Undiagnosed but in pain...For context I live in the U.K. and while the NHS are brilliant and free, the waiting lists and pressure on them leaves them limited in some ways. I am...Reactions0reactionsComments5 repliesAxial Spondyloarthritis Mental HealthTips & Advice
Reflecting on Life When My AS Was Undiagnosed...As a lot of us do around new year, I was reflecting on 2023, which got me thinking about life now compared to before I was diagnosed. I was diagnosed...Reactions0reactionsComments1 comments
Does anyone also suffer with Osteitis Pubis?...Hello, I am hoping for a referral to a Rheumatologist for more investigations (I am not diagnosed with AS) but my MRI scan has showed inflammation in my lumbar spine...Reactions0reactionsComments4 repliesDiagnosis
Navigating AxSpa Research and New Discoveries...Did you know that researchers discovered the connection between HLA-B27 and AxSpa in the early 70s? And that biologics were introduced in the late 90s and early 2000s? I didn’t...Reactions0reactionsComments1 comments
Has anyone been told the reason for their pain is DDD and had a spinal fusion?...Hi all - looking for some answers/ help etc Lived with chronic pain in my spine and some on off pain in my knee for 15 years ( since the...Reactions0reactionsComments7 repliesAxial Spondyloarthritis
How do you deal with heel pain?...I was wondering how y’all deal with heel pain? Two months ago I had a pulmonary embolism and I am now on blood thinners and can no longer take NSAIDs...Reactions0reactionsComments1 repliesSymptoms
Building a Firm Self-Care Foundation...Self care is about getting the most important parts of our lives going in the right direction instead of fighting each other. Think about things like work-life balance, diet and...Reactions0reactionsComments1 comments
Bed topper for AxSpa...Hi I was wondering if anyone had any recommendations for a bed topper to assist with pain and discomfort whilst sleeping. I find my sleep is quite disturbed and wake...Reactions0reactionsComments3 repliesSleepPainsomnia Tips & Advice
Navigating the Maze: Inconclusive Tests and Life Beyond Axial Spondyloarthritis...Your results came back inconclusive. When I heard those words, I couldn't help but feel disappointed and a twinge of anger. After months of waiting to hear about the results...Reactions0reactionsComments4 comments
Re-Thinking a Career That Works for AS...Finding a job that works for AS can be hard. I recently had a coaching client who realized the job he once loved was making life with AS worse. It...Reactions0reactionsComments5 comments
Tips For Surviving The Winter With AS...I’ve never been the biggest fan of winter. Deep down I’m a massive child who just wants to wear shorts and a football shirt. All this freezing outside in a big coat...Reactions0reactionsComments9 comments
Will you take our In America survey and help others understand the impact of AxSpA?...To learn more about the challenges of living with AxSpA, we are conducting our In America survey. By taking our survey, you can bring awareness to the realities of life...Reactions0reactionsComments2 repliesResearch & Clinical Trials
The Art of Unwinding: Taking a Solo Trip to a Cabin to Destress...Being a stay-at-home parent, living with AxSpa, and dealing with fibromyalgia isn’t just enough for someone’s plate, but makes one’s plate overflowing. Keegan, my husband with AxSpa, recently celebrated his...Reactions0reactionsComments2 comments
How I Have Improved My Sleep With AxSpa...To kick this blog off, I’ll mention that this journey to improve my sleep came from having a lot of fatigue. Although I could sleep well and still feel fatigue...Reactions0reactionsComments1 comments
Finally Relief!...My last update spoke about my new care team. Wanted to quickly update my new treatment success. I’m diagnosed now with AxSpa (NR), fibromyalgia and Sjogren’s. I have completed about...Reactions0reactionsComments3 repliesComplimentary TreatmentComorbiditiesNon-Radiographic Axial Spondyloarthritis
How can we go into remission and Live easy Life #Stand4AS...When I was 16 I felt pain in my lower back. Day by day I feel more pain whenever I sit for a long time in school or at home...Reactions0reactionsComments1 repliesAxial Spondyloarthritis
Keeping A Schedule...I'm a teacher. When I was on summer break this year, I missed a few things. My students, my co-workers, a steady salary.. But what I miss the most is...Reactions0reactionsComments2 comments
Active 3 days agoFamily history ...Hi everyone I know we all have our different views on biology medicine and would never tell anyone or expect anyone to tell me what to do. I live in...Reactions0reactionsComments112 repliesAxial Spondyloarthritis
The Combo of Getting Sick and Having AxSpa...When I try to tell my friends and family that I'm vulnerable to getting sick, they act like I'm whining and complaining again. Sometimes they say: "Everyone gets sick in...Reactions0reactionsComments2 comments
