Active 4 days agoAnklosing Spondylitis diagnosis ...I have suffered from back pain for years. About 10 years ago I was sent to a Rheumatologist. Due to my symptoms and the fact I do have the AS...reactions1reply
Active 4 days agoMedical alert bracelets ...I bought one for myself recently because my R. SI joint is ⅔ fused and my L. is starting now too. I also have disc degeneration at L4-5 which is...reactions1reply
Active 6 days agoGetting out of bed is excruciating. Anyone have ideas? It’s an hour plus before I stop hurting....reactions1reply
Active 4 days agoMarijuana for pain ...Does anyone know what strains of marijuana is best for pain...reactions4repliesMedical MarijuanaCommunity Support
What I Wish Someone Told Me When I Was Diagnosed With AS...Being newly diagnosed with ankylosing spondylitis was probably the scariest and most confusing time of my life. A condition with a long and spooky-sounding name was thrust on me, and...reactionscomments
Active 4 days agoHow to ask for breakthrough pain meds...I’ve been on my current meds for several years. However I find it doesn’t last the entire time (6 hours) and for the first time I’m running out of meds...reactions3replies
💛 Happy Mother’s Day 💛...Being a mom is already a full-time job. But doing it while managing Axial Spondyloarthritis? That’s a whole different kind of strength. Some days are tough. Some days your body...reactionsrepliesCoping
Injection for AS...Hi Would anyone be able to give me advice on the injection offered for AS please....reactions2repliesAlternative Treatment
Sjogreens or AxiaSpondydis...Hi, I was just dx with Sjogreens and Raynalds last year. Probably had it for years, as I was dx with Fibro years ago. I have the AAB antibody. I...reactions1replyComorbidities
Active 4 days agoWhat do you feel is the biggest misconception about axSpa?...AxSpa is an invisible illness, which means others never really get the full picture of what’s actually happening. What do you feel is the biggest misconception about axSpa?...reactions11repliesAwareness
Anyone have good results with CBD?...I am so sore and stiff. Wondering if anyone has had good results with CBD. Trying to stay away from more opiod pain relievers....reactions1replyAnkylosing Spondylitis
Got my 2nd round of Aria Simponi today...I can't wait to see how I feel in the morning. Hope it last until June!...reactions3repliesAnkylosing Spondylitis
Procedures ...Anyone had cortisone shots and burning nerve ending in their back? If so did it help?...reactionsreplies
Can Alcohol and AxSpa Party Together?...I used to be quite a party animal before I was diagnosed with axial spondyloarthritis! When I studied in France at uni, I would go out on Friday and Saturday...reactions8comments
Active yesterdayEpidural...my pain specialist has added cervical nerve disorder and degenerative arthritis of the neck to my docket. he wants to try an epidural injection to treat the pain in my...reactions4repliesTreatmentAxial Spondyloarthritis Alternative Treatment
RA is making life worse ...I've had OA for years and now I have RA making things worse. Now there's something else?...reactions1reply
Hidden disability ...I am so sick of people judging me for having a blue parking badge. Because I look fine they think I'm fine and I'm not. I have Scwmanns Disease. Ankylosin...reactions3replies
"Blessed by B27"...Hello, my name is Simon, and I am 45 years old. Since 2019, I have been suffering from spinal arthritis with the B27 antigen. It all started with swelling in...reactions9comments
The Marine Story...Today, I am a disabled Marine veteran in my 70s, experiencing pain in my lower and upper back that began in 1975. I became aware of the pain while at...reactionscomments
The Weather Is Changing and I'm in Pain...Last week the temps were in the 50s, then the 30s, and on Sunday, it was 77! It’s going to be 20 and 22 then slowly warm up 🤷♂️ Today...reactionscomments
