In Defense of Fun: Chronic Illness Management...I've been in a dark hole lately. The pain has gotten pretty intense and incredibly constant. Just when I think I'm doing ok, I go take a walk and my...Reactions0reactionsComments4 comments
How I Knew Humira Wasn’t For Me...I was on Humira for 6 and a half months. I knew I should give it around 6 months to be completely sure if it was working for me or...Reactions0reactionsComments9 comments
Trying to Find Answers After Being Told Different Things...I was diagnosed with rheumatoid arthritis in 2017. I've tried about 8 medications. I am now on Simponi Aria infusions. I started having severe back pain about 6 months ago...Reactions0reactionsComments2 comments
Just Diagnosed with Ankylosing Spondylitis...I'm 64 and went to a chiropractor for the first time for pain in my mid-back that just would not go away. Since I was a new patient he did...Reactions0reactionsComments3 comments
James Allen...James was previously an advocate on AxialSpondyloarthritis.net. James Allen is a health tech entrepreneur who has had ankylosing spondylitis since he was 17. After a severe flare-up in 2013, he...
Moving Day with Axial Spondyloarthritis...My wife, Stacia, and I have moved around a bit in the past decade, moving from Massachusetts to Texas to New Mexico and now to Colorado. With all of the...Reactions0reactionsComments3 comments
Interstitial Cystitis and Ankylosing Spondylitis: Is There A Connection?...Two weeks ago, I was diagnosed with interstitial cystitis. You know what they say about autoimmune conditions...you can't just have one, and I can attest to that. I already suffer...Reactions0reactionsComments12 comments
Sleep...How to get more sleep? Hi everyone I need tips on getting more/better sleep. I can only last about /20 minutes of sitting,standing or lying down before the lower back...Reactions0reactionsComments2 replies
Understanding My Pain Helps Me Manage It...Even with a treatment that is effective and regular exercise, AxSpA reminds me that it is still here, and manifests itself through new pain. The condition is active, it changes...Reactions0reactionsComments4 comments
Interviewing my Family Members About my AS...Being diagnosed with ankylosing spondylitis (AS) was major event in my life that not only affected me, but also the people in my life. My family has been by my...Reactions0reactionsComments3 comments
Looking for new cure...I have had AxSpA for about 24 years. I am 73 and yes I have tried everything from stem cell therapy, opioids, exercise and physical therapy, stretches, spinal stimulator, massages...Reactions0reactionsComments4 comments
Ways to Support Someone Living with a Chronic Illness...If you care for or live with someone diagnosed with a chronic illness, then you know some days are harder than others for us. We, unfortunately, don't get to pick...Reactions0reactionsComments4 comments
Day in the Life: Flare Day...I’m going to walk you through what my day looks like when I’m flaring. As a note, I do have other conditions that affect my health, but I will mainly...Reactions0reactionsComments0 comments
FeaturedAre you HLA-B27 positive or negative?...I think its important to highlight that not everyone with AS is HLA-B27 positive. Let me know if you are positive or negative!...Reactions0reactionsComments392 replies
Pain Management Tips & Tricks, Part 2: Exercise, Hydration, and More...Editor's note: You can read Part 1 of Ali's "Pain Management" series here. When you're in pain the last thing you'd even want to think about is exercise. When you...Reactions0reactionsComments4 comments
My Morning Routine...I wake up, rollover, ouch! Everything feels stuck. I slowly turn over, moaning. Usually, when I get a good night's sleep, I tend to sleep wrong. I wake up with...Reactions0reactionsComments7 comments
How many biologics have you tried until you found the right one for you?...We are all different. One thing I've learned about AxSpa is there is a lot of trial and error with finding what works for you. Have you tried more than...Reactions0reactionsComments6 repliesTreatmentFlare Management
Amplifying Black Voices: The Importance of Finding Community...When you live with a chronic autoimmune condition like ankylosing spondylitis, finding a community that understands is powerful. And, science backs this up. What is community? It is a group...Reactions0reactionsComments1 comments
I Finally Found the Right Doctor—and Here's What I've Learned...One of the strangest lessons I have learned as a patient is that finding the right doctor is a lot like finding the right partner. Besides the obvious medical expertise...Reactions0reactionsComments1 comments
AS Gave Me Empathy...When I think about myself a few years ago, I think of long nights and parties. Struggling to find the energy, but with relative painlessness. When I think of my...Reactions0reactionsComments1 comments
