Sponsored: The National Institutes of Health Initiative Advancing Research on Chronic Pain...By National Institutes of Health Today, new cases of chronic pain are more common than new cases of other chronic conditions, such as diabetes, depression, and high blood pressure. While...
Difficulty in Finding Diagnosis...Hello everyone! I'm from Volgograd, Russia. I'm 39 years old. I was diagnosed three months ago, but it was a very difficult journey. It started in January 2024. I felt...Reactions0reactionsComments1 comments
Learning to Manage AxSpa is a Marathon...They say “Life is a marathon, not a sprint.” The meaning is that we shouldn’t get hung up on the little events we experience. Life goes on for a long...Reactions0reactionsComments1 comments
HEREDITARY HEMOCHROMATOSIS DNA MUT...I have one set of faulty H63D and C282Y has anyone had experience with this any suggestions I'm so confused because there's so many things that it could be...Reactions0reactionsComments3 repliesComorbidities
Health Professionals I’ve Added to My AS Team...Over the years I’ve visited a number of different health professionals to help me manage my axial spondyloarthritis. Some have not proven helpful for me personally (both chiropractic and osteopathic...Reactions0reactionsComments1 comments
What early signs did you experience that may have indicated you had axSpa?...Many folks with axSpa have early warning signs that they don't initially pick up on but later realize they are symptoms of axSpa. Did you have any early warning signs...Reactions0reactionsComments1 repliesAwarenessSymptomsDiagnosis
Smoking and axial spondiloarthritis ...Hi.Could someone tell and explain to me how exactly smoking affects axial spondiloarthritis and enthesitis?Thank you in advance...Reactions0reactionsComments1 replies
Pain-night to morning...I'd like to know if anyone experiences the following; From , 6 pm to 7 am or even 2 hours later in the morning, a trigger is pulled and pain...Reactions0reactionsComments8 replies
Hi, I would like to chat with people about what I'm going through....Chat with people that understands me and my problems...Reactions0reactionsComments3 repliesAxial Spondyloarthritis
Why Advocating for Yourself Feels Difficult, Especially With Family...For those grappling with Axial Spondyloarthritis (axSpA), moments with family can quickly become challenging encounters that leave us frustrated and misunderstood. I vividly recall a recent holiday visit with my...Reactions0reactionsComments2 comments
Tips For Dating With AS...Dating with a chronic illness sure can be tough. We have a complicated enough relationship with our immune system, so having another one with a human being on top of...Reactions0reactionsComments3 comments
Does anyone have lift chair/recliner/rocker...I’m going to retire my Well know rocker / recliner after 20 years and thinking about getting a lift chair since it’s harder for me to get out of my...Reactions0reactionsComments21 repliesAssistive Devices
Living in assisted living with AS...My brother is 78 and has AS. He was diagnosed about 2 years ago. He is in assisted living due to other health issues but his AS is getting worse...Reactions0reactionsComments2 repliesTreatmentAnkylosing Spondylitis
From Pet to Partner: How My Dog Helps Me Navigate Life With AS...It wasn’t my idea to get a dog. My 9 year old daughter was obsessed. I can’t tell you how many times a day she would tell us she wanted...Reactions0reactionsComments3 comments
My Post-Surgery Flare Up Without Biologics...I got my breast reduction surgery in early July of this year. It was my first surgery and I got through it. Add it to my list of accomplishments--I'm so...Reactions0reactionsComments5 comments
What happened to my ankle??...Hello everyone, I am needing some feedback/info on an issue that gained my attention very quickly. I was Dx with PsA a few years ago and besides a nasty bout...Reactions0reactionsComments5 replies
The Perfect Solution for Managing AxSpa: Trial and Error...The perfect solution does not exist. But, please keep reading. Every morning I wake up not having any idea what kind of day I am going to have. Sure, I...Reactions0reactionsComments1 comments
AS ...Hello what’s the difference between HX AS and DX AS ?...Reactions0reactionsComments2 repliesCommunity SupportAnkylosing Spondylitis
My Life Didn’t End When I Was Diagnosed With AS...Seven years ago, my already chaotic, 18-year-old world was rocked. Amidst a blur of final exams, breakdowns and breakups, my back and hips caught fire, or at least that’s how...Reactions0reactionsComments9 comments
Three Reasons I Chose Not to Panic About (Another) Diagnosis...As I sat in that sterile conference room, awaiting confirmation from my genetic counselor, I couldn't help but feel detached from the situation. The alphabet soup of diagnoses I had...Reactions0reactionsComments2 comments
