Jan 58
Member
"The spasms are every few minutes, lack of any sleep/ energy trying to move while nearly collapsing on the phone with them and my husband doing everything possible to help while managing his mental health, my daughter helping in letters to social services she works with social workers, long hours has two children and house and husband but does her best at 67 myself and my husband supposed to be enjoying our retirement, but I do try think positive but it’s very difficult I am sitting a lot because every tiny movement sets it off, rheumatology I don’t know not rang back today about Friday. I have heat pad, v pillow, I try move my legs as I know sitting not good."