Active todayFeeling a little abandoned ...Hi. This would be the first time we very spoken to anyone outside of my family/Dr about my AS. Ive had an AS diagnosis for around 5 years. I've been...Reactions 0 reactions Comments0 repliesAlternative TreatmentAnkylosing SpondylitisSide Effects
Acceptance and Transition After an AxSpa Diagnosis...I am facilitating a course on lifestyle management for people living with long term conditions, with difficult life circumstances, and in need of support from peers and health coaches to... By Julie Vallortigara3 min readBookmark for laterReactions 0 reactions Comments0 comments
Reflections After Three Years of Being on Cosentyx...We are going three years on Cosentyx. Cosentyx is the fourth biologic that I have been on, and also the one I've been on for the longest time. Before Cosentyx... By Nicky Flikas2 min readBookmark for laterReactions 0 reactions Comments3 comments
Active yesterdayAchilles Tendon Insertion: How Important?...Did your Achilles tendon/plantar fascia insertions come into consideration in getting a diagnosis? Did you have recurrent Achilles tendonitis or plantar fasciitis (not from sports) and go on to develop...Reactions 0 reactions Comments1 repliesDiagnosis
Active todayRinvoq ...Ive gone through 3 Biologic treatments all other painkillers i am now put on Rinvoq but im terrified of it should i be does anyone here hsve the dtug or...Reactions 0 reactions Comments1 repliesAnkylosing SpondylitisAxial Spondyloarthritis
Active 5 days agoRinvoq ...O am so tired but ill try to get this right.ive got fibromalalgia and axial and peripheral spondylitis im house bound im on screaming pain tried all Dmards all Biologics...Reactions 0 reactions Comments0 repliesAnkylosing Spondylitis
Finding Acceptance, Belonging, and Embracing Your Journey...Living with a chronic inflammatory condition like axial spondyloarthritis (AxSpA) can often make us feel like outsiders in a world that doesn't fully understand our experiences. One of the unique... By Tomesha Campbell2 min readBookmark for laterReactions 0 reactions Comments6 comments
Comparison and Ankylosing Spondylitis...We’ve probably all heard the phrase "comparison is the thief of joy." People usually say this to mean that you should stop comparing yourself to other people. The idea is... By Joy Tilbrook3 min readBookmark for laterReactions 0 reactions Comments1 comments
Active yesterdaySpinal stenosis ...I had my MRI today for my neck stiffness, pain and vomiting I've been having and it showed Shallow disc bulges more prominent to the right at C3-4 and C4-5...Reactions 0 reactions Comments7 repliesAlternative TreatmentComorbidities
Why I Trust Biologics to Treat My Ankylosing Spondylitis...Ankylosing spondylitis/axial spondyloarthritis (AS/AxSpA) is a chronic inflammatory disease that primarily affects the spine. It can cause severe pain and stiffness in the joints, leading to a significant decrease in... By Jed Finley3 min readBookmark for laterReactions 0 reactions Comments2 comments
Get Grounded Giveaway...Managing axial spondyloarthritis (AxSpa) is like growing a delicate plant. Just as the plant needs the right conditions to be healthy, so do our bodies. Stressors can easily disrupt this... By AxialSpondyloarthritis.net Team1 min readBookmark for laterReactions 0 reactions Comments0 comments
Active yesterdayHow do you stay grounded during stressful times?...The link between stress and the inflammatory response means it’s crucial to find ways to destress in stressful times. Share your best tips for staying grounded when life gets overwhelming...Reactions 0 reactions Comments48 repliesCopingMental HealthFlare Management
How I Spend My Self-Care Days...Living with a condition like AS is extremely draining, both mentally and physically. While medication can help manage the physical side of things (although it is not that easy and... By James Hollens4 min readBookmark for laterReactions 0 reactions Comments0 comments
Starting biologics ...I’m new to this! Recently diagnosed with AS.. My delivery for my biologics is coming on Friday and I am super nervous!! Any advice or tips?...Reactions 0 reactions Comments1 repliesAnkylosing SpondylitisNewly DiagnosedTips & Advice
Investing in Tools That Help Make Life Easier With AS...Someone once told me to never skimp when buying the tools you’ll use the most. This has taken on a new meaning for me thanks to my axial spondyloarthritis. I’ve... By Anne-Marie Raymond3 min readBookmark for laterReactions 0 reactions Comments9 comments
Don't Let What You Have Define Who You Are...I have a dual diagnosis plus a genetic diagnosis: ankylosing spondylitis (AS), Ehlers-Danlos syndrome (EDS), and secondary progressive multiple sclerosis (MS). I do not let my diseases define me. Friends... By tjo-2 min readBookmark for laterReactions 0 reactions Comments1 comments
Histamines, Autoimmune Conditions, and Axial Spondyloarthritis...Histamine is a chemical that plays a key role in allergies. It is also involved in inflammation and autoimmune conditions. When it is released from immune cells, histamine triggers events... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
My Most Valuable AxSpa Strategy Is Pacing...After my diagnosis with AxSpa one doctor told me that I needed to pace myself to manage chronic pain and chronic fatigue. I had no clue what pacing was and... By Julie Vallortigara4 min readBookmark for laterReactions 0 reactions Comments5 comments
Ask This to Your Loved One With AxSpa..."How are you feeling today?" "How are you really feeling today?" The question I wish someone would reach out and ask me more often. So many of us with this... By Nicky Flikas3 min readBookmark for laterReactions 0 reactions Comments1 comments
Was it brain fog?...I’ve commented previously about brain fog and here I am again. Preface: Since last October I have taken part in a preparatory class to become a member of the Catholic...Reactions 0 reactions Comments5 replies
