Headaches ...Since going off Humira 3 years ago I’ve been getting headaches at night that seem to be referred from chronic upper thoracic spine and neck pain. Headaches are worst after...Reactions0reactionsComments2 replies
Being Unable To Exercise As I Want...Something that has been difficult for me ever since becoming chronically ill with AxSpA is the change of lifestyle – particularly working out/exercising. Before becoming sick, I was doing Insanity...Reactions0reactionsComments17 comments
Hearing Loss...I've recently been dealing with a new comorbidity possibly related to spondyloarthritis. I have mixed hearing loss. One ear is much worse than the other with sensorineural hearing loss. I...Reactions0reactionsComments4 repliesAnkylosing SpondylitisComorbiditiesCoping
A New Year, New Beginnings...Feeling quite stressed and unsure of my future living with AS. Managing anxiety and stress, I recently started a new meditation app to help ease symptoms. As the New Year...Reactions0reactionsComments1 repliesAlternative TreatmentAnkylosing SpondylitisAxial Spondyloarthritis
My First Relationship (and Break Up) With AS...Up until recently, I had never been in an official romantic relationship. I was in my "having fun stage" before chronic illness turned my life upside down at the age...Reactions0reactionsComments6 comments
Biologics not working....So after 7 years of my AS diagnosis, 6 years of changing my diet, and now at least 4 years of biologic medications. Methotrexate was like carpet bombing my entire...Reactions0reactionsComments2 repliesTreatmentSymptomsSide Effects
What Health Coaches Sometimes Get Wrong About Chronic Conditions...I was scrolling through social media when I stumbled upon a quote from a health coach that read, "You can make time for health or illness. Those are your choices."...Reactions0reactionsComments2 comments
explaining why you miss parties...This is a very good question, I have tried different things and I struggle with an answer, If I just don´t show up everyone used to ask why is she...Reactions0reactionsComments1 repliesFriends & Family
Christmas Gifts For People With AS...We are deep into the season of giving and it's got me thinking about what kind of things would make good gifts for those of us with chronic illnesses instead...Reactions0reactionsComments2 repliesAssistive DevicesCopingTips & Advice
The Struggle for Sleep With AS...My AS has caused endless disruption to my sleep. At my worst, I couldn’t sleep for more than three hours at once. I’d wake up with so much pain and...Reactions0reactionsComments2 comments
Why I Stepped Back From This Community for a Break...I've been a devoted part of this community for many years—as a writer, moderator, and Patient Leadership Council member. I've even been nominated (and was a finalist in two categories)...Reactions0reactionsComments1 comments
Getting the correct diagnosis ...I'm interested on hearing your stories. How many of you were misdiagnosed prior to your A S diagnosis?...Reactions0reactionsComments7 repliesAnkylosing Spondylitis
finally on the verge of a diagnosis...hello! i've been dealing with chronic pain and spinal issues for about 20yrs now. when i started experiencing a notable degeneration in my joints in 2020, i was referred to...Reactions0reactionsComments5 repliesNewly Diagnosed Community SupportNon-Radiographic Axial Spondyloarthritis
Managing Holiday Gatherings With AxSpa...I left France 15 years ago and I have lived in the UK ever since, but I visit for the holidays. Those who left their hometown know what it means...Reactions0reactionsComments5 comments
I have AS , Neuropathy, Chronic Pain & RLS...RLS = Restless Leg Syndrome. Yesterday afternoon My leg started kicking which is an odd time, usually at night. I took all my Meds and wouldn’t Stop ,so took everything...Reactions0reactionsComments32 repliesAlternative Treatment
4 Ways to Overcome Painsomnia...Insomnia, or the inability to get to sleep or stay asleep, affects millions of people worldwide. For many, chronic pain is a significant contributor to their insomnia. When you're in...Reactions0reactionsComments13 comments
What are you thankful for?...Even amidst the challenges posed by axSpa, there remain compelling reasons to be thankful. What are you thankful for?...Reactions0reactionsComments5 repliesCopingCommunity SupportMental Health
Burning sensation ...Hi. Im new to this group. I have burning sensations all over my legs and arms. My rheumatologist just dismisses me. Does anyone else experience this?...Reactions0reactionsComments3 repliesAxial Spondyloarthritis
Taking Steps To Make Life With AS Easier...My planning and organization skills have always left a lot to be desired. I often find myself going on holiday with zero plans on what I am going to do...Reactions0reactionsComments2 comments
Pain on walking...Hi everyone. I am new here! Only formally diagnosed yesterday, after at least 7 years of being dismissed. I am laid wide awake uncomfortable in bed and questioning my diagnosis...Reactions0reactionsComments15 repliesAxial Spondyloarthritis
