misdiagnosed prior to your A S diagnosis?...reactions7repliesAnkylosing Spondylitis
finally on the verge of a diagnosis...hello! i've been dealing with chronic pain and spinal issues for about 20yrs now. when i started experiencing a notable degeneration in my joints in 2020, i was referred to...reactions5repliesCommunity SupportNon-Radiographic Axial SpondyloarthritisNewly Diagnosed
Managing Holiday Gatherings With AxSpa...I left France 15 years ago and I have lived in the UK ever since, but I visit for the holidays. Those who left their hometown know what it means...reactions5comments
I have AS , Neuropathy, Chronic Pain & RLS...RLS = Restless Leg Syndrome. Yesterday afternoon My leg started kicking which is an odd time, usually at night. I took all my Meds and wouldn’t Stop ,so took everything...reactions32repliesAlternative Treatment
