Taking Risks as a Chronically Ill Person...As a sick and disabled person, it isn’t very often that I actually get to take risks or even have the choice...reactions3comments
Ask This to Your Loved One With AxSpa..."How are you feeling today?" "How are you really feeling today?" The question I wish someone would reach out and ask me...reactions1comment
Battling the Thoughts in My Head...Have you ever had thoughts you just don’t want to have, and wish they would leave you alone? Have you ever had...reactions4comments
Axial SpA and IBD: A Huge Reminder...I recently had a hell of a week; it was painful and laborious. I've been side-tracked with symptoms of inflammatory bowel disease...reactions6comments
What You Don’t See: Living With an Invisible Illness...Living with an invisible illness has taught me a couple of things: (1) people make assumptions about my condition based on what...reactions9comments
Reminders For Days When I Haven’t Slept...Typed into the notes section of my phone are a collection of messages that no one sees but me. I think of...reactions5comments
New Year's AS-olutions...It’s that time of year again when something as minor as a number at the end of the date changing makes us...reactions6comments
The Downside of Covering Up How I Feel...I don’t like looking sick. On days when I’m battling the pain or fatigue of AS it makes me feel better to...reactions6comments
I Learned to Let Go of My Expectations in Others...For a very long time, I brooded and sulked over the idea that many people around me either didn’t care about my...reactions4comments
Nerve Block Injections for AS...I have been getting biologic infusions every month for almost 2 years. While it reduces inflammation and slows down fusion, it doesn't...reactions9comments
Going Out for a Day and the Result...About a month ago now, I went downtown for a day trip with one of my close friends. I knew immediately when...reactions2comments
Irritable Bowel Syndrome and Axial Spondyloarthritis...After my diagnosis of AxSpa, and once I was already taking Humira (one of the biologics), I experienced some gastrointestinal (GI) issues...reactions2comments
I Tried Alternative Therapies Before Medication And I Regret It ...Unlike some of my peers with ankylosing spondylitis, my first scan showed undeniable evidence of the disease. Bilateral inflammation and erosion in...reactions25comments
The Humira Hangover...Since Keegan, my husband with AS, began taking Humira over 2 years ago, he's always talked about a "Humira hangover." He'd describe...reactions28comments
Peripheral Spondyloarthritis...Spondyloarthritis is a type of arthritis that affects the joints and the areas where ligaments or tendons attach to bone. There are...
Vision Problems (Uveitis) and Axial Spondyloarthritis...Axial spondyloarthritis (axSpA) is an inflammatory form of arthritis. The chronic inflammation that comes with axSpA causes swelling and pain, mainly in...
Finding a New Biologic After the First Fails...Just when things felt like they were getting steady with Keegan’s treatment plan, that all went out the window. We’ve been through...reactions1comment
Living Well With AxSpa: My Best Tips...I've been living with this chronic illness now for many years. I believe it started when I was young. Going through high...reactions1comment
My Mystery Skin Issues...Sometimes I think my immune system thinks it’s a Pokemon trainer – when it comes to health conditions it feels like it’s...reactions2comments
Surgical Procedure That Actually Helped...I finally found a spine pain management doctor who was actually interested in resolving my lumbar agony. He did a lot of...reactions3comments
