Amplifying Black Voices: How Healthcare Providers Can Better Serve the Community...For our Amplifying Black Voices series, we are exploring how bias in healthcare affects the quality of life for Black people living with autoimmune conditions. Science shows that biases and...reactionscomments
Fatigue-Busting Tips for Ankylosing Spondylitis...When I'm in the throes of an ankylosing spondylitis (AS) flare-up, the fatigue is through the roof. We're talking about getting up to get a cup of water and immediately...reactions3comments
Rethinking Arthritis Fatigue...My sister Danica* has a next-level guest room. If she ever decided to quit working in [redacted] Danica would conquer the hospitality business. An alchemist, she makes every room in...reactionscomments
What's in your AxSpA flare toolkit? Share a photo with the community!...Everyone copes with AxSpA and symptom flare-ups different. Do you have a cozy cave, or place in your home where you go to feel better? What items or activities can...reactions12repliesCopingFlare Management
Rest and Back Pain...Getting a good night's rest is something many of us in this community struggle with. I too have had and still have my problems with that. Due to the lower...reactions2comments
The Question that Keeps Me Up at Night...There's a question that keeps me up at night. Could my husband, Keegan, be suffering from more than just AS? What if his fatigue is chronic fatigue syndrome? What if...reactions5comments
Coming Back Home to Myself...I am making more space for things that are good for me. I am temporarily separating myself from the ideology of productivity so that I can redefine what it means...reactions1comment
I Miss Having a Choice...Every morning I wake up immediately feeling the fire behind my eyes and think to myself, “Time to do the same thing as yesterday…” The only motivation for getting out...reactions3comments
7 Items That Help with my AxSpA...With a chronic illness that is largely out of my control, I rely on certain items to give me a sense of control and to be as comfortable as possible...reactions1comment
My One Year Painiversary...As my one-year painiversary is coming up, I thought writing an article about this topic was important. My last pain-free day was the 13th of April 2020. I did not...reactions1comment
The Therapeutic Effects of Sharing Your AxSpA Story...When I was first diagnosed with ankylosing spondylitis, a form of axial spondyloarthritis, I wasn’t sure how to talk about my experience. Honestly, I didn’t want to think about what...reactions1comment
My Symptoms May Be Invisible, But I am Not...A lot of my symptoms are very much invisible. When I was first diagnosed, I felt like I was invisible. Within the past year and a half, I’ve made it...reactionscomments
Just another bad day...Friday morning, 6 am, the voice of my husband trying to wake up the kids for school. I tried to open my eyes wide, but I was so extremely tired...reactions5comments
You are just a monster ... I am not scared!...On the good days (still in pain but manageable), I feel like I am on top of the world. I am so thankful for those days when they come along...reactions5comments
Q and A About My Disease, Ankylosing Spondylitis...A: Haha, it's pronounced: AN-KUH-LOH-SING SPON-DILL-EYE-TIS. It's a degenerative inflammatory disease that is mediated by the immune system and primarily affects my spine, which means the disease is inflammatory in...reactions2comments
What Fatigue Really Feels Like...The concept of a "rest day" never really crossed my mind until I found myself experiencing serious ankylosing spondylitis fatigue. About a year before my diagnosis is when I started...reactions1comment
Enthesitis and Ankylosing Spondylitis: Part 2..."Centipede to the physician: Doc, when my feet hurt, I hurt all over." In Part 1 of this discussion, I talked about how foot pain can be linked to ankylosing...reactions12comments
What yoga poses or stretches have helped you move comfortably? Share a photo with the community! ...Stretching helps to loosen stiff muscles and joins and may even help ease some pain from AxSpA. What stretches or poses have helped you feel better? Share a photo with...reactions11repliesExerciseCoping
Pets of AxialSpondyloarthritis.net...Let's see your pets! Kicking things off, here's my buddy Rockko. ...reactions5repliesCoping
How To Keep Your Head Up Through The Diagnosis Process...We all have different experiences with our diagnoses. Some of us have to wait several years, see countless doctors, and do numerous different tests before getting some answers. Others are...reactionscomments