Investing in Tools That Help Make Life Easier With AS...Someone once told me to never skimp when buying the tools you’ll use the most. This has taken on a new meaning for me thanks to my axial spondyloarthritis. I’ve...reactions16comments
Don't Let What You Have Define Who You Are...I have a dual diagnosis plus a genetic diagnosis: ankylosing spondylitis (AS), Ehlers-Danlos syndrome (EDS), and secondary progressive multiple sclerosis (MS). I do not let my diseases define me. Friends...reactions2comments
Histamines, Autoimmune Conditions, and Axial Spondyloarthritis...Histamine is a chemical that plays a key role in allergies. It is also involved in inflammation and autoimmune conditions. When it is released from immune cells, histamine triggers events...reactions1comment
My Most Valuable AxSpa Strategy Is Pacing...After my diagnosis with AxSpa one doctor told me that I needed to pace myself to manage chronic pain and chronic fatigue. I had no clue what pacing was and...reactions8comments
Ask This to Your Loved One With AxSpa..."How are you feeling today?" "How are you really feeling today?" The question I wish someone would reach out and ask me more often. So many of us with this...reactions1comment
Was it brain fog?...I’ve commented previously about brain fog and here I am again. Preface: Since last October I have taken part in a preparatory class to become a member of the Catholic...reactions5replies
Neck pain ...I've been diagnosed with axel Spondyloarthritis and have been getting neck pain so bad that it makes me physically sick ill become nauseous and then end up throwing up and...reactions12replies
Finding a New Biologic After the First Fails...Just when things felt like they were getting steady with Keegan’s treatment plan, that all went out the window. We’ve been through a long diagnosis, multiple treatment plans, and a...reactions1comment
Recognizing When I’m Having a Flare Up...Living with AS means dealing with flare ups. I am not symptom free, so the level of symptoms I am used to day to day is what I refer to...reactions3comments
Biologics (humira) and food intolerance ...I've been diagnosed with Peripheral Spondyloarthritis and was wondering if anyone who started a biologic has noticed any improvements in their gut health. I've had severe gut problems for the...reactions19replies
My Mystery Skin Issues...Sometimes I think my immune system thinks it’s a Pokemon trainer – when it comes to health conditions it feels like it’s gotta catch ‘em all! Until recently, the only...reactions1comment
Can I have a magnesium salt bath?...I am on Rinovq i’m have read that you cannot ingest magnesium whilst on this medication would a magnesium salt bath be okay I can’t seem to find any information...reactions2repliesAxial Spondyloarthritis Alternative TreatmentAnkylosing Spondylitis
Surgical Procedure That Actually Helped...I finally found a spine pain management doctor who was actually interested in resolving my lumbar agony. He did a lot of testing with injections and imaging. He had a...reactions1comment
Share your favorite AxSpa-related meme! 😆 ...Let's have some fun! Living with AxSpa is a daily challenge, so it's important to find reasons to smile and laugh along the way. Share your favorite meme that resonates...reactionsrepliesCopingVentingCommunity Support
Medication experiences...I was wondering what medication people are on that has helped with pain and stiffness? I have been given a choice of three types, the Rinvoq is cheaper and more...reactions5repliesAwarenessAnkylosing SpondylitisSide Effects
Balancing Understanding and Boundaries With Friends and Family...Living with an autoimmune condition like axial spondyloarthritis (axSpA) can be a challenging journey, filled with physical and emotional hurdles. Sometimes, the well-intentioned advice from friends and family members doesn't...reactions5comments
4 Surprising Ways to Combat Brain Fog...The most challenging aspect of living with axial spondyloarthritis (AxSpA) for me is dealing with brain fog, especially as a middle school teacher who values intellect. To mitigate the effects...reactions1comment
Living Well With AxSpa: My Best Tips...I've been living with this chronic illness now for many years. I believe it started when I was young. Going through high pain days on a daily basis and not...reactions1comment
How do you stay comfortable when you're uncomfortable?...If you suffer from AS, then you probably know the struggle of always trying to make yourself comfortable in almost every situation. What items or methods do you use to...reactions16repliesCopingAssistive DevicesComplimentary Treatment
Making a Difference After Someone's New Diagnosis...This summer, my dad introduced me to an acquaintance he made while playing "pétanque," the famous French boules game. He asked me if I could help that man who recently...reactions2comments
