HLAB27 negative ...So I had some blood work done to see if I Cary the HLAB27 gene and it came back negative. Where do I go from here? Can one still have...Reactions0reactionsComments6 replies
Winter Weather Survival Tips for Those With Chronic Joint Pain...“Winter is coming. We know what is coming with it.” -Jon Snow As Mr. Snow says, winter is coming, and with it, a lot of challenges for individuals living with...Reactions0reactionsComments1 comments
Finally Growing Used to My Bi-Weekly Injections...It has taken over two years, but I am finally growing comfortable with my self-administered injections. In June 2020, I began using adalimumab as my primary treatment. It was the...Reactions0reactionsComments1 comments
AxSpa symptoms and menstrual cycle...I have started to have pain in my left hip sometimes since beginning of Summer. It will be on and off, and worse at night or after the night, I...Reactions0reactionsComments3 repliesSymptomsNon-Radiographic Axial Spondyloarthritis
New Year...Hello everyone I just want to wish everyone on here a very happy, healthy New year. Thank you so much for messages, your amazing support which I value so much...Reactions0reactionsComments30 repliesCommunity SupportAxial Spondyloarthritis Ankylosing Spondylitis
Does anyone having extremely bad tendonitis, in elbows, wrists, ankles...My family have no idea what pain Im in. Cant see it, does it exist. What is AS anyway ? Nobody has heard of it and I don't think anyone...Reactions0reactionsComments2 repliesMisunderstood
Balancing rest and activity during a flare...Hi all, I have nr-axspa and am currently in the throes of a 12 day and counting flare up. It’s been so tough, as I know everyone in this community...Reactions0reactionsComments5 repliesAxial Spondyloarthritis
AxSpa and Sicca Syndrome...In the common sides effects of Humira, you can find a long list of things. I think I have Sicca syndrome, including dry eyes and dry mouth. In fact, when...Reactions0reactionsComments9 comments
Remission ...Being recently diagnosed with axial Spondyloarthritis last year I went to my Rumatology Dr and she said that I was in remission and it's been a great two and a...Reactions0reactionsComments3 replies
Doing Better With AS...Doing things can be difficult when you’ve got axial spondyloarthritis and fibromyalgia. Motivation is nothing compared to pain and fatigue. No matter how much I wanted to do things and...Reactions0reactionsComments1 comments
Update Since I've Last Posted...So, a year ago I posted my rheumy at Mayo diagnosed me with AxSpa; however, I recently read his notes where he stated he wasn't sure. However, at my followup...Reactions0reactionsComments3 replies
When Friendships Don’t Survive Your Chronic Illness...Lil and I met at work in our early 20s. She was hilarious and outrageous and we clicked instantly. Going anywhere with her was an adventure. Something spontaneous would always...Reactions0reactionsComments6 comments
Another Year Older With AxSpa...Another year has passed and I made it through. Turning 36 years old, another year of AxSpa by my side. I thought by now things would have been a bit...Reactions0reactionsComments4 comments
Sex and AS: Position Pain Ratings and Tips for Pain Free Passion...Newsflash - people with chronic illnesses and disabilities enjoy sex too! You wouldn’t think it as a lot of the time in society we are kind of desexualised by society...Reactions0reactionsComments3 comments
The Healing Power of Silliness...Any parent of a 4-year-old and 2-year old will admit that things tend to get pretty silly in their house. Add in an AxSpa diagnosis, and silliness becomes a core...Reactions0reactionsComments1 comments
When the Cost of Care Makes Access an Issue...When I was growing up, my family reserved hospital visits for emergencies that couldn't wait until the doctor's office opened in the morning. During that first year of my diagnosis...Reactions0reactionsComments4 comments
Dealing With the Lack of Knowledge of AS in Healthcare...Before I was diagnosed with ankylosis spondylitis, I’d never heard of it. I spent a lot of time researching my condition, then explaining to friends and family what AS is...Reactions0reactionsComments4 comments
When it’s cold? ...I try my hardest to keep warm. I have good days and bad days. Sometimes I don’t know what to do to keep warm. I hate to disturb my partner...Reactions0reactionsComments12 repliesSymptomsCommunity Support
Anyone else have Passive Suicidal Ideations?...I have noticed more PSI as my disease progresses. I already have Anhedonia, but the thought of just dying by some means other than my own doing sounds better lately...Reactions0reactionsComments3 repliesAnkylosing SpondylitisMental Health
My 4 Arthritis Self-Care Basics...Self-care makes up a substantial portion of our quality of life, but like good food, safe shelter, and a healthy environment it often gets less attention than our social life...Reactions0reactionsComments4 comments
