Was it brain fog?...I’ve commented previously about brain fog and here I am again. Preface: Since last October I have taken part in a preparatory class to become a member of the Catholic...reactions5replies
Neck pain ...I've been diagnosed with axel Spondyloarthritis and have been getting neck pain so bad that it makes me physically sick ill become nauseous and then end up throwing up and...reactions12replies
Finding a New Biologic After the First Fails...Just when things felt like they were getting steady with Keegan’s treatment plan, that all went out the window. We’ve been through a long diagnosis, multiple treatment plans, and a...reactions1comment
Recognizing When I’m Having a Flare Up...Living with AS means dealing with flare ups. I am not symptom free, so the level of symptoms I am used to day to day is what I refer to...reactions3comments
Biologics (humira) and food intolerance ...I've been diagnosed with Peripheral Spondyloarthritis and was wondering if anyone who started a biologic has noticed any improvements in their gut health. I've had severe gut problems for the...reactions19replies
My Mystery Skin Issues...Sometimes I think my immune system thinks it’s a Pokemon trainer – when it comes to health conditions it feels like it’s gotta catch ‘em all! Until recently, the only...reactions2comments
Can I have a magnesium salt bath?...I am on Rinovq i’m have read that you cannot ingest magnesium whilst on this medication would a magnesium salt bath be okay I can’t seem to find any information...reactions2repliesAxial Spondyloarthritis Alternative TreatmentAnkylosing Spondylitis
Surgical Procedure That Actually Helped...I finally found a spine pain management doctor who was actually interested in resolving my lumbar agony. He did a lot of testing with injections and imaging. He had a...reactions3comments
Share your favorite AxSpa-related meme! 😆 ...Let's have some fun! Living with AxSpa is a daily challenge, so it's important to find reasons to smile and laugh along the way. Share your favorite meme that resonates...reactionsrepliesVentingCommunity SupportCoping
Medication experiences...I was wondering what medication people are on that has helped with pain and stiffness? I have been given a choice of three types, the Rinvoq is cheaper and more...reactions5repliesAnkylosing SpondylitisAwarenessSide Effects
Balancing Understanding and Boundaries With Friends and Family...Living with an autoimmune condition like axial spondyloarthritis (axSpA) can be a challenging journey, filled with physical and emotional hurdles. Sometimes, the well-intentioned advice from friends and family members doesn't...reactions5comments
Living Well With AxSpa: My Best Tips...I've been living with this chronic illness now for many years. I believe it started when I was young. Going through high pain days on a daily basis and not...reactions1comment
How do you stay comfortable when you're uncomfortable?...If you suffer from AS, then you probably know the struggle of always trying to make yourself comfortable in almost every situation. What items or methods do you use to...reactions16repliesCopingComplimentary TreatmentAssistive Devices
Making a Difference After Someone's New Diagnosis...This summer, my dad introduced me to an acquaintance he made while playing "pétanque," the famous French boules game. He asked me if I could help that man who recently...reactions2comments
What are some websites or books with recipes designed for individuals with AS...I have been looking for healthy food options, specifically recipes that exclude dairy, gluten, sugar, and alcohol. This has led me to explore an anti-inflammatory diet, although I've noticed that...reactions5replies
Finding My First Job Since My AS Diagnosis...Having AS has certainly had a very detrimental impact on my career. I was sacked by my employers once they learned my new medical status and spent the next year re-learning how to walk...reactions11comments
When the Caregiver Hits Rock Bottom...Almost every morning, I wake up at 5am to get ready for work. I pack a lunch for my daughter and hope to get ready and not wake anyone else...reactions1comment
Overcoming Anxiety and Navigating the Future With Axial Spondyloarthritis...If you've recently been diagnosed with axial spondyloarthritis (AxSpA) or another health condition, it's natural to have concerns about the future. I remember receiving my first two health diagnoses; it...reactions2comments
Diagnosis Without an MRI?...Has anyone gotten a diagnosis of AxSpa without an MRI?...reactions3replies
Symptoms of AS Your Doctor Probably Doesn’t Talk About...Axial spondyloarthritis impacts my life in a lot of different ways. Not all of the symptoms I experience are obvious to others. Many of them never get mentioned at my...reactions9comments