Does anyone have osteoporosis of the spine as well as AS/ fibromyalgia/ mechanical back pain etc
Hello I am Jan from the uk I am 66 I got diagnosed at 62.
I was wondering if anyone has osteoporosis if the spine and allowed steroid injection? I haven’t had one since 2024 and I am in a battle with my rheumatologist second opinion rheumatologist about it he refuses it u do understand why but I am having flares a lot and all he says is biologics which I can’t take as the last ones left me so many chest infections and three years on chronic skin conditions and HS which my skin was fine I had no issues and very rare a spot but I have scars/ spots/ boils and tablets cause reactions stomach issues and I use Tea tree oil for my skin it’s helps but all the creams/ tablets from the NHS caused my skin to burn and stomach upsets. I have diverticulitis and IBS. I have a heart rhythm disorder from the biologics as well.
Hi Kathy it is for me and my husband and he isn’t well either.
That sounds wonderful but here nothing like that.
Yes I have I did a Fodmap it helped a bit but I have IBS as well and diverticulitis amongst other issues. It’s always Bern like that my stomach reacts differently to a lot of things and not just my stomach it’s my skin now I am so sensitive I didn’t used to be.
I have tried different things but so far only hydro is so good.
I use tens machine and heat pad too.
Take care
JanYou take care, too. And keep in touch. Kathy (Team member)
Sending you hugs. Osteoporosis is a very common comorbidity of AS. Are you being treated for it? I don't know if that would increase the bobe density of your spine enough for the injection you want. But it's a question you can ask your doctor. Other than the biologics, which sure seem to have had many complications for you, what treatments have you tried for the AS? Warmly, Kathy (Team member) Hi Kathy yes but I had it in 2012 when I was younger I had Anorexia i hardly had food I would throw up as a teenager, so probably from that i think.
No I am not as the medicine like nearly everything I try affects my stomach, the rheumatologist team are fed up with me they haven’t said but I know I am fed up of me as well, now I have neck issues I rang them up they said try exercise for neck but nothing specific for AS. I know steroid injection doesn’t help for a long time but it’s summer I could go out with my husband enjoy the summer but instead I am stuck here.
The only thing that was helpful was hydro it really helped but after six sessions that’s it but other areas in the uk have it all the time whenever but here in Northumberland zero, I can’t afford to pay for private hydro and the private one is not near me.
A swimming pool is too cold I tried it and I can’t swim anyway.
Now I am have so much fatigue this last week I am exhausted but trying to do steps, I can’t sleep well either and can’t nap. I hate my body.I am so sorry you are going through all this. It must be terribly frustrating. I'm lucky to have a health center with a pool that offers water aerobics. Some people in the class wear wetsuits to keep themselves warm. Have you spoken to a dietician who might be able to help you discover foods that might make the medicine more tolerable? So often it seems that living with AS involves experimenting until you find something that works for you. Warmly, Kathy (Team member)
