A Negative Mind Will Never Give Us a Positive Life!...It's so easy to turn a positive mindset into a negative one, right? Your brain is on the go 24/7 and if you're anything like me, who has anxiety, then...Reactions0reactionsComments4 comments
Other Sickness and AS...For the third month in a row, I have gotten sick between biologic injections. This time I've ended up on antibiotics, and my rheumy has advised me to delay my...Reactions0reactionsComments4 repliesSide Effects
Whatever It Takes...Many of our grandparents and great grandparents dealt with world wars, economic calamities, pandemic influenza, polio, difficult working conditions, insecurity around basic needs, and the indignity of institutionalized hatred. These...Reactions0reactionsComments7 comments
New Year's AS-olutions...It’s that time of year again when something as minor as a number at the end of the date changing makes us believe we can make drastic changes to our...Reactions0reactionsComments6 comments
Changing biologics again ...So the Rinvoq is apparently helping great with my inflammation levels but after breaking down again in the hospital they're going to change me to infusions. I'm running out of...Reactions0reactionsComments4 repliesCoping
The Day My Life Changed in 3 Hours...On the 3rd of June 2016, I was having my 2 days off. I went to the beach and that same evening we set off for a wine tasting event...Reactions0reactionsComments3 comments
Recovered From This Curse...I'm Neel Gala, and I got AS in October 2021. I had a worse experience with AS. I changed 13 different doctors and ways of treatment. I suffered up to...Reactions0reactionsComments2 comments
Beware...I've taken a number of falls, but none ever seriously. But, I am unable to lift myself from the floor. Each time my wife helps me and I use my...Reactions0reactionsComments1 comments
Conflicting results of blood work...Hey all. I was diagnosed with Ankylosing Spondylitis (AS) in July 2021 after experiencing hallmark symptoms (including bilateral sacroiliitis) since November 2020. I have always found it curious that I...Reactions0reactionsComments3 repliesAwareness
Working from Home with AxSpa...Hello everyone. I work from home for my main job. I have a nice desk and monitor that I LOVE but avoid due to my desk chair not aiding my...Reactions0reactionsComments6 repliesTips & AdviceAssistive DevicesWork & Employment
Sugar...Does anyone know if sugar affects inflammation or not. I crave every thing sweet, and sugary. And I just feel blah, been having flare ups more than usual....Reactions0reactionsComments1 replies
My First Time Traveling Since Becoming Homebound...A little over a year ago I wanted to surprise my fiancé with something big for our 3 year anniversary--a trip to Las Vegas for an Emo Festival. I snagged...Reactions0reactionsComments3 comments
The Pain of Being the Spondy Sub...You all might know that I am a teacher, but I don’t imagine too many of my readers know what kind of teacher I am. My current placement is as...Reactions0reactionsComments5 comments
The Verdict in My Low Dose Naltrexone Experiment...It’s been just over two years since I started taking Low Dose Naltrexone to help manage my AS. LDN is a somewhat controversial, off-label prescription that is well known in...Reactions0reactionsComments17 comments
Getting Through the Cold Months With AS...Having ankylosing spondylitis, you feel like you are a human barometer sometimes. It is getting colder, I can feel it in my hips, back (insert wherever you feel it or...Reactions0reactionsComments6 comments
Resources for Veterans, LGBTQ+ People, and Other Special Groups...Coping with a chronic health condition can be challenging for you, your family, and your caregivers. You rely on your healthcare team to manage your condition. However, there are other...
Himura ...Hi there is anyone currently taking Himura for their ankylosing spondylitis and if so can you please tell me the side effects. I've to be started on theses jabs soon...Reactions0reactionsComments8 repliesAxial Spondyloarthritis
Self-Care During the Holiday Season and Beyond...On the Monday after the Thanksgiving holiday, many of my patients reported severe flares of their arthritis and back pain from ankylosing spondylitis (AS). One woman who was recently diagnosed...Reactions0reactionsComments6 comments
Luggage, Long Lines, and Jet-Lag...When my daughter received notice of acceptance into the University of Edinburgh for her Master's degree, she asked, "Will you go with me to get me settled?" Of course, I...Reactions0reactionsComments6 comments
Hi Everyone, just want to introduce myself...I have had a bad spine since my early 20's. It has been going down hill ever since. My story is long and complicated. I am in my early 60's...Reactions0reactionsComments1 repliesCommunity Support
