Making Camping Trips Doable With AS...One of our family’s favorite pastimes has always been going away camping. I’ve missed quite a few of those trips over the years thanks to AS. It always tugs at...reactions2comments
Finally Meeting Some Super Spoonies...When I was first diagnosed with an arthritic condition, I felt very confused and alone. I always thought arthritis was a bit of knee pain that my grandmother used as an excuse to get out of taking me to the park...reactionscomments
Do you think stress could have triggered Axial SPA...Hi all, I have posted on here before desperately searching for advice regarding diagnosis (I realise none of us are medical professionals) but just wanted advice. I was just wondering...reactions8repliesMental HealthAxial Spondyloarthritis Caregiving
Base of skull pain and inflammation causing migraines...Does anyone else experience the base of their skull getting so inflamed causing a ton of pain? It’s like you have two golf balls at the base of your skull...reactions4repliesAnkylosing SpondylitisTreatmentTips & Advice
Do biologics really work??...Hi I am 62 live in the uk I got diagnosed with AS last year,i probably had it years ago but didn’t know as was working, going to the gym...reactions20repliesAnkylosing Spondylitis
What are your go-to anti-inflammatory recipes? ...Share your favorites below! Post pictures of the finished product!...reactions24repliesFlare ManagementDiet & NutritionTips & Advice
What biologics have you tried and how have they helped? ...Please remember that everyone is different, and what works for some may not work for others. Please respect everyone's experience and their decisions to try or not try certain medications....reactions121repliesFlare ManagementTreatmentCommunity Support
I Got Disability Support!...I have something very exciting to share! After 6 whole years of applying, getting denied, appealing, and getting denied again, I’ve finally been accepted for disability support! It was a...reactions8comments
Featured How do you respond when someone unfamiliar with AxSpa questions your change of plans?...Sometimes we might respond calmly; other times may be more defensive. Do you have a go-to response? Do you use it as a time to educate? Let's vent!...reactions15repliesFriends & FamilyMisunderstood Tips & Advice
2 Tips for Flying With Ankylosing Spondylitis...Flying is always a nightmare with ankylosing spondylitis (AS). Even when I've flown in best-case scenarios—like in an upgraded premium seat—the pain remains, and the days after a flight leave...reactions5comments
Getting Complacent With Self Care...Having a chronic illness like AS can be utterly exhausting. Not only are we already exhausted from the fatigue that it forces on us, but we also need to put...reactions4comments
Diagnosed with Ankylosing Spondylitis (AS)...Hi everyone! I just wanted to come on and ask everyone for some advice as to how get on with life after being diagnosed with AS. I’ve been diagnosed with...reactions22repliesAnkylosing SpondylitisCommunity SupportCoping
Advice for older people over 60 who have AS and not had symptoms before this started....Good afternoon I was only diagnosed last year at 62. I had no symptoms to say I had this when I was younger as most people do. I have Ankylosing...reactions14repliesAnkylosing Spondylitis
Active 6 days agoNavigating Life with AS and AxSpa: Coping Strategies and Experiences...Living with a chronic condition like ankylosing spondylitis can present numerous challenges, both physically and emotionally. From managing pain and stiffness to adapting to changes in daily routines, individuals with...reactions25repliesCopingTips & AdviceAxial Spondyloarthritis
The Stress Flare...I’ve been having trouble sleeping at night. I’ve been stressed, and not only am I struggling to quiet my mind enough to find deep sleep, but I’m tossing and turning...reactions5comments
Managing Seasonal Joint Pain for a More Fulfilling Life...There was a time when the changing seasons used to bring me joy, but now it seems to give me joint pain mostly. I used to think it was "all...reactions5comments
Summer Traveling Tips...Going anywhere fun this summer? What are your summer travel tips? Feel free to share pics!...reactions2repliesTips & AdviceTravelFlare Management
Rife...I’m new here. I have been battling this disease for several years but struggle because I am extremely reluctant to try pharmaceuticals. Doctor and I discussed methotrexate but that’s what...reactions6repliesAlternative TreatmentAnkylosing Spondylitis
CBD for pain...Hi! I have been thinking about using CBD products for pain. I’m on biologics and have prescription anti-inflammatories, but I don’t want to take the anti inflammatories all the time...reactions4replies
Close to losing my job...I work in a school in an early years classroom. Last year I was referred for an occupational health assessment. The report suggested adjustments to my hours, duties and extra...reactions11repliesAnkylosing SpondylitisWork & Employment
