Featured How do you respond when someone unfamiliar with AxSpa questions your change of plans?...Sometimes we might respond calmly; other times may be more defensive. Do you have a go-to response? Do you use it as a time to educate? Let's vent!...reactions15repliesFriends & FamilyMisunderstood Tips & Advice
2 Tips for Flying With Ankylosing Spondylitis...Flying is always a nightmare with ankylosing spondylitis (AS). Even when I've flown in best-case scenarios—like in an upgraded premium seat—the pain remains, and the days after a flight leave...reactions5comments
Getting Complacent With Self Care...Having a chronic illness like AS can be utterly exhausting. Not only are we already exhausted from the fatigue that it forces on us, but we also need to put...reactions4comments
Diagnosed with Ankylosing Spondylitis (AS)...Hi everyone! I just wanted to come on and ask everyone for some advice as to how get on with life after being diagnosed with AS. I’ve been diagnosed with...reactions22repliesAnkylosing SpondylitisCommunity SupportCoping
Advice for older people over 60 who have AS and not had symptoms before this started....Good afternoon I was only diagnosed last year at 62. I had no symptoms to say I had this when I was younger as most people do. I have Ankylosing...reactions14repliesAnkylosing Spondylitis
Navigating Life with AS and AxSpa: Coping Strategies and Experiences...Living with a chronic condition like ankylosing spondylitis can present numerous challenges, both physically and emotionally. From managing pain and stiffness to adapting to changes in daily routines, individuals with...reactions23repliesCopingTips & AdviceAxial Spondyloarthritis
The Stress Flare...I’ve been having trouble sleeping at night. I’ve been stressed, and not only am I struggling to quiet my mind enough to find deep sleep, but I’m tossing and turning...reactions5comments
Managing Seasonal Joint Pain for a More Fulfilling Life...There was a time when the changing seasons used to bring me joy, but now it seems to give me joint pain mostly. I used to think it was "all...reactions5comments
Summer Traveling Tips...Going anywhere fun this summer? What are your summer travel tips? Feel free to share pics!...reactions2repliesTips & AdviceTravelFlare Management
Rife...I’m new here. I have been battling this disease for several years but struggle because I am extremely reluctant to try pharmaceuticals. Doctor and I discussed methotrexate but that’s what...reactions6repliesAlternative TreatmentAnkylosing Spondylitis
CBD for pain...Hi! I have been thinking about using CBD products for pain. I’m on biologics and have prescription anti-inflammatories, but I don’t want to take the anti inflammatories all the time...reactions4replies
Close to losing my job...I work in a school in an early years classroom. Last year I was referred for an occupational health assessment. The report suggested adjustments to my hours, duties and extra...reactions11repliesAnkylosing SpondylitisWork & Employment
Faking it With Ankylosing Spondylitis...I am a faker. I admit it. But I bet it is not what you are thinking. I fake people out about how well I am doing. In fact, I am...reactions2comments
Do you experience gut issues with your AS or AxSpa? ...People with axSpA are more likely to get inflammatory bowel disease (IBD) than those without it. IBD includes ulcerative colitis and Crohn's disease. These conditions can cause digestive tract damage...reactions95repliesComorbidities SymptomsSide Effects
Are you feeling fatigued? How do you manage it? ...Unfortunately, fatigue is a part of living with AS. Learning ways to manage your fatigue can be a game-changer and help you live a happier, more rested life....reactions30repliesSymptomsTips & AdviceSide Effects
What's something you wish you were told when you were diagnosed? ...We learn a lot from our diagnosis through experience, trial and error, and sharing information. What's one thing you wish you would have been told when you were first diagnosed?...reactions37repliesCopingTips & AdviceDiagnosis
Are you diagnosed with AS or AxSpa? ...There are 2 types of axSpA: radiographic and non-radiographic. Radiographic axSpA (r-axSpA or AS) In radiographic axSpA, inflammation, and bone damage are visible on X-rays. This is most commonly called...reactions50repliesAnkylosing SpondylitisAxial Spondyloarthritis Diagnosis
Active 2 days agoWhat symptoms of AS do you experience? ...Chronic, long-term back pain is one of the most commonly reported health problems in the United States. Not surprisingly, back pain is also the most reported symptom by people living...reactions191repliesAnkylosing SpondylitisAxial Spondyloarthritis Symptoms
Cane or Crutch?...I recently came across some blog articles discussing the preference for a cane versus a crutch, with most people preferring a forearm crutch to their cane. Perhaps this simply comes...reactions7repliesAssistive DevicesFlare Management
Back to Work Advice...Hello AS family, I got a new job! It will be my first full-time, in-office gig since my diagnosis. It's not perfect, for instance entrance to the office is up...reactions11repliesCopingWork Accommodations Tips & Advice
