Tips for Going to Live Music With a Chronic Illness...Last week was my first time since becoming this ill that I had gone back to my happy place: live music. When I was in remission concerts used to be...reactions2comments
Ankylosing Spondylitis and a Proposed Rule in Florida...I am furious, outraged, and all the other negative, angry words one can think of regarding a recent decision of the Florida High School Athletic Association (FHSAA). The sports medicine...reactions2comments
Living With AxSpa Has Helped Me Build Resilience Facing Illness...I have lived with AxSpa for many years; along the way I got diagnosed with fibromyalgia as well. I came to a realization last year that living with chronic conditions...reactions6comments
Does Ankylosing Spondylitis Related Fatigue Impact Your Daily Life?...Does AS-related fatigue impact your daily life? If so, you're NOT the only one. Answer the questions below, check out the recording of our discussion with Lisa and Tomesha, and...reactions1comment
My Lowest Point With AxSpa Was a Gift...Shortly after diagnosis when I was about 18, I remember going to the theater where my sister was working at the time. Me, my mum, and sister saw a show...reactions1comment
Preparation for Spine Surgery...We know in life, there is a prepping stage for all things. The same holds true for surgery. I am in that preparation phase now. This is what it looks...reactions6comments
It Never Ends !!!!...I have HLAB 27 POSITIVE and was diagnosed with ankylosing spondylitis. I have 4 rods and screws, this May I had a piece of bone removed from my spine, which...reactions2comments
Choosing a Keyboard for Daily Work...I'm searching for a keyboard that doesn't aggravate the pain in my hands, and am not having much luck. For me, size (cannot be small), key height, and key pressure...reactions2repliesSymptomsAxial Spondyloarthritis Tips & Advice
4 Things That Make Me Happy...2021 is a year that I’d love to forget. It just wouldn’t quit. The worst parts were losing a dear friend by suicide, while my family and I dealt with...reactions6comments
Developing A Movement Routine...I've always been one of the "move it or lose it" types. Why? Because it's served me, and because movement is one of the main therapies experts recommend for this...reactions2comments
What Part of the World are you From?...Hello everyone! We have an amazing community here and I thought it would be a good idea for us to share what part of the world we are from! My...reactions148repliesAwareness
Going Natural: My Decision To Stop Taking Biologics...It's been a long 5 years of trying different treatments that have unfortunately not been successful for me. The medications have caused issues for me. Of course with my luck...reactions18comments
Finding Balance in Managing My AS...When it comes to life lessons, it would seem I prefer to learn them the hard way! This was certainly the case when I decided to try lifestyle strategies to...reactions3comments
A Cold Fish...A Cold Fish: Someone who lacks empathy and emotion I feel like I am taking a big risk coming out like this, but I feel I am taking one for...reactions4comments
Making Online Friends Changed My Life...After becoming incredibly ill and home bound, I not only lost my social life but also some friends along the way. This was devastating and heartbreaking because these were the...reactions2comments
Gene Testing My Children for AS...Like the majority of people with ankylosing spondylitis, I tested positive for the gene HLA-B27. Following my diagnosis I often wondered about this genetic marker and the line it traced...reactions3comments
Women With Non-Radiographic Axial Spondyloarthritis...Ankylosing spondylitis and non-radiographic axial spondyloarthritis are two types of the same disease. Diagnosis with one or the other depends on a person's symptoms. It also depends on how much...reactions7comments
Himura ...Hi Everyone I'm new to this forum. I've just been diagnosed with AS the pain is debilitating to say the least. I've just had my 1st injection of humira last...reactions2replies
4 Questions To Jumpstart Your Self-Care...You couldn’t pay me to relive 2021. It was the year that just wouldn’t quit. The worst parts were losing a dear friend by suicide, while my family and I...reactions2comments
Do you have periods of random remission that are unexplained?...I’ve been experiencing very low disease activity despite being somewhat stressed, traveling a lot, and not always eating the best. It’s so strange. And maybe I’m going to be jinxing...reactions2repliesFlare ManagementSymptomsDiet & Nutrition
