A Mummy's Boy: Coping With Loss and Chronic IllnessMy mum died in 2021. It was in February, a dreary month in the UK when the skies are grey and the clouds are heavy, their bellies swollen with the...Reactions0reactionsComments5 comments
How Writing It Down Has Kept Me SaneI have always wanted to be a writer. Secretly. Secretly, because the world I grew up in didn’t have writers in it. Or writers didn’t come from, or inhabit, my...Reactions0reactionsComments4 comments
How My Music Helps Me Relax: 5 SongsI’ve been thinking about some of the things I do to relax. Not just relaxing my bones or my body, but relaxing my mind – de-stressing my overactive brain. I...Reactions0reactionsComments2 comments
Sex! (And Ankylosing Spondylitis)There. I’ve said it. Not out loud, of course, but on the page. Sex. It’s a great word when you think about it. It’s short – which can be a...Reactions0reactionsComments1 comments
Is It Just Me? My Struggles With Poor Body ImageI am sure other people worry about body image. It’s normal to worry just a little bit, right? But I wonder if others worry as much as I do. Is...Reactions0reactionsComments4 comments
Write It DownI have always wanted to be a writer. Secretly. Secretly, because the world I grew up in didn’t have writers in it. Or writers didn’t come from or inhabit our...Reactions0reactionsComments10 comments
The Simple ThingsI’ve been thinking about all the things in my life that help me stay positive and happy. Happiness is tough to pin down. I’m sure I read somewhere that most...Reactions0reactionsComments6 comments
A New LifeI was diagnosed with AS in 1999 and told I’d never work again. I went on full benefits – I was even allowed to apply for a car. I felt...Reactions0reactionsComments11 comments
Streaking For The Over 60s Might Be Just What's NeededAs I’ve got older, I’ve become less inhibited about certain things. I’d always believed (naively perhaps) a person got more inhibited as they aged. Not less. But maybe it’s the...Reactions0reactionsComments5 comments
FeaturedUveitis - does it become less frequent over time?I've just read an interesting article from another member, about their experiences with uveitis. They mentioned that the attacks are less frequent these days. It got me wondering about AS...Reactions0reactionsComments26 repliesAwarenessSymptomsSide Effects
When the Rain CameSummer 1999. I am working and earning good money as a self-employed carpenter. The kids are doing well in school and Teresa, my wife, has signed up at our local...Reactions0reactionsComments4 comments
What do you do to treat yourself?I mean, as in a treat for yourself - a trip out, a special meal, that sort of thing....Reactions0reactionsComments30 repliesCopingTips & Advice
Has anyone had sciatica as a result of their AS? I had the most dreadful sciatica a few years ago. So bad I couldn't walk properly for three months. I was just wondering if others have had sciatica....Reactions0reactionsComments1 repliesAwarenessSymptoms
The Long Path to DiagnosisI read recently that the longer it takes to get a diagnosis for AS the bleaker the long-term outcome for the sufferer. Teresa and I have talked a lot about...Reactions0reactionsComments4 comments
Any tips for working long days in front of a PC?Hi all. Much of my life is now taken up in front of my PC. I struggle with the level of the PC because it is supposed to be on...Reactions0reactionsComments1 repliesCopingAlternative TreatmentTips & Advice
Does the weather affect your AS?I'm at odds with this because I'd always thought the weather doesn't affect my AS. However, the older I've got, the more I've started to question if perhaps the rain...Reactions0reactionsComments10 repliesFlares Tips & AdviceWeather
Weekly injections - do you inject yourself or does someone do it for you?I've been injecting myself for 16 years now but I never get used to it. I wondered if others find injecting just as problematic as I do. It's a weekly...Reactions0reactionsComments3 repliesAxial Spondyloarthritis CopingTreatment
Rumble, Old Man, Rumble!A story of a boxing match that helped me learn to manage my AxSpA flares. October 1974. I am 16 years old. Outside the sun is yet to rise, and...Reactions0reactionsComments3 comments
Being a Bloke of a Certain AgeEvery one of us with AS knows how tough life can be. Every one of us must live with AS – even when asleep – even when having good days...Reactions0reactionsComments0 comments
