Katie Saville...Katie was previously a health leader on AxialSpondyloarthritis.net. In December of 2018, Katie developed a rare infection in her jaw after a standard wisdom tooth removal (osteomyelitis of the mandible)...
Erin King...Erin was previously a health leader on AxialSpondyloarthritis.net. Erin currently lives in Boston, Massachusetts with her husband and their two rescue dogs, and was diagnosed with Ankylosing Spondylitis at the...
Let's Find Some Positivity Out of This Chronic Illness...Having a chronic illness of any sort is hard. It's a hard pill to swallow. Receiving a diagnosis or having to live with a chronic illness means this will be...Reactions0reactionsComments2 comments
New Diagnosis With Ankylosing Spondylitis...I was just recently diagnosed with AS this week. I'm 24 soon to be 25, I've had symptoms since I was 13 but it feels as long as I can...Reactions0reactionsComments1 comments
Navigating Work Stressors With an Autoimmune Disease: Tips for Success...Living with an autoimmune condition like axSpA can present unique challenges in various aspects of life, including work. Multiple symptoms, from lower back pain to fatigue, may affect your ability...Reactions0reactionsComments5 comments
Getting Old Gracefully!...In my world we use the words "a bit at a time" because we do not hurry and don’t need to. I just turned 72 and a lot of days...Reactions0reactionsComments2 comments
Lawrence "Rick" Phillips...Rick has spent over 30 years in local government and local school district administration in Indiana. He has, at various times, been a Director of Finance, City Controller, Personnel Director...
Does anyone who doesn't have the HLA-B27 gene had any luck with the low starch diet....I don't have the gene marker. I have read both ways that a low starch diet could help people without HLA-B27 and also that it doesn't help to eat a...Reactions0reactionsComments3 repliesDiet & Nutrition
Anyone who is HLA B27 positive get results from a low starch diet?...I have read both ways that it could help people without HLA-B27 and also that it doesn't help to eat a low starch diet. Anyone tried this? I did a...Reactions0reactionsComments2 repliesDiet & Nutrition
Best AxSpA doctor list by state?...Hello, all. I just joined and I am ridiculously excited to find this online community. I am in a BAD way with AxSpA. I am looking to find a Rheumatologist...Reactions0reactionsComments22 repliesHealthcare Team
How Sound Healing Can Help With AxSpa Symptoms...At the beginning of March, I went to a sound healing session in a lovely venue, beautiful Church, here in Edinburgh. I had attended a couple of similar sessions last...Reactions0reactionsComments5 comments
Spinal Surgery Complications: I Have a Loose AS Screw...Ouch, that hurt. That was what I told my back surgeon recently when he touched one of those spots that ache constantly. You may recall that in 2019, just as the pandemic...Reactions0reactionsComments4 comments
It's Just Allergies, Right?...Seasonal allergies, the annoying across the hall neighbor of chronic illness. They always come over uninvited, eat our food, and try to suck us into their hairbrained schemes. So, I...Reactions0reactionsComments2 comments
As how to get a diagnosis ...Hi I am new here. I’ve been dealing with lower back pain since I was 18 (now 43) I was always told as a kid I walked like a duck...Reactions0reactionsComments8 replies
Pain: The Seasoning of Life...The pain has brought a different flavor to my life. Much as seasonings bring out different flavors in foods. It's like not having the normal ingredients to make a certain...Reactions0reactionsComments4 comments
Alternative Treatment: My AS Suffering Is Over...I am 67 years old. I have been diagnosed with AS since 1982. I experienced great pain in my hips, SI joints, chest, wrists and other bones. I never believed...Reactions0reactionsComments4 comments
Could These Red Bumps Be Related to my Ankylosing Spondylitis?...I recently broke out with red bumps on my hands and arms. It started last summer. At first I thought maybe it was something in my garden, but by the...Reactions0reactionsComments10 comments
Need suggestion of Rheumatologist in Fairhope Alabama ...Recently relocated to South Alabama and I’m looking for suggestions of Rheumatologist that has treated others with this condition....Reactions0reactionsComments1 repliesTreatment
My Chronic Struggles With Keeping Up With Replies...We live in a bit of a "now culture" where people want everything instantly – including replies to text messages and emails. But sometimes this just isn’t doable for those...Reactions0reactionsComments15 comments