Brooke Abbott...Brooke was previously a health leader. In 2009, Brooke Abbott traded in her production notebook for a diaper bag with the birth of her son, Jaxon Lee Coltrane. While navigating...
Alastair Goodwin...Alastair was previously a health leader. Originally from New Zealand at the age of 34, he is currently living in Copenhagen with his partner. Alastair was diagosed with AS 2...
Small Goals for Living with AS and AxSpa...As we navigate the challenges and triumphs of living with AS and AxSpa, it's important to focus on setting achievable goals that contribute to our overall well-being and quality of...reactionsrepliesAxial Spondyloarthritis CopingCommunity Support
Cannabis strain for severe pain ...Heya, I'm so tired with finding the best cannabis CBD hybrid (preferable 1:1 ratio) strain for both - day and night use. I suffer from: - ankylosing spondylitis, - fibromyalgia...reactions15repliesAlternative TreatmentAwarenessMedical Marijuana
Progression and biologics...Hi All, So I had a recent MRI don’t on my pelvic area. There is slight progression with more bone spurs. Im currently on Humira but my doctor wants me...reactions3replies
GI issues, abdominal discomfort and flank/back rib pain...Does anyone suffer from this with AS? I am still in the "un-diagnosed realm" but starting to suspect these mystery abdominal flare-ups (this current one has been going on since...reactions10repliesAxial Spondyloarthritis CopingTips & Advice
How Goal Setting Can Help Us Self-Manage Chronic Illness...As a health coach most of my time is spent working with people on making positive behavior change. Following a diagnosis like AS, a lot of people look to improve...reactions4comments
Katie Saville...Katie was previously a health leader on AxialSpondyloarthritis.net. In December of 2018, Katie developed a rare infection in her jaw after a standard wisdom tooth removal (osteomyelitis of the mandible)...
Erin King...Erin was previously a health leader on AxialSpondyloarthritis.net. Erin currently lives in Boston, Massachusetts with her husband and their two rescue dogs, and was diagnosed with Ankylosing Spondylitis at the...
Let's Find Some Positivity Out of This Chronic Illness...Having a chronic illness of any sort is hard. It's a hard pill to swallow. Receiving a diagnosis or having to live with a chronic illness means this will be...reactions2comments
New Diagnosis With Ankylosing Spondylitis...I was just recently diagnosed with AS this week. I'm 24 soon to be 25, I've had symptoms since I was 13 but it feels as long as I can...reactions1comment
Navigating Work Stressors With an Autoimmune Disease: Tips for Success...Living with an autoimmune condition like axSpA can present unique challenges in various aspects of life, including work. Multiple symptoms, from lower back pain to fatigue, may affect your ability...reactions5comments
Getting Old Gracefully!...In my world we use the words "a bit at a time" because we do not hurry and don’t need to. I just turned 72 and a lot of days...reactions2comments
Lawrence "Rick" Phillips...Rick has spent over 30 years in local government and local school district administration in Indiana. He has, at various times, been a Director of Finance, City Controller, Personnel Director...
Does anyone who doesn't have the HLA-B27 gene had any luck with the low starch diet....I don't have the gene marker. I have read both ways that a low starch diet could help people without HLA-B27 and also that it doesn't help to eat a...reactions3repliesDiet & Nutrition
Anyone who is HLA B27 positive get results from a low starch diet?...I have read both ways that it could help people without HLA-B27 and also that it doesn't help to eat a low starch diet. Anyone tried this? I did a...reactions2repliesDiet & Nutrition
Best AxSpA doctor list by state?...Hello, all. I just joined and I am ridiculously excited to find this online community. I am in a BAD way with AxSpA. I am looking to find a Rheumatologist...reactions22repliesHealthcare Team
How Sound Healing Can Help With AxSpa Symptoms...At the beginning of March, I went to a sound healing session in a lovely venue, beautiful Church, here in Edinburgh. I had attended a couple of similar sessions last...reactions5comments
Spinal Surgery Complications: I Have a Loose AS Screw...Ouch, that hurt. That was what I told my back surgeon recently when he touched one of those spots that ache constantly. You may recall that in 2019, just as the pandemic...reactions4comments
